Register Of All-Party Parliamentary Groups [as at 28 June 2023] Sickle Cell and Thalassaemia

Title

Sickle Cell and Thalassaemia All-Party Parliamentary Group

Purpose

To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.

Category

Subject Group

 

Officers

Role

Name

Party

Chair & Registered Contact

Janet Daby

Labour

Vice Chair

Bell Ribeiro-Addy

Labour

Officer

Marsha De Cordova

Labour

Officer

Greg Clark

Conservative

Officer

Pat McFadden

Labour

Officer

Dawn Butler

Labour

Officer

Florence Eshalomi

Labour (Co-op)

Officer

Baroness Thornton

Labour

 

Contact Details

Registered Contact:

Janet Daby MP, House of Commons, London, SW1A 0AA.

Email: janet.daby.mp@parliament.uk

 

Public Enquiry Point:

Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795

Email: seyi.afolabi@sicklecellsociety.org

 

Secretariat:

Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/

 

Group's Website:

https://www.sicklecellsociety.org/sctappg/

 

 

Annual General Meeting

Date of most recent AGM in this Parliament

12/06/2023

Did the group publish an income and expenditure statement relating to the AGM above?

Yes

Reporting year

26 Feb to 25 Feb

Next reporting deadline

26/06/2024

 

Registrable benefits received by the group

 

Benefits In Kind

Source

Description

Value £s

In bands of £1,500

Received

Registered

Sickle Cell Society

Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat

 

From : 26/02/2023

To : 25/02/2024

 

27,001-28,500

26/02/2023

22/06/2023