Register Of All-Party Parliamentary Groups [as at 28 March 2025] Genetic, Rare and Undiagnosed Conditions
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Title |
All-Party Parliamentary Group on Genetic, Rare and Undiagnosed Conditions |
|
Purpose |
To increase awareness in parliament of genetic, rare and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support. |
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Category |
Subject Group |
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Officers |
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|
Role |
Name |
Party |
|
Chair & Registered Contact |
Peter Dowd |
Labour |
|
Vice Chair |
Baroness Neville-Jones |
Conservative |
|
Officer |
Alison Hume |
Labour |
|
Officer |
Lord Turnberg |
Labour |
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Contact Details |
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Registered Contact: Peter Dowd MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 8671. Email: peter.dowd.mp@parliament.uk
Public Enquiry Point: Rachel McEleny, Genetic Alliance UK. Tel: 0300 124 0441 Email: appg@geneticalliance.org.uk
Secretariat: Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Group's Website: https://geneticalliance.org.uk/westminster-appg
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
17/12/2024 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
17 Dec to 16 Dec |
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Next reporting deadline |
17/04/2026 |
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Registrable benefits received by the group |
|
Benefits In Kind |
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|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Genetic Alliance UK |
Secretariat
From : 17/12/2024 To : 16/12/2025
|
7,501-9,000 |
17/12/2024 |
10/01/2025 |