Register Of All-Party Parliamentary Groups [as at 18 June 2025] Genetic Haemochromatosis
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Title |
All-Party Parliamentary Group on Genetic Haemochromatosis |
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Purpose |
The groups' mission is to (a) raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications; (b) drive policy change to improve the welfare of GH patients across the UK; (c) influence ministers, parliamentarians, government bodies, policy-makers and NHS representatives to improve patient pathways through the UK healthcare and support systems. |
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Category |
Subject Group |
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Officers |
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|
Role |
Name |
Party |
|
Chair & Registered Contact |
Sir John Hayes |
Conservative |
|
Vice Chair |
James Wild |
Conservative |
|
Officer |
Torcuil Crichton |
Labour |
|
Officer |
Baroness Evans of Bowes Park |
Conservative |
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Contact Details |
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Registered Contact: Sir John Hayes MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 1389. Email: hayesj@parliament.uk
Public Enquiry Point: Neil McClements, Haemochromatosis UK. Tel: 03030 401 101 Email: appg.secretariat@huk.org.uk
Secretariat: Haemochromatosis UK acts as the group's secretariat. https://www.haemochromatosis.org.uk
Group's Website: https://www.haemochromatosis.org.uk/appg
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Annual General Meeting |
|
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Date of most recent AGM in this Parliament |
11/02/2025 |
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Did the group publish an income and expenditure statement relating to the AGM above? |
No |
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Reporting year |
11 Feb to 10 Feb |
|
Next reporting deadline |
11/06/2026 |
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Registrable benefits received by the group |
|
Benefits In Kind |
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|
Source |
Description |
Value £s In bands of £1,500 |
Received |
Registered |
|
Haemochromatosis UK |
Secretariat
From : 11/02/2025 To : 10/02/2026
|
3,001-4,500 |
11/02/2025 |
14/02/2025 |