Register Of All-Party Parliamentary Groups [as at 13 May 2024] Rare, Genetic and Undiagnosed Conditions
|
Title |
All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions |
|
Purpose |
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
|
Category |
Subject Group |
|
Officers |
||
|
Role |
Name |
Party |
|
Chair & Registered Contact |
Liz Twist |
Labour |
|
Vice Chair |
Baroness Neville-Jones |
Conservative |
|
Officer |
Catherine West |
Labour |
|
Officer |
Marion Fellows |
Scottish National Party |
|
Contact Details |
|
Registered Contact: Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221. Email: liz.twist.mp@parliament.uk
Public Enquiry Point: Rachel McEleny, Genetic Alliance UK. Tel: 0300 124 0441 Email: appg@geneticalliance.org.uk
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Group's Website: https://geneticalliance.org.uk/westminster-appg
|
|
Annual General Meeting |
|
|
Date of most recent AGM in this Parliament |
17/04/2024 |
|
Did the group publish an income and expenditure statement relating to the AGM above? |
Yes |
|
Reporting year |
04 Nov to 03 Nov |
|
Next reporting deadline |
04/03/2025 |
|
Registrable benefits received by the group |
|
Benefits In Kind |
||||
|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Genetic Alliance UK |
Secretariat
From : 04/11/2023 To : 03/11/2024
|
9,001-10,500 |
04/11/2023 |
22/04/2024 |