Memorandum submitted by Professor Malcolm
Hooper, Scientific Advisor to the Gulf Veterans' Association
ACTIONNOW AND IN THE FUTURE
IMMEDIATE ACTIONS
1. An International Conference
This would allow a full examination of all the
science completed and planned. It would enable UK scientists to
meet with those from the USA and elsewhere and debate all the
issues.
I have already suggested such a Conference to
the Gulf Support Group but so far no decision has been made.
2. A Public Enquiry
This would
(a) Allow a full examination of all the facts
which are now available.
(b) Give the GWVs and their organisations
a hearing.
(c) Require information that is hidden to
emerge.
(d) Provide a sound basis for a new relationship
between the MOD, Government and the GWVs.
Such an Enquiry has been requested by the Royal
British Legion and the Gulf Support Group as well as GWVs and
their organisations.
It has been refused. "There are not sufficient
grounds for an Enquiry".
What is provided here makes it clear that such
grounds do exist and have been ignored, belittled, misunderstood,
and misrepresented by the Government and MOD.
3. Immediate programmes of research must be
commenced where the present evidence is strong
(a) Measurement of DU in GWVs and in important
organs from autopsies.
(b) An investigation of the immunological
status of Sick Veterans.
(e) Use of new diagnostic procedures.
(f) Others identified from the International
Conference of scientists.
4. The MOD must become pro-active in assessing
and exploring new information that has been produced in the diagnosis
and treatment of GWI/S
MOD, INDEPENDENT PANEL, MAP, AND RESEARCH
PROGRAMMES
MOD CONFERENCE 10
DECEMBER 1998
This meeting was organised by Colonel John Graham
of the Ministry of Defence, who is presently in Washington as
the link person between the MoD, the Department of Defence, DOD,
Veterans, Administration, VA, and other USA Government Agencies.
It was the first open meeting on Gulf Health
organised in the UK. As far as I was able to judge those attending
were drawn mainly from the Military Medical Establishments in
the States and the UK. Other interested people were there including
some Gulf Veterans and members of the Press and Media.
No speakers known to question and criticise
the current views espoused by the MOD, DOD, VA were invited/agreed
to participate in the Conference.
These include,
USA Senators and Members of the House
of Representatives who have convened Committees whose reports
have been extremely critical and sometimes damning of the role
of the DOD and VA; Shays, Reigle, and Burton Reports.
Scientists who have produced many
peer reviewed papers on Gulf War Illness(es), GWI, and proposed
very different understandings of it; Robert Haley, Garth Nicholson,
Katherine Murray Leisure, Howard Urnovitz, Bill Baumzweiger, Bill
Rea, Jim Tuite and others from the USA, and Goran Jamal, 1998;
Christine Gosden, 1999; Shattock, Waring, and others from the
UK.
The Conference was therefore very
unbalanced in addressing all the issues of Gulf Health. The more
so because the only UK presentations, the King's Study (Simon
Wessley funded by the DOD), The Manchester Study (Nicola Cherry
and Gary McFarlane, funded by the MRC) and Reproductive Outcomes
Study (Patricia Doyle and Noreen Maconochie, funded by the MRC)
had no results for public presentation.
Dr Bernadette Guldager from Denmark
was the exception. She presented data on 700 Danish Gulf Veterans.
This recent data was the only new information derived from the
meeting.
The Conference was largely a sham and in line
with the behaviour of MOD towards GWS/I.
THE INDEPENDENT
PANEL
This was convened in December 1997 and has met
four times. It is solely concerned with providing independent
assessments of MOD funded research programmes concerned with the
possible interactions between vaccines and NAPS (pyridostigmine
bromide).
All its work is involved with animal studies,
mice, guinea pigs and marmosets.
The guinea pig work has now been abandoned and
the mouse work still remains to be done and the marmoset work
will not be completed until 2003.
Any work addressing
(a) The health of the current GWVs;
has been ruled outside the terms of reference of
the Panel.
The panel provide an alibi for taking no effective
action to help current GWVs. It is part of the official unwillingness
to face the unpalatable truths of the Gulf War and to offer a
proper justice to the GWVs. It is a smokescreen and cover-up!
MAP (Medical Assessment Programme)
This was established in October 1993.
A paper was published in the BMJ (Coker
et al., 1999) on the first 1,000 cases. It is, by its own
admission, deeply flawed.
