Register Of All-Party Parliamentary Groups [as at 19 June 2019] Phenylketonuria
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Title |
All-Party Parliamentary Group on Phenylketonuria |
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Purpose |
To raise awareness of Phenylketonuria (PKU); to improve access to the drug 'Kuran', which is widely available in the majority of European countries. |
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Category |
Subject Group |
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Officers |
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Role |
Name |
Party |
|
Chair & Registered Contact |
Liz Twist |
Labour |
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Vice Chair |
Paul Masterton |
Conservative |
|
Vice Chair |
Christina Rees |
Labour (Co-op) |
|
Vice Chair |
Nick Thomas-Symonds |
Labour |
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Vice Chair |
Neil Gray |
Scottish National Party |
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Contact Details |
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Registered Contact: Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221. Email: liz.twist.mp@parliament.uk.
Public Enquiry Point: Kate Learoyd, The National Society for Phenylketonuria . Tel: 020 8366 3010. Email: learoyds@me.com
Group's Website: https://liztwist.co.uk/category/appg-on-pku/
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
24/04/2019 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
08 Mar to 07 Mar |
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Next reporting deadline |
08/07/2020 |
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Registrable benefits received by the group |
|
None |