Memorandum by MIND
PROVISION OF NHS MENTAL HEALTH SERVICES (MH
31)
INTRODUCTION
1. Mind is the leading mental health charity
in England and Wales. We work for a better life for everyone with
experience of mental distress by:
Advancing the views, needs and ambitions
of people with experience of mental distress;
Promoting inclusion through challenging
discrimination;
Influencing policy through campaigning
and education;
Inspiring the development of quality
services, which reflect expressed need and diversity;
Achieving equal civil and legal rights
through campaigning and education.
2. The Inquiry's terms of reference are
very wide-ranging. We have therefore chosen in this evidence to
concentrate on the first three listed issues only and, in each
case, to focus on what we see as particular concerns in that area
in the context of the Government's mental health strategy and,
in particular, the current consultation paper on review of the
Mental Health Act 1983. Thus:
(a) Our evidence in relation to definition
deals with the issue of what should be the statutory criteria
in any new Mental Health Act used to justify compulsory detention
and/or treatment of those who have been given a diagnosis of some
form of mental disorder and in particular whether or not the capacity
of the detained person to take treatment decisions should be a
relevant consideration;
(b) Our evidence on care in the community
highlights the success of community interventions for those with
severe and enduring mental health problems even at times of crisis.
It stresses the need for a statutory right to an assessment of
mental health needs as recommended by the expert committee appointed
by the Government to advise them on reform of mental health law
(the Richardson committee) and for a range of care, treatment
and support to be available to meet these needs. It sets out Mind's
concerns about the extension of compulsory powers proposed by
the Government;
(c) Our evidence on the transition between
the acute and secure mental health sectors highlights the over-representation
at high security of black and minority ethnic patients; the inappropriate
placement of many women in high secure settings and the continuing
serious delays in transferring patients to lower levels of security.
DEFINITIONS
3. As indicated above, in this part of our
evidence we concentrate on one specific aspect only, namely what
should be the statutory criteria in any new Mental Health Act
used to justify compulsory detention and/or treatment of those
who have been given a diagnosis of some form of mental disorder.
4. Under the Mental Health Act 1983 a person
can be compulsorily detained in hospital if:
(a) they are suffering from mental disorder
of a nature or degree which either warrants their detention in
hospital for assessment or makes it appropriate for them to receive
medical treatment in a hospital; and
(b) detention is necessary for the person's
own health or own safety or for the protection of others; and
(c) (where a person is being detained on
grounds of having psychopathic disorder or mental impairment)
the treatment proposed is likely to alleviate or prevent a deterioration
of his condition.
5. In their current Green Paper the Government
put forward the following criteria for use of compulsory powers:
The presence of mental disorder which
is of such seriousness that the patient requires care and treatment
under the supervision of specialist mental health services; and
The care and treatment proposed for
the mental disorder, and for conditions resulting from it, is
the least restrictive alternative available consistent with safe
and effective care; and
The proposed care and treatment cannot
be implemented without use of compulsory powers; and
The proposed care and treatment is
necessary for the patient's health or the patient's safety and/or
for the protection of others from serious harm and/or for the
protection of the patient from serious exploitation.
6. In Mind's view, the overall effect of
the Government's proposals would be to widen vastly the numbers
of people who could find themselves subject to a compulsory order.
Under the present system, the fact that compulsory treatment can
only be used for those whose condition is sufficiently serious
to warrant admission to hospital acts as a limitation. Under the
new proposals that limitation is removed leaving all those in
contact with the psychiatric system beyond the primary care level
potentially subject to compulsion if they do not agree with the
proposed treatment plan. This can perhaps best be illustrated
by an example.
Ms A has been to see her GP because she is feeling
very low and tearful and frightened at having suicidal thoughts.
