Register Of All-Party Parliamentary Groups [as at 8 May 2019] Genetic Haemochromatosis
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Title |
All-Party Parliamentary Group for Genetic Haemochromatosis (Iron Overload) |
|
Purpose |
To raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications. To drive policy change to improve the welfare of GH patients across the UK. To influence ministers, parliamentarians, government bodies and NHS representatives to improve patient pathways through the UK healthcare and support systems. |
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Category |
Subject Group |
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Officers |
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Role |
Name |
Party |
|
Chair & Registered Contact |
Mark Pawsey |
Conservative |
|
Vice Chair |
Julie Elliott |
Labour |
|
Vice Chair |
Dame Cheryl Gillan |
Conservative |
|
Vice Chair |
Ben Lake |
Plaid Cymru |
|
Vice Chair |
Lord Maude of Horsham |
Conservative |
|
Vice Chair |
Alex Norris |
Labour (Co-op) |
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Contact Details |
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Registered Contact: Mark Pawsey MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 7136. Email: mark.pawsey.mp@parliament.uk.
Public Enquiry Point: David Head, Haemochromatosis UK, PO Box 6356, Rugby CV21 9PA. Tel: 03030 401 101. Email: appg@haemochromatosis.org.uk
Secretariat: Haemochromatosis UK acts as the group's secretariat. http://haemochromatosis.org.uk/
Group's Website: http://appg.haemochromatosis.org.uk/
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
16/01/2019 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
16 Jan to 15 Jan |
|
Next reporting deadline |
16/05/2020 |
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Registrable benefits received by the group |
|
Benefits In Kind |
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|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Haemochromatosis UK |
Secretariat
From : 16/01/2019 To : 15/01/2020
|
3,001-4,500 |
16/01/2019 |
23/01/2019 |