Select Committee on Health Minutes of Evidence


Memorandum by Macmillan Cancer Relief

RELATIONSHIP BETWEEN HEALTH & SOCIAL SERVICES (HSS 68)

5.  THE CURRENT SITUATION: MACMILLAN'S RESPONSE

  The steady erosion of the role of the hospital social worker has increased the gap between health and social service responses to patient needs. As has already been outlined, the specific nature of the disease means that cancer patients require a fully integrated care package. Indeed, research suggest that survival and recovery rates are significantly enhanced when treatment is delivered through a multi-disciplinary team and encompasses after-care and support. Macmillan nurses are now carrying out many of the duties previously carried out by community social workers and Macmillan has even developed specialist social work posts in some areas.

  By way of example of the problems caused by the current low level of integration of health and social services, Macmillan wishes to draw the Committee's attention to its Carers Scheme.

  Macmillan Cancer Relief has been piloting nine Carers Schemes—a new form of home support for people with cancer and their carers. The need for such a service had been identified through a MORI survey commissioned by Macmillan into the social impact of care. "Macmillan Carers" are specially trained health care assistants who support patients, their families and friends. They provide practical care necessary, throughout all stages of the disease from diagnosis onwards, to enable people with cancer to remain at home. They also support carers in order to avoid unnecessary and unwanted admission to hospital.

  The Macmillan Carers Scheme offers both practical and emotional support and carers' work includes personal and basic nursing care as well as various household tasks. The scheme unequivocally crosses the artificial boundaries between "health" and "social" care and "practical" and "emotional" support.

  These pilot schemes have been shown to tap into an unmet need, and one not adequately provided for within the current system in 80 per cent of cases. Indeed, research has found that 20 per cent of patients would have had to go into hospital without the help of Macmillan Carers[2]. However, it has been evident that every scheme has found the issue of boundaries between health care and social services both fundamental and problematic; as one care provider put it, "are we providing a health bath or a social bath?". Our experience has shown that in a number of the pilots, the two agencies failed to resolve the issue of financial responsibility.


2   Key Findings, Clark Evaluation of Macmillan Carers Scheme. Back


 
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Prepared 10 August 1998