The GP is relatively inexperienced in mental health matters and,
because of the mention of suicidal thoughts, refers her to specialist
mental health services. Ms A is not keen on taking medication
and would like access to talking treatment of some kind. The only
talking treatments in the area have long waiting lists and the
psychiatrist therefore only offers anti-depressants. Ms A does
not want to go along with this and attempts to disengage from
services and seek the assistance she wants elsewhere. Under existing
law Ms A would not come within the scope of compulsory powers
because there are no grounds for believing that she needs admission
to hospital. However, under the government's proposals she could
meet the criteria for a community order because:
(a) She has been referred to specialist services;
(b) taking medication is, in the doctor's
view, necessary for her health and is the least restrictive alternative
available other than doing nothing which the doctors argue would
not be effective care;
(c) Ms A has indicated that she will not
voluntarily co-operate with the proposed treatment plan.
7. The Government may argue that in practice
the powers would not be used in such circumstances. However, it
would appear to be both bad and dangerous legislative practice
to extend the scope of such draconian powers wider than those
to whom it is specifically intended they should apply.
Capacity as part of the test
8. One way of limiting the scope of compulsory
powers which was recommended by the Richardson committee and is
supported by Mind is the inclusion of capacity as part of the
criteria for compulsory intervention. The Richardson committee
recommended a higher threshold for the imposition of compulsion
on those with capacity. They recommended that in such cases the
grounds for compulsory treatment should be that "there is
substantial risk of serious harm to the health and safety of the
patient or to the safety of other persons if she/he remains untreated
and there are positive clinical measures included within the proposed
care and treatment which are likely to prevent deterioration or
to secure an improvement in the patient's mental condition."
The Government is seeking views on the merits of this alternative
approach. Mind believes that, as is the case with physical health,
there is no justification for allowing compulsory intervention
on grounds of a person's health alone where they have the capacity
to make healthcare decisions. If capacity is not included there
seems to be a risk that people leaving hospital who would currently
be free of compulsion will find themselves routinely subject to
compulsory community orders on discharge "just to be on the
safe side". Including a capacity test would therefore help
ensure that community orders were confined to the high risk group
at which they are really aimed.
9. Leaving aside the Mental Health Act,
the general position in relation to medical (or other) treatment
for adults aimed either to improve health or save life is that
it can only be given with a person's consent even if a refusal
risks permanent injury or premature death unless a person lacks
capacity. Adults are presumed to have capacity but this is rebuttable.
The test of capacity centres on:
(a) being able to comprehend and retain treatment
information;
(b) being able to believe it;
(c) being able to weigh it in the balance
to arrive at choice[1].
Thus the law will not intervene if:
(As in the case of Re C) a person
with a diagnosis of schizophrenia refuses amputation of a gangrenous
leg which doctors argue is necessary to save his life;
A person refuses to take prescribed
medication because it makes them feel sick or their hair drop
out.
In these situations the law respects a person's
autonomy.
If a person is found to lack capacity for whatever
reason then medical treatment can be given in a person's best
interests which are essentially determined by the clinical team.
10. Compare this with the situation in relation
to mental health. Under the Mental Health Act 1983 the law allows
a person's consent to be overridden regardless of capacity. The
only safeguard, after medication has continued for three months,
is a second opinion from a doctor appointed by the Mental Health
Act Commission who will be concerned only with whether the treatment
proposed is in accordance with good medical practice. The Government
appears to propose that this should continue by retaining a person's
health alone as justification for use of compulsory powers regardless
of capacity. Take, for example, a person with a diagnosis of schizophrenia
who takes the view that the medication which has been prescribed
is dulling their perceptions and ability to function or having
physical side-effects such as shaking or dribbling. They may decide
that they prefer, say, to hear voices and find other strategies
for coping with this than to suffer these side effects. Under
the Government proposals such a person could be compulsorily treated
with powerful anti-psychotics by a doctor who had a negative view
of voice hearing and substituted their values for those of the
patient. Indeed, the Green Paper specifically states that best
interests should be determined by the professional opinion of
the care team and not by the patient.
