Register Of All-Party Parliamentary Groups [as at 28 April 2016] Rare, Genetic and Undiagnosed Conditions
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Title |
All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions |
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Purpose |
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
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Category |
Subject Group |
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Officers |
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Role |
Name |
Party |
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Chair & Registered Contact |
Ben Howlett |
Conservative |
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Vice Chair |
Mrs Cheryl Gillan |
Conservative |
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Vice Chair |
Lord Turnberg |
Labour |
|
Vice Chair |
Baroness Neville-Jones |
Conservative |
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Vice Chair |
Lord Patel |
Crossbench |
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Contact Details |
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Registered Contact: Ben Howlett MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 8755. Email: ben.howlett.mp@parliament.uk.
Public Enquiry Point: Emily Muir, Genetic Alliance UK, Unit 4D Leroy House, 436 Essex Road, London N1 3QP. Tel: 020 7704 3141. Email: appg@geneticalliance.org.uk
Secretariat: Genetic Alliance UK acts as the group's secretariat. http://geneticalliance.org.uk/appg.htm
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Annual General Meeting |
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Date of most recent AGM in this Parliament |
11/02/2016 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
11 Feb to 10 Feb |
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Next reporting deadline |
11/06/2017 |
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Registrable benefits received by the group |
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Benefits In Kind |
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Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Genetic Alliance UK |
Secretariat
From : 01/01/2016 To : 31/12/2016
|
4,501-6,000 |
01/01/2016 |
22/02/2016 |