Register Of All-Party Parliamentary Groups [as at 27 January 2021] Sickle Cell and Thalassaemia

Title

Sickle Cell and Thalassaemia All-Party Parliamentary Group

Purpose

To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Pat McFadden

Labour

Vice Chair

Janet Daby

Labour

Officer

Dawn Butler

Labour

Officer

Florence Eshalomi

Labour (Co-op)

Officer

Kate Osamor

Labour (Co-op)

Officer

Bell Ribeiro-Addy

Labour

Officer

Jess Phillips

Labour

Officer

Baroness Benjamin

Liberal Democrat

Officer

Sir David Amess

Conservative

Officer

Mrs Helen Grant

Conservative

 

Contact Details

Registered Contact:

Pat McFadden MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 4036.

Email: mcfaddenp@parliament.uk

 

Public Enquiry Point:

Adam Lloyd, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795

Email: adam.lloyd@sicklecellsociety.org

 

Secretariat:

Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/

 

Group's Website:

https://www.sicklecellsociety.org/sctappg/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

26/02/2020

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

26 Feb to 25 Feb

Next reporting deadline

26/06/2021

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Sickle Cell Society

Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat

 

From : 26/02/2020

To : 25/02/2021

 

24,001-25,500

26/02/2020

19/03/2020