Register Of All-Party Parliamentary Groups [as at 21 November 2018] Sickle Cell and Thalassaemia

Title

All-Party Parliamentary Group on Sickle Cell and Thalassaemia

Purpose

To raise awareness of issues facing Sickle Cell and Thalassaemia patients in the UK.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Ms Diane Abbott

Labour

Officer

Sir David Amess

Conservative

Officer

Baroness Benjamin

Liberal Democrat

Officer

Mr Pat McFadden

Labour

Officer

Dawn Butler

Labour

 

Contact Details

Registered Contact:

Ms Diane Abbott MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 4426. Email: diane.abbott.office@parliament.uk.

 

Public Enquiry Point:

Adam Lloyd. Email: adam.lloyd@sicklecellsociety.org

 

Secretariat:

Sickle Cell Society and UK Thalassaemia Society jointly act as the group's secretariat. http://www.sicklecellsociety.org/ and http://www.ukts.org/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

07/09/2017

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

07 Sep to 06 Sep

Next reporting deadline

07/01/2019

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Sickle Cell Society

Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat

 

From : 07/09/2017

To : 06/09/2018

 

13,501-15,000

07/09/2017

05/04/2018

UK Thalassaemia Society

UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat

 

From : 07/09/2017

To : 06/09/2018

 

13,501-15,000

07/09/2017

05/04/2018