Register Of All-Party Parliamentary Groups [as at 4 May 2022] Sickle Cell and Thalassaemia
Title |
Sickle Cell and Thalassaemia All-Party Parliamentary Group |
Purpose |
To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders. |
Category |
Subject Group |
Officers |
||
Role |
Name |
Party |
Chair & Registered Contact |
Pat McFadden |
Labour |
Vice Chair |
Janet Daby |
Labour |
Officer |
Florence Eshalomi |
Labour (Co-op) |
Officer |
Bell Ribeiro-Addy |
Labour |
Officer |
Baroness Benjamin |
Liberal Democrat |
Officer |
Jess Phillips |
Labour |
Officer |
Greg Clark |
Conservative |
Contact Details |
Registered Contact: Pat McFadden MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 4036. Email: mcfaddenp@parliament.uk
Public Enquiry Point: Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795 Email: seyi.afolabi@sicklecellsociety.org
Secretariat: Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/
Group's Website: https://www.sicklecellsociety.org/sctappg/
|
Annual General Meeting |
|
Date of most recent AGM in this Parliament |
09/06/2021 |
Did the group publish an income and expenditure statement relating to the AGM above? |
Yes |
Reporting year |
26 Feb to 25 Feb |
Next reporting deadline |
26/06/2022 |
Registrable benefits received by the group |
Benefits In Kind |
||||
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
Sickle Cell Society |
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat
From : 26/02/2021 To : 25/02/2022
|
33,001-34,500 |
26/02/2021 |
29/06/2021 |