Register Of All-Party Parliamentary Groups [as at 19 June 2019] Rare, Genetic and Undiagnosed Conditions
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Title |
All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions |
|
Purpose |
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
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Category |
Subject Group |
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Officers |
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|
Role |
Name |
Party |
|
Chair & Registered Contact |
Catherine West |
Labour |
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Vice Chair |
Dame Cheryl Gillan |
Conservative |
|
Vice Chair |
Lord Turnberg |
Labour |
|
Vice Chair |
Baroness Neville-Jones |
Conservative |
|
Vice Chair |
Lord Patel |
Crossbench |
|
Officer |
Alex Sobel |
Labour (Co-op) |
|
Officer |
Norman Lamb |
Liberal Democrat |
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Contact Details |
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Registered Contact: Catherine West MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 6141. Email: catherine.west.mp@parliament.uk.
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Group's Website: https://www.geneticalliance.org.uk/appg
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
27/02/2019 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
Yes |
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Reporting year |
11 Oct to 10 Oct |
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Next reporting deadline |
11/02/2020 |
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Registrable benefits received by the group |
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Benefits In Kind |
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Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Genetic Alliance UK |
Secretariat
From : 11/10/2018 To : 10/10/2019
|
22,501-24,000 |
11/10/2018 |
25/03/2019 |