Register Of All-Party Parliamentary Groups [as at 23 October 2019] Phenylketonuria
Title |
All-Party Parliamentary Group on Phenylketonuria |
Purpose |
To raise awareness of Phenylketonuria (PKU); to improve access to the drug 'Kuran', which is widely available in the majority of European countries. |
Category |
Subject Group |
Officers |
||
Role |
Name |
Party |
Chair & Registered Contact |
Liz Twist |
Labour |
Vice Chair |
Paul Masterton |
Conservative |
Vice Chair |
Christina Rees |
Labour (Co-op) |
Vice Chair |
Nick Thomas-Symonds |
Labour |
Vice Chair |
Neil Gray |
Scottish National Party |
Contact Details |
Registered Contact: Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221. Email: liz.twist.mp@parliament.uk.
Public Enquiry Point: Kate Learoyd, The National Society for Phenylketonuria . Tel: 020 8366 3010. Email: learoyds@me.com
Group's Website: https://liztwist.co.uk/category/appg-on-pku/
|
Annual General Meeting |
|
Date of most recent AGM in this Parliament |
24/04/2019 |
Did the group publish an income and expenditure statement relating to the AGM above? |
No |
Reporting year |
08 Mar to 07 Mar |
Next reporting deadline |
08/07/2020 |
Registrable benefits received by the group |
None |