11. Mind believes that there is no justification
for the continuing legal discrepancy in relation to medical treatment
decisions between physical and mental health. In both cases, we
believe that treatment should always require consent unless the
person lacks capacity. Where the person does lack capacity then,
subject to certain safeguards, treatment should be allowed in
a person's best interests. Where they are capably refusing treatment
and assessed as posing a high risk to others then compulsory detention
may be justified on grounds of public safety where treatment is
available (see paragraph 17 below).
12. It may be that Paul Boateng is right
in this respect to say that the current Mental Health Act reflects
a bygone age in that it assumes either that all people with mental
health problems who are compulsory detained must lack capacity
to take treatment decisions or at least that their views should
be assumed to have less weight than the views of those responsible
for their care. Research shows however, that most people with
mental health problems are as capable as any other member of society
of taking decisions about their lives. Mental health and incapacity
are not inextricably linked, although there are times when mental
health problems do affect capacity. The MacArthur Treatment Competence
Study[2]
found that:
Patients hospitalised with mental
illness more often showed deficits in their decision making performance
compared with hospitalised medically ill patients and non-patient
control groups. This was especially true for patients hospitalised
with schizophrenia, and to a lesser extent for patients with depression;
Nevertheless, the majority of patients
hospitalised with schizophrenia performed adequately on any particular
measure of decision making ability, and about half did well on
all the measures combined. When patients with schizophrenia performed
poorly, they usually had more severe psychiatric symptoms, especially
disturbances of thought and perception (eg disorganised thinking
and delusions). In contrast, decision making performance was not
associated with simple demographic variables (eg age, gender,
race) or other mental status variables (eg degree of anxiety);
Patients hospitalised with depression
showed intermediate levels of decision making performance, with
about three quarters performing well on all measures combined.
Patients with more severe depression did not necessarily perform
more poorly than those with less serious depression;
Medically ill patients, although
hospitalised with a potentially life threatening condition, performed
about as well as healthy persons in the community, although a
small proportion of these patients did show some decision making
deficits;
When patients hospitalised for schizophrenia
were retested after a two week period of treatment, substantial
improvement in decision making abilities was observed for patients
whose psychiatric symptoms had decreased in severity.
13. If Mind's approach were adopted clear
definitions of both capacity and best interests would be required.
Mind accepts the view of the Law Commission[3]
that any definition of incapacity must be a functional one. In
other words capacity must be assessed separately in relation to
each type of decision. At any one time a person may have capacity
in relation to one decision but not another. They may, for example,
have capacity to buy goods in a shop but not to enter in to a
more complex contractual arrangement such as a mortgage. Capacity
must also be reviewed over time especially when dealing with fluctuating
conditions such as mental distress. The focus of definition should
not be on the content of the decision made (ie Is this decision
sensible? Does this person accept my advice?) but on the process
by which it was made (ie Does this person possess the ability
to understand what this decision is about, to take in relevant
information and use that information to reach a decision?) Mind
supports the definitions of capacity and best interests proposed
by the Law Commission as set out in Annex A.
14. The other issue here is whether compulsion
is always justified to save a person's life. Attempted suicide
ceased to be a criminal offence in 1961 and the law does not currently
see fit to intervene in all situations where a person is putting
themselves at risk of serious harm. For example:
(a) A person has the right to refuse a blood
transfusion on religious grounds even if such refusal means inevitable
death;
(b) A heavy drinker has the right to refuse
to go for detoxification or stop drinking even though, without
this, a doctor says they will die of cirrhosis of the liver within
six months;
(c) Hunger strikers such as Bobby Sands or
Barry Horne are allowed to starve themselves to death.
15. However, the Mental Health Act 1983
does allow a person to be detained and treated against their will
if they are deemed to be suffering from a mental disorder and
their safety is at risk whether from self-neglect or more active
self-harm/attempts at suicide. Under the Government's proposals
this justification would continue.
