Register Of All-Party Parliamentary Groups [as at 5 November 2019] Phenylketonuria

Title

All-Party Parliamentary Group on Phenylketonuria

Purpose

To raise awareness of Phenylketonuria (PKU); to improve access to the drug 'Kuran', which is widely available in the majority of European countries.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Liz Twist

Labour

Vice Chair

Paul Masterton

Conservative

Vice Chair

Christina Rees

Labour (Co-op)

Vice Chair

Nick Thomas-Symonds

Labour

Vice Chair

Neil Gray

Scottish National Party

 

Contact Details

Registered Contact:

Liz Twist MP, Email: No email supplied.

 

Public Enquiry Point:

Kate Learoyd, The National Society for Phenylketonuria . Tel: 020 8366 3010. Email: learoyds@me.com

 

Group's Website:

https://liztwist.co.uk/category/appg-on-pku/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

24/04/2019

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

08 Mar to 07 Mar

Next reporting deadline

08/07/2020

 

Registrable benefits received by the group

None