Register Of All-Party Parliamentary Groups [as at 2 June 2021] 22q11 Syndrome

Title

All-Party Parliamentary Groupon on 22q11 Syndrome

Purpose

To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Suzanne Webb

Conservative

Vice Chair

Jack Lopresti

Conservative

Officer

Lord Farmer

Conservative

Officer

Dr Lisa Cameron

Scottish National Party

Officer

Mr Robert Goodwill

Conservative

Officer

Craig Tracey

Conservative

Officer

Baroness Eaton

Conservative

Officer

Jack Dromey

Labour

Officer

Alex Sobel

Labour (Co-op)

 

Contact Details

Registered Contact:

Suzanne Webb MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3000.

Email: suzanne.webb.mp@parliament.uk

 

Public Enquiry Point:

Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211

Email: julie@maxappeal.org.uk

 

Secretariat:

Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/

 

Group's Website:

http://maxappeal.org.uk/awareness/appg_-_all_party_parliamentary_group

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

20/05/2021

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

15 Jan to 14 Jan

Next reporting deadline

15/05/2022

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Max Appeal

Secretariat

 

From : 15/01/2021

To : 14/01/2022

 

1,501-3,000

15/01/2021

21/05/2021