Register Of All-Party Parliamentary Groups [as at 8 November 2017] 22q11 Syndrome

Title

All-Party Parliamentary Group for 22q11 Syndrome

Purpose

To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

David Duguid

Conservative

Secretary

Heidi Allen

Conservative

Vice Chair

Melanie Onn

Labour

Vice Chair

Jack Lopresti

Conservative

Vice Chair

Angus Brendan MacNeil

Scottish National Party

 

Contact Details

Registered Contact:

David Duguid MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2819. Email: david.duguid.mp@parliament.uk.

 

Public Enquiry Point:

Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211. Email: julie@maxappeal.org.uk

 

Secretariat:

Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/

 

Group's Website:

http://maxappeal.org.uk/awareness/22q11_syndrome_appg

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

13/09/2017

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

13 Sep to 12 Sep

Next reporting deadline

13/01/2019

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Max Appeal

Secretariat

 

From : 13/09/2017

To : 12/09/2018

 

1,501-3,000

13/09/2017

13/09/2017