Register Of All-Party Parliamentary Groups [as at 29 March 2017] 22q11 Syndrome

Title

All-Party Parliamentary Group for 22q11 Syndrome

Purpose

To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for suffers.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Jack Lopresti

Conservative

Vice Chair

Andrea Jenkyns

Conservative

Vice Chair

Alistair Burt

Conservative

Officer

Ms Gisela Stuart

Labour

 

Contact Details

Registered Contact:

Jack Lopresti MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 7070. Email: jack.lopresti.mp@parliament.uk.

 

Public Enquiry Point:

Max Appeal, 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211. Email: julie@maxappeal.org.uk

 

Secretariat:

Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

24/10/2016

Did the group publish an income and expenditure statement relating to the AGM above?

Yes

Reporting year

23 Jun to 22 Jun

Next reporting deadline

23/10/2017

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Max Appeal

Secretariat

 

From : 23/06/2016

To : 22/06/2017

 

12,001-13,500

23/06/2016

24/10/2016