Register Of All-Party Parliamentary Groups [as at 15 February 2017] Rare, Genetic and Undiagnosed Conditions

Title

All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions

Purpose

To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Ben Howlett

Conservative

Vice Chair

Mrs Cheryl Gillan

Conservative

Vice Chair

Lord Turnberg

Labour

Vice Chair

Baroness Neville-Jones

Conservative

Vice Chair

Lord Patel

Crossbench

 

Contact Details

Registered Contact:

Ben Howlett MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 8755. Email: ben.howlett.mp@parliament.uk.

 

Public Enquiry Point:

Rosie Collington, Genetic Alliance UK, Barclay House, 37 Queen Street, London WC1N 3BH. Tel: 020 7704 3141. Email: rosie.collington@geneticalliance.org.uk

 

Secretariat:

Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/appg

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

11/02/2016

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

11 Feb to 10 Feb

Next reporting deadline

11/06/2017

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Genetic Alliance UK

Secretariat

 

From : 01/01/2016

To : 31/12/2016

 

4,501-6,000

01/01/2016

22/02/2016