Register Of All-Party Parliamentary Groups [as at 13 February 2019] Genetic Haemochromatosis

Title

All-Party Parliamentary Group for Genetic Haemochromatosis (Iron Overload)

Purpose

To raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications. To drive policy change to improve the welfare of GH patients across the UK. To influence ministers, parliamentarians, government bodies and NHS representatives to improve patient pathways through the UK healthcare and support systems.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Mark Pawsey

Conservative

Vice Chair

Julie Elliott

Labour

Vice Chair

Dame Cheryl Gillan

Conservative

Vice Chair

Ben Lake

Plaid Cymru

Vice Chair

Lord Maude of Horsham

Conservative

Vice Chair

Alex Norris

Labour (Co-op)

 

Contact Details

Registered Contact:

Mark Pawsey MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 7136. Email: mark.pawsey.mp@parliament.uk.

 

Public Enquiry Point:

David Head, Haemochromatosis UK, PO Box 6356, Rugby CV21 9PA. Tel: 03030 401 101. Email: appg@haemochromatosis.org.uk

 

Secretariat:

Haemochromatosis UK acts as the group's secretariat. http://haemochromatosis.org.uk/

 

Group's Website:

http://appg.haemochromatosis.org.uk/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

16/01/2019

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

16 Jan to 15 Jan

Next reporting deadline

16/05/2020

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Haemochromatosis UK

Secretariat

 

From : 16/01/2019

To : 15/01/2020

 

3,001-4,500

16/01/2019

23/01/2019