Register Of All-Party Parliamentary Groups [as at 21 November 2018] 22q11 Syndrome

Title

All-Party Parliamentary Group for 22q11 Syndrome

Purpose

To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

David Duguid

Conservative

Secretary

Heidi Allen

Conservative

Vice Chair

Melanie Onn

Labour

Vice Chair

Jack Lopresti

Conservative

 

Contact Details

Registered Contact:

David Duguid MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2819. Email: david.duguid.mp@parliament.uk.

 

Public Enquiry Point:

Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211. Email: julie@maxappeal.org.uk

 

Secretariat:

Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/

 

Group's Website:

http://maxappeal.org.uk/awareness/22q11_syndrome_appg

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

22/10/2018

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

13 Sep to 12 Sep

Next reporting deadline

13/01/2020

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Max Appeal

Secretariat

 

From : 13/09/2018

To : 12/09/2019

 

1,501-3,000

13/09/2018

26/10/2018