Register Of All-Party Parliamentary Groups [as at 8 April 2024] 22q11 Syndrome
|
Title |
All-Party Parliamentary Group on 22q11 Syndrome |
|
Purpose |
To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers. |
|
Category |
Subject Group |
|
Officers |
||
|
Role |
Name |
Party |
|
Chair & Registered Contact |
David Duguid |
Conservative |
|
Officer |
Alex Sobel |
Labour (Co-op) |
|
Officer |
Lord Farmer |
Conservative |
|
Officer |
Baroness Eaton |
Conservative |
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Contact Details |
|
Registered Contact: David Duguid MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2819. Email: david.duguid.mp@parliament.uk
Public Enquiry Point: Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211 Email: julie@maxappeal.org.uk
Secretariat: Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/
Group's Website: http://maxappeal.org.uk/awareness/appg_-_all_party_parliamentary_group
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|
Annual General Meeting |
|
|
Date of most recent AGM in this Parliament |
09/05/2023 |
|
Did the group publish an income and expenditure statement relating to the AGM above? |
No |
|
Reporting year |
15 Jan to 14 Jan |
|
Next reporting deadline |
15/05/2024 |
|
Registrable benefits received by the group |
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|
Financial Benefits |
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|
Source |
Value £s |
Received |
Registered |
|
Natera |
11,858 |
09/01/2024 |
22/01/2024 |
|
Benefits In Kind |
||||
|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Max Appeal |
Secretariat
From : 15/01/2022 To : 14/01/2023
|
1,501-3,000 |
15/01/2022 |
25/05/2022 |