(a) The programme was not designed as a research
tool;
(b) Clinical diagnoses were made by 17 different
consultants;
(c) Two different disease classifications
were used, both differed from that used in the USA thereby making
comparisons at best approximate;
(d) No denominator or comparison data was
available;
(e) Psychiatric assessment was abandoned
half way through the programme in 1995 after only 255/1,000 had
seen a psychiatrist;
(f) Follow-up was inadequate in one in five
psychiatric cases;
(g) "Nor do we have all the results
of psychiatric assessments that we advised should take place."
There has been two changes of leadership and,
as yet, no clinical audit.
The following are notes made at a MAP presentation
to the Independent Panel by Professor Harry Lee on 29 March 1999.
It was emphasised that
(1) "GWVs came to MAP very worried and
needed mainly reassurance in the face of their worries. When this
was provided, by listening, the GWVs went away much happier."
Only about half had any illness, which was described as PTSD.
[In conversation, "paranoia was the most outstanding symptom"];
(2) MAP is not there to treat Gulf illness;
(3) Depleted uranium ammunition was described
as "not dangerous". This is only part of the truth;
(4) History taking followed by examination
and any investigations thought necessary on medical grounds revealed
"nothing unusual";
(5) The spraying of organophosphate and other
insecticides was stated to have been carried out with meticulous
attention to the health and safety regulations and was not excessive;
(6) Vaccines were said to have been given
according to the proper protocols and the regimen was not compressed;
(7) Oil fires were said to pose no pollutant
problems;
(8) Any illness arising more than two years
after the Gulf War was not attributable to service in the Gulf;
(9) He selectively used the report by Unwin
et al in The Lancet to suggest that GWVs were no
more ill than other war veterans. The other conclusions, which
stated that GWVs reported two to three times more illness and
that such reports were vaccine associated, were not addressed;
(10) There is no sensible rationale for treatment.
No consideration was given to possible treatments other than doxycycline
study;
(11) The War Pensions Agency was described
as generous in its treatment of GWVs;
(12) Small groups of disaffected activists
who agitate and seek publicity driven research programmes were
presented as unredeemable trouble makers!
Subsequently one GWV was completely misled about
DU testing see section on DU above.
This is the evidence on which the GWVs lost
faith in MAP.
MOD RESEARCH
PROGRAMMES
1. The Wessley Study
This study commenced in 1997 and the paper was
published in January 1999 (Unwin et al, 1999). It was funded
by the DOD!
It was a questionnaire study in which no veterans
were seen by a clinician.
2. The Manchester Study
This is led by Professor Nicola Cherry and funded
by the MoD through the MRC. It involves yet another questionnaire,
survey of mortality rates. It has not yet reported.
3. The London Study
This is led by Dr Patricia Doyle of the London
School of Hygiene and Tropical Medicine and funded like the Manchester
study. It is yet another questionnaire study which, very ambitiously,
seeks to contact all GWVs in order to evaluate important questions
about reproduction and birth defects.
4. Neurological Studies
These are an extension of the Wessley study
and the first clinical assessment of GWVs. The study has just
started almost 10 years after the end of the war.
We already have extensive studies from the USA,
Fukuda, 1997, Iowa study, 1997 which answer the question of incidence
of symptoms and mortality, Kang, 1996. All are increased in GWVs.
Haley, 1997, 1999, has carried out a number
of neurological investigations. In this country Goran Jamal has
reported important findings which have been ignored, Jamal 1998.
It is not unfair to conclude that the UK is
running round the same track as the Americans but several laps
behind. We appear to have learned nothing from their studies.
CONCLUSIONS
(1) MAP lost the trust of the GWVs by its
uncaring and arrogant attidude. Some veterans have been misled
by promises made which were not fulfilled.
(2) The MoD Panel is an alibi for inaction.
(3) Nothing has been learned from the extensive
American studies and investigations.
(4) There appears to have been a deliberate
conspiracy to avoid any open debate in the scientific community
and the MOD about the issues of GWS/I.
(5) The UK research studies started very
late, and only involved questionnaires or a literature review.
Another alibi for inaction.
(6) Some important research in the UK has
not been followed up.
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Wickelgr I. The big easy serve up a feast for
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Worthington-Russell Information supplied by
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to Dr Zajic for most of the pictures and the cartoon used in this
lecture.
December 1999
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