Register Of All-Party Parliamentary Groups [as at 19 October 2022] Rare, Genetic and Undiagnosed Conditions
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Title |
All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions |
|
Purpose |
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
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Category |
Subject Group |
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Officers |
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|
Role |
Name |
Party |
|
Chair & Registered Contact |
Liz Twist |
Labour |
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Vice Chair |
Baroness Neville-Jones |
Conservative |
|
Vice Chair |
Lord Turnberg |
Labour |
|
Vice Chair |
Lord Patel |
Crossbench |
|
Vice Chair |
Alex Sobel |
Labour (Co-op) |
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Contact Details |
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Registered Contact: Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221. Email: liz.twist.mp@parliament.uk
Public Enquiry Point: Farhana Ali, Genetic Alliance UK. Tel: 0300 124 0441 Email: appg@geneticalliance.org.uk
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Group's Website: https://www.geneticalliance.org.uk/appg
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
07/12/2021 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
04 Nov to 03 Nov |
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Next reporting deadline |
04/03/2023 |
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Registrable benefits received by the group |
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Benefits In Kind |
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Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Genetic Alliance UK |
Secretariat
From : 04/11/2021 To : 03/11/2022
|
30,001-31,500 |
04/11/2021 |
17/12/2021 |