Register Of All-Party Parliamentary Groups [as at 29 December 2021] Sickle Cell and Thalassaemia
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Title |
Sickle Cell and Thalassaemia All-Party Parliamentary Group |
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Purpose |
To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders. |
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Category |
Subject Group |
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Officers |
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Role |
Name |
Party |
|
Chair & Registered Contact |
Pat McFadden |
Labour |
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Vice Chair |
Janet Daby |
Labour |
|
Officer |
Florence Eshalomi |
Labour (Co-op) |
|
Officer |
Bell Ribeiro-Addy |
Labour |
|
Officer |
Baroness Benjamin |
Liberal Democrat |
|
Officer |
Jess Phillips |
Labour |
|
Officer |
Greg Clark |
Conservative |
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Contact Details |
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Registered Contact: Pat McFadden MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 4036. Email: mcfaddenp@parliament.uk
Public Enquiry Point: Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795 Email: seyi.afolabi@sicklecellsociety.org
Secretariat: Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/
Group's Website: https://www.sicklecellsociety.org/sctappg/
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Annual General Meeting |
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Date of most recent AGM in this Parliament |
09/06/2021 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
Yes |
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Reporting year |
26 Feb to 25 Feb |
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Next reporting deadline |
26/06/2022 |
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Registrable benefits received by the group |
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Benefits In Kind |
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Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Sickle Cell Society |
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat
From : 26/02/2021 To : 25/02/2022
|
33,001-34,500 |
26/02/2021 |
29/06/2021 |