Register Of All-Party Parliamentary Groups [as at 29 August 2018] Rare, Genetic and Undiagnosed Conditions
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Title |
All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions |
|
Purpose |
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
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Category |
Subject Group |
|
Officers |
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|
Role |
Name |
Party |
|
Chair & Registered Contact |
Stephen Twigg |
Labour (Co-op) |
|
Co-Chair |
Vicky Ford |
Conservative |
|
Vice Chair |
Dame Cheryl Gillan |
Conservative |
|
Vice Chair |
Lord Turnberg |
Labour |
|
Vice Chair |
Baroness Neville-Jones |
Conservative |
|
Vice Chair |
Lord Patel |
Crossbench |
|
Officer |
Catherine West |
Labour |
|
Officer |
Alex Sobel |
Labour (Co-op) |
|
Officer |
Baroness Hollins |
Crossbench |
|
Officer |
Lord Rogan |
Ulster Unionist Party |
|
Officer |
Norman Lamb |
Liberal Democrat |
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Contact Details |
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Registered Contact: Stephen Twigg MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 7103. Email: stephen.twigg.mp@parliament.uk.
Public Enquiry Point: Farhana Ali, Genetic Alliance UK, Level 3, Barclay House, 37 Queen Street, London WC1N 3BH. Tel: 020 7831 0883. Email: farhana@geneticalliance.org.uk
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Group's Website: https://www.geneticalliance.org.uk/appg
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
11/10/2017 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
11 Oct to 10 Oct |
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Next reporting deadline |
11/02/2019 |
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Registrable benefits received by the group |
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Benefits In Kind |
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|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Genetic Alliance UK |
Secretariat
From : 11/10/2017 To : 10/10/2018
|
30,001-31,500 |
11/10/2017 |
31/10/2017 |