16. Mind again believes that the key issue
here is capacity. As before, the question is, can the person understand
and retain information relevant to the decision including information
about the reasonably foreseeable consequences, and can they make
a decision based on that information? For example, if a person
is hearing voices telling them that they should kill themselves
or cause themselves serious harm then they would not, in our view,
meet the Law Commission's proposed definition of capacity because
they would be making their decision as a result of an external
influence and not based on relevant information. If, however,
a person had weighed up all the relevant issues and been offered
services to help, but still decided that their preferred option
was to kill themselves then, difficult as that may be, their autonomy
should be respected. That is not to say that every effort short
of compulsory intervention should not be made to prevent this
outcome.
Protection of others
17. It is important to state at the outset
that a mental health diagnosis is not a predictor of violence
and that there has in Mind's view been serious misreporting in
the media of the risks represented by people with mental health
problems. A recent report by John Gunn and Pamela Taylor[4]
which analysed the data extracted from Home Office statistics
for England and Wales between 1957 and 1995 and found that, despite
media and public perceptions there had been little change in the
number of homicides committed by people with mental illness. In
fact, the research shows that since 1957 there has actually been
a steady three per cent annual decline in the proportion of homicides
committed by people with mental disorders. Nevertheless there
will be occasions when people with mental health problems do present
a risk to others and may not be prepared to accept treatment.
18. There are physical health powers based
on imposing compulsion to protect others. The most obvious example
is the Public Health (Control of Disease) Act 1984 which allows
for the compulsory medical examination of persons suffering from
specified notifiable diseases such as tuberculosis and for their
subsequent compulsory detention (but, interestingly, not treatment)
in hospital if they are likely to spread the disease in the event
of being allowed to leave. In physical health these powers are
the exception rather than the rule. For example, there are health
conditions which, if not properly managed, can put others at risk.
There was a case last year of a diabetic who did not properly
manage his insulin and drove at a time when he was passing in
and out of consciousness. As a result he mounted the pavement
and killed two pedestrians. Yet no-one suggests that there should
be compulsory treatment of diabetics. Is this because the risk
of the spread of tuberculosis and other notifiable diseases is
virtually certain whereas other types of risk are much less predictable?
19. The current Mental Health Act allows
both compulsory detention and treatment on the grounds of protection
of others. The Government not only propose that this should continue
but propose extending its scope by removing any requirement of
treatability. Under present law, there is a requirement for those
detained under the categories of mental impairment or psychopathic
disorder that the medical treatment proposed for them is likely
to alleviate or prevent a deterioration of their condition. The
Review Team similarly recommended that before confirming any long-term
compulsory order in the case of a person with capacity the Tribunal
would have to be satisfied that three were positive clinical measures
within the proposed care and treatment plan which were likely
to prevent deterioration or secure and improvement in the patient's
mental condition. None of this appears in the Government's proposals.
Under their scheme any one with a diagnosis of personality disorder
would fall within the widened definition of mental disorder. If
such a person were receiving treatment from specialist mental
health services who concluded that although there were no positive
interventions which could assist them they posed a risk to others
and should therefore be kept in a secure setting they would appear
to be able to be indefinitely detained. Why should this group
alone be subject to a preventive detention regime when other groups
which pose as highif not higher risksare not covered?
Is this really the remit of mental health law?
CARE IN
THE COMMUNITY
20. Mind does not believe that community
care has failed. Where it has been properly funded and managed
it has made the difference between wasted lives in institutions
and opportunities for people to develop their own lives as they
want and need.
"I have freedom. I go out and meet people
and sing in the choir"[5]
Surveys consistently show that the public supports
the principle of community carealthough they rightly believe
that it is not working well enough in practice because it is under
funded. A Mind/Research Surveys of Great Britain (RSGB) survey
in 1994 found 72 per cent of the public supported community care;
most would be prepared to pay a little more in tax to make it
work.[6]
Mind is concerned that repeated claims of the failures of community
care may suggest that it is somehow wrong for people with mental
health problems to be in the community and add to the stigma and
discrimination for this already excluded group.
