Register Of All-Party Parliamentary Groups [as at 2 May 2017] Rare, Genetic and Undiagnosed Conditions
Title |
All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions |
Purpose |
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
Category |
Subject Group |
Officers |
||
Role |
Name |
Party |
Chair & Registered Contact |
Ben Howlett |
Conservative |
Vice Chair |
Mrs Cheryl Gillan |
Conservative |
Vice Chair |
Baroness Neville-Jones |
Conservative |
Vice Chair |
Lord Turnberg |
Labour |
Vice Chair |
Lord Patel |
Crossbench |
Contact Details |
Registered Contact: Ben Howlett MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 8755. Email: ben.howlett.mp@parliament.uk.
Public Enquiry Point: Rosie Collington, Genetic Alliance UK, Barclay House, 37 Queen Street, London WC1N 3BH. Tel: 020 7704 3141. Email: rosie.collington@geneticalliance.org.uk
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/appg
|
Annual General Meeting |
|
Date of most recent AGM in this Parliament |
28/02/2017 |
Did the group publish an income and expenditure statement relating to the AGM above? |
No |
Reporting year |
11 Feb to 10 Feb |
Next reporting deadline |
11/06/2018 |
Registrable benefits received by the group |
Benefits In Kind |
||||
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
Genetic Alliance UK |
Secretariat
From : 01/01/2017 To : 31/12/2017
|
4,501-6,000 |
01/01/2017 |
07/04/2017 |