Register Of All-Party Parliamentary Groups [as at 29 August 2018] Sickle Cell and Thalassaemia
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Title |
All-Party Parliamentary Group on Sickle Cell and Thalassaemia |
|
Purpose |
To raise awareness of issues facing Sickle Cell and Thalassaemia patients in the UK. |
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Category |
Subject Group |
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Officers |
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Role |
Name |
Party |
|
Chair & Registered Contact |
Ms Diane Abbott |
Labour |
|
Officer |
Sir David Amess |
Conservative |
|
Officer |
Baroness Benjamin |
Liberal Democrat |
|
Officer |
Mr Pat McFadden |
Labour |
|
Officer |
Dawn Butler |
Labour |
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Contact Details |
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Registered Contact: Ms Diane Abbott MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 4426. Email: diane.abbott.office@parliament.uk.
Public Enquiry Point: Adam Lloyd. Email: adam.lloyd@sicklecellsociety.org
Secretariat: Sickle Cell Society and UK Thalassaemia Society jointly act as the group's secretariat. http://www.sicklecellsociety.org/ and http://www.ukts.org/
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
07/09/2017 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
07 Sep to 06 Sep |
|
Next reporting deadline |
07/01/2019 |
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Registrable benefits received by the group |
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Benefits In Kind |
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Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Sickle Cell Society |
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat
From : 07/09/2017 To : 06/09/2018
|
13,501-15,000 |
07/09/2017 |
05/04/2018 |
|
UK Thalassaemia Society |
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat
From : 07/09/2017 To : 06/09/2018
|
13,501-15,000 |
07/09/2017 |
05/04/2018 |