21. Much of the debate around the future
of community care is conducted in the light of tragic incidents
highlighted by the media. It is therefore important to stress
that a diagnosis of mental illness is not in itself a predictor
of violence.[7]
The factors associated with violence are being young and male
(by age 31, one in 14 men born in 1960 had a conviction for violent
crime);[8]
and being under the influence of alcohol or drugs. Of the homicides
studied by the National Confidential Inquiry into Suicide and
Homicide by people with a mental illness 39 per cent involved
people with a history of alcohol abuse and in 51 per cent alcohol
was thought to have contributed to the offence. The figures for
drug abuse were 35 per cent and 18 per cent.[9]
Other studies show that in 66 per cent to 80 per cent of homicides,
alcohol is involved.[10]
As indicated in paragraph 17 above, a recent report by Pamela
Taylor and John Gunn[11]
found that, despite media and public perceptions there had been
little change in the number of homicides committed by people with
mental illness and that there had actually been a steady 3 per
cent annual decline in the proportion of homicides committed by
people with mental disorders. Despite this, a 1993 study found
that two thirds of all media references to mental illness focussed
on violence.[12]
Users of mental health services are very distressed by their problems
being constantly linked to danger in the public mind. A recent
Mind survey[13]
found that almost three quarters (73 per cent) of respondents
felt the media coverage of mental health issues over the last
three years had been unfair, unbalanced or very negative.
22. There are countless examples of successful
community care projects across Britainsome of which are
considered in detail below. All available evidencenationally
and internationallyshows that properly funded community
care services work better than hospital care. Research of all
comparisons between the two concluded that "no study found
in patient care to be better on any variable.[14]
A recent Sainsbury Centre survey[15]
of the quality of care in acute psychiatric wards concluded that
hospital care was a "non-therapeutic intervention".
Key findings from their interviews with patients were:
Inpatient care is unpopular;
Wards lack many basic amenities.
55 per cent of patients had no separate bedroom, 71 per cent no
secure locker for personal possessions and 47 per cent no quiet
area;
Many patients feel unsafe;
Women are particularly dissatisfiedthey
are very concerned about privacy and cleanliness; and also about
personal safety;
Conditions are especially poor in
deprived areas.
The report concluded that people's long term,
underlying needs, and in particular their social needs, were not
being met during their hospital stay.
23. Mind accepts that users of mental health
services are not currently always receiving the support in the
community that they need, want and deserve. Until recently there
has been a particular gap in community care for people in crisis.
There are however increasingly a range of projects aimed at supporting
people in crisis and those who, for whatever reason, have in the
past become disengaged from services and risked repeated admissions
to hospital. Examples are:
Home Treatment in Birmingham
A home treatment and crisis resolution services
operates within the Yardley and Hodge Hill area in inner city
Birmingham. A team is available 24 hours a day, every day of the
year to respond promptly to individuals in crisis. Team members
visit people and support and treat them in their own homes. The
home treatment service is not just concerned with responding to
crisis but also resolving it. By this means unnecessary hospital
admissions can often be avoided and families, where appropriate
are more easily informed and involved. The service has produced:
Reduced rates of hospitalisation;
Greater compliance with treatment;
A significant reduction in compulsory
admissions under the Mental Health Act.[16]
Bradford Home Treatment Service
The Bradford Home Treatment Service was established
in 1996 by Bradford Community Health NHS Trust, in conjunction
with Bradford social services to provide intensive support for
people suffering acute mental health crises. A team made up of
psychiatric nurses, social workers, support staff and medical
input operates on a 24 hour, seven day a week basis. It is able
to offer early intervention in time of crisis across a range of
clinical problems and has developed its assessment and risk management
skills.[17]
Hammersmith and Fulham Mind Assertive Outreach
Service (Impact).
