Register Of All-Party Parliamentary Groups [as at 4 May 2022] Usher Syndrome

Title

All-Party Parliamentary Group for Usher Syndrome

Purpose

To raise issues relating to the challenges faced by those living with Usher Syndrome and their families and for connected purposes.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Alex Norris

Labour (Co-op)

Vice Chair

Mrs Sharon Hodgson

Labour

Vice Chair

Liz Twist

Labour

Vice Chair

Ms Marie Rimmer

Labour

Vice Chair

Ben Bradley

Conservative

 

Contact Details

Registered Contact:

Alex Norris MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3899.

Email: alex.norris.mp@parliament.uk

 

Public Enquiry Point:

Sylvia Wilson, CUREUsher, Dalmar House, Barras Lane Estate, Carlisle CA5 7NY

Email: contact@cureusher.org

 

Secretariat:

CUREUsher acts as the group's secretariat. https://www.cureusher.org/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

03/11/2021

Did the group publish an income and expenditure statement relating to the AGM above?

No

Reporting year

03 Nov to 02 Nov

Next reporting deadline

03/03/2023

 

Registrable benefits received by the group

None