Register Of All-Party Parliamentary Groups [as at 5 November 2019] Rare, Genetic and Undiagnosed Conditions

Title

All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions

Purpose

To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Catherine West

Labour

Vice Chair

Dame Cheryl Gillan

Conservative

Vice Chair

Lord Turnberg

Non-affiliated

Vice Chair

Baroness Neville-Jones

Conservative

Vice Chair

Lord Patel

Crossbench

Officer

Alex Sobel

Labour (Co-op)

Officer

Norman Lamb

Liberal Democrat

 

Contact Details

Registered Contact:

Catherine West MP, Email: No email supplied.

 

Secretariat:

Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/

 

Group's Website:

https://www.geneticalliance.org.uk/appg

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

27/02/2019

Did the group publish an income and expenditure statement relating to the AGM above?

Yes

Reporting year

11 Oct to 10 Oct

Next reporting deadline

11/02/2020

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Genetic Alliance UK

Secretariat

 

From : 11/10/2018

To : 10/10/2019

 

22,501-24,000

11/10/2018

25/03/2019