Register Of All-Party Parliamentary Groups [as at 13 February 2019] 22q11 Syndrome
|
Title |
All-Party Parliamentary Group for 22q11 Syndrome |
|
Purpose |
To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers. |
|
Category |
Subject Group |
|
Officers |
||
|
Role |
Name |
Party |
|
Chair & Registered Contact |
David Duguid |
Conservative |
|
Secretary |
Heidi Allen |
Conservative |
|
Vice Chair |
Melanie Onn |
Labour |
|
Vice Chair |
Jack Lopresti |
Conservative |
|
Contact Details |
|
Registered Contact: David Duguid MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2819. Email: david.duguid.mp@parliament.uk.
Public Enquiry Point: Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211. Email: julie@maxappeal.org.uk
Secretariat: Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/
Group's Website: http://maxappeal.org.uk/awareness/22q11_syndrome_appg
|
|
Annual General Meeting |
|
|
Date of most recent AGM in this Parliament |
22/10/2018 |
|
Did the group publish an income and expenditure statement relating to the AGM above? |
No |
|
Reporting year |
13 Sep to 12 Sep |
|
Next reporting deadline |
13/01/2020 |
|
Registrable benefits received by the group |
|
Benefits In Kind |
||||
|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Max Appeal |
Secretariat
From : 13/09/2018 To : 12/09/2019
|
1,501-3,000 |
13/09/2018 |
26/10/2018 |