Register Of All-Party Parliamentary Groups [as at 21 November 2018] Phenylketonuria

Title

All-Party Parliamentary Group on Phenylketonuria

Purpose

To raise awareness of Phenylketonuria (PKU); to improve access to the drug 'Kuran', which is widely available in the majority of European countries.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Liz Twist

Labour

Vice Chair

Christina Rees

Labour (Co-op)

Vice Chair

Kwasi Kwarteng

Conservative

Vice Chair

Neil Gray

Scottish National Party

 

Contact Details

Registered Contact:

Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221. Email: liz.twist.mp@parliament.uk.

 

Public Enquiry Point:

Kate Learoyd, NSPKU, London N14 4ZF. Tel: 020 8366 3010. Email: learoyds@me.com

 

Group's Website:

https://liztwist.co.uk/category/appg-on-pku/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

08/03/2018

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

08 Mar to 07 Mar

Next reporting deadline

08/07/2019

 

Registrable benefits received by the group

None