Register Of All-Party Parliamentary Groups [as at 13 May 2024] Sickle Cell and Thalassaemia
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Title |
Sickle Cell and Thalassaemia All-Party Parliamentary Group |
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Purpose |
To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders. |
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Category |
Subject Group |
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Officers |
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Role |
Name |
Party |
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Chair & Registered Contact |
Janet Daby |
Labour |
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Officer |
Bell Ribeiro-Addy |
Labour |
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Officer |
Greg Clark |
Conservative |
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Officer |
Dawn Butler |
Labour |
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Contact Details |
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Registered Contact: Janet Daby MP, House of Commons, London, SW1A 0AA. Email: janet.daby.mp@parliament.uk
Public Enquiry Point: Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795 Email: seyi.afolabi@sicklecellsociety.org
Secretariat: Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/
Group's Website: https://www.sicklecellsociety.org/sctappg/
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Annual General Meeting |
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Date of most recent AGM in this Parliament |
12/06/2023 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
Yes |
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Reporting year |
26 Feb to 25 Feb |
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Next reporting deadline |
26/06/2024 |
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Registrable benefits received by the group |
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Benefits In Kind |
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Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
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Sickle Cell Society |
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat
From : 26/02/2023 To : 25/02/2024
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27,001-28,500 |
26/02/2023 |
22/06/2023 |
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NHS England (London) |
Event
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1,501-3,000 |
03/07/2023 |
26/07/2023 |