Impact aims to meet the needs of people with
serious mental health problems who are very reluctant or refusing
to engage with existing mental health services, often because
they have found these services unhelpful or unacceptable. It aims
to address these problems by using an assertive outreach approach
to build relationships with clients, by working intensively, flexibly
and continuously with them and by finding ways of actively encouraging
user participation. The 10 staff aim to have a maximum caseload
at any one time of about 60 clients. They also provide a limited
24 hour, 7 day a week telephone crisis service. Through monitoring
and evaluation it has been shown that IMPACT has succeeded in
engaging and maintaining contact with the client group most in
need. It has intervened effectively to assist clients with their
mental health needs and has generally been able to maintain a
positive relationship with clients even when they have been admitted
to hospital under the Mental Health Act. Staff have been very
successful in assisting clients to increase their benefit entitlement,
improve their accommodation and avoid them being made homeless,
gain access to other services, and help develop social networks.
Partial Hospitalisation and Out reach at Home
Scheme (POSH)
The Partial Hospitalisation and Outreach Support
at Home (POSH) Team has been run by Pathfinder Mental Health Services
NHS Trust since July 1997. The aim of this service is to provide
a seven days per week, extended hours, intensive outreach and
partial hospitalisation facility for those people who have serious
ongoing mental health problems (and often co-occurring drug/alcohol
misuse) who also manifest challenging behaviours. In their First
Annual Report[18]
covering the period 1 October 1997 to 30 September 1998 the Team
report that of their 20 clients they have been unable to sustain
the community tenure of only one client referred to them and,
even in that cast, they were able to ensure his continuing engagement
with services.
The Wolverhampton African-Caribbean Community
Initiative.
The Government acknowledge in the Mental Health
National Service Framework that for black people, who tend to
be more critical of mental health services, home treatment is
more acceptable than a hospital admission and there is better
continuing engagement with services.[19]
The Wolverhampton African-Caribbean Community Initiative is a
voluntary led scheme developed in partnership with local health
and social services, providing culturally appropriate support
for black and minority ethnic service users. It provides day care,
outreach services and supported housing for African-Caribbean's
with mental health problems. The initiative often acts as a link
between mainstream services and the African-Caribbean section
of Wolverhampton's diverse community. Project workers and volunteers
maintain contact with some people with serious and enduring mental
health problems who otherwise might lose contact with services.
Hull and East Yorkshire Mind Crisis Service
Hull and East Yorkshire Mind provides a very
successful three-tier crisis service which has been running since
1998. It consists of a crisis phone-line open between 4.30 and
9.30 Monday to Friday and 24 hours at weekends and Bank holidays.
If it appears from the initial telephone call that a person needs
face-to-face contact this can be provided at a night centre. Finally,
there is a six bed safe house for those contacting the service
who have nowhere else safe to go. The service is looking to develop
links with NHS Direct in their area.
Rights to assessment and treatment
24. In their White Paper "Modernising
Mental Health Services" and in the National Service Framework
for Mental Health the Government have accepted the need for a
better range of community care services and for more consistent
availability of such services across the country. They have also
made some additional resources available for this purpose. However,
they have rejected the call from a number of mental health organisations
for a new Mental Health Act to create a right of access when required,
to prompt, effective and high quality care. This right had two
parts:
(a) A right for a person to have their needs
assessed;
(b) A right for a person to receive appropriate
services to meet their assessed needs.
A right to assessment
25. Mind believes that the opportunity of
a new Mental Health Act should be taken to give people a right
to have their mental health needs assessed. Although there are
already duties to carry out assessments of a person's community
care needs imposed on health and local authorities under the NHS
and Community Care Act 1990 these do not amount to an individual,
enforceable right to assessment and treatment. Nor do they seem
to be effective in ensuring that people with mental health problems
get access to appropriate services when they need them. Mind is
aware of many people who have been turned away when they ask for
help for their mental health, only to be subjected to compulsory
detention and treatment when their mental health deteriorates
further.
Like many people I have had experience of asking
for in-patient treatment, not having either an assessment or my
request granted and subsequently having to be compulsorily detained.
(MindLink member responding to questionnaire on Mental Health
Act reform).[20]
In a survey by the National Schizophrenia Fellowship,
over one in three people (35 per cent) had been turned away when
seeking help.[21]
26. The Richardson Committee considered
this issue. They concluded that in view of the evidence they had
received from users, carers, mental health practitioners and the
police about the difficulties in gaining access to the necessary
services there should be a right to assessment of mental health
needs which would apply to those in contact with services who
might, for example, believe that their condition is deteriorating,
and to those known to services who believe that they need such
an assessment. They envisaged that the right would give rise to
a public law duty on the relevant authority.
27. The creation of such a right has strong
support among users of mental health services. In December 1998
Mind surveyed its networks for their views on the review of the
Mental Health Actservice users and survivors, black and
minority ethnic individuals and groups, local Mind associations,
individual members and rural and legal networks. Ninety-six per
cent of respondents wanted a right to assessment.
A right to treatment
28. Although still welcome a right to assessment
is clearly only of limited value if it is not supported by a right
to receive appropriate treatment to meet assessed needs. In Mind's
1998 survey referred to in the previous paragraph 93 per cent
wanted a right to treatment enshrined in legislation.[22]
In the National Schizophrenia Fellowship's consultation 69 per
cent ranked the legal right to adequate care and treatment as
the biggest improvement that could be made in a new Mental Health
Act.[23]
29. The Richardson Committee expressed the
view that as part of the right of assessment there should be a
duty to keep a register of unmet need. This could then be used
to assist in the planning of future service provision. They considered
the issue of whether a new Mental Health Act should confine itself
to establishing a framework for compulsory hospitalisation and
treatment of certain people with mental health problems or whether
it should also deal with questions of service quality and provision.
They concluded that the narrower remit was more appropriate and
that service development issues were being dealt with through
other avenues such as the National Service Framework and the National
Institute for Clinical Excellence.
30. Mind would argue that the questions
of compulsion and service provision are in fact inextricably linked.
As indicated above, people end up subject to compulsion because
of the lack of available services to meet their needs and this
is a key difference between physical and mental health which justifies
different legal entitlements. The proposed extension of compulsory
treatment to a community setting makes it particularly important
that there is a range of services available to meet the needs
of people with mental health problems in the community. These
are not only health needs but also such needs as proper accommodation,
benefits advice, employment or other occupation and assistance
at home. Without such a mechanism there is a risk that people
will be forced to take unwanted medication within the community
merely because the type of support they want and need has not
been made available.
31. In 1995 Mind supported a private member's
bill introduced by Tessa Jowell MPthe Community Care (Rights
to Mental Health Services) Bill. This would have entitled people
living in the community who were, or had been, in touch with psychiatric
services to comprehensive community health care services including
supported accommodation, crisis services, medical services, counselling,
practical assistance in the home and facilities for training,
recreation and employment. The Bill was supported by a range of
organisations including the Association of Metropolitan Authorities,
the Association of County Councils, the Royal College of Nursing,
the Mental Health Foundation, the Mental After Care Association,
the Association of Directors of Social Services, the Association
of Community Health Councils for England and Wales, Mental Health
Media, Unison and Survivors Speak Out. In Mind's view, the lack
of such and entitlement undermines the development of a comprehensive
mental health service. The National Service Framework for mental
health would have more impetus if it were backed up by a duty
to respond to individuals' requests for help and to meet assessed
needs from a full range of services.
Community Treatment Orders
32. Another key strand of the Government's
mental health strategy is review of the law to allow the introduction
of compulsory treatment in the community. Mind (together with
a range of other organisationssee attached leaflet) is
concerned that this will undermine the development of comprehensive
and high quality community care. Care in the community is not
just a question of transferring hospital-based care in to the
community. It requires a much more comprehensive and user-centred
assessment of a person's needs. Mind has concerns about community
treatment orders because we believe that they will:
Drive people away from services;
Be ineffective in achieving the Government's
aim of greater public safety;
Discourage the development of a wider
range of services and encourage over-reliance on drug treatment
alone;
Be applied disproportionately to
black people;
Make it more difficult for service
users to have their views heard especially in the absence of any
right to independent advocacy.
Details of all these concerns are set out in
the attached leaflet.
The transition between acute and secure mental
health sectors.
33. Mind has two particular concerns about
high secure services which we would wish to draw to the attention
of the committee. These are:
(a) The numbers of people in high secure
care who do not need that level of securityestimated to
be between a third and a half of the current high secure population;
(b) The over-representation at the highest
levels of security of black and minority ethnic patients.
Inappropriate security levels
34. Two issues arise here:
(a) The inappropriate placement of peopleespecially
women and people with learning difficultiesin high secure
provision at all;
(b) The delays in transferring people from
high secure provision once they have been assessed as no longer
needing that level of security.
Inappropriate placement
35. Over 26 per cent of women patients compared
with 9 per cent of men patients in high secure hospitals are detained
on a civil order under the Mental Health Act and their detention
is not linked to any prosecuted criminal offence. In 1996 the
NHS gave a conservative estimate the 78 per cent of women in high
secure required medium secure and 69 per cent in medium secure
only required low secure provision. These problems are made worse
by the inadequacies of the regimes at both high and medium secure
level in meeting the needs of women patients. Reed[24]
looked at services for women as part of his review of services
for mentally disordered offenders. He stated: "In male-dominated
environments, women's needs, including their more personal female
needs, are liable to be overlooked. They are sometimes subject
to sexual harassment and other demeaning behaviour." He recommended
that positive action was needed to deal with these problems. Depressingly
it is clear from the most recent report of the Mental Health Act
Commission (MHAC) covering the years 1997-99[25]
how little has changed. They report: "The hospitals continue
to operate in a predominantly male culture and as a consequence
women's special needs can be overlooked."
36. Mind believes that there needs to be
distinct and entirely separate structure of secure psychiatric
services for women modelled around their own care needs. As recommended
in a report last year from Women in Secure Hospitals (WISH)[26]
the strategy for this service "should be informed not only
by clinical needs assessments of women patients but also by gender
issues, the social and economic context of women's offending and
mental distress, and by listening to women patients and taking
their views into account."
Delays in transfer
37. In 1998 the UK was held to be in breach
of the European Convention in the case of a patient who continued
to be held in a high secure hospital for three years after he
had been assessed as no longer suffering from a mental disorder
but for whom no hostel place was found as directed by the Mental
Health Review Tribunal. The patient was awarded damages of £10,000
plus costs.[27]
In their most recent biennial report the MHAC noted that "delays
in the transfer of patients out of the high security hospitals
continue to remain a very significant problem, the principle contributory
factor being the national shortage of medium and long-term secure
places." They reported an estimated 200 patients at Ashworth
who did not require high levels of security; 112 patients at Broadmoor
progressing towards transfer or discharge some of whom had been
under consideration by the Home Office for five years; and "many
instances of patients being obliged to remain at Rampton despite
recognition by clinical teams, and the decisions and recommendations
of Mental Health Review Tribunals, that they no longer require
the level of security provided by that hospital".
38. As the MHAC points out not only are
these patients affected by severe and clinically unwarranted curtailment
of their liberty they are also blocking beds which may be urgently
needed for others who may otherwise be trapped in an inappropriate
prison environment. Mind believes that urgent action is needed
to address this situation.
Overrepresentation of black and minority
ethnic patients
39. The psychiatric and criminal justice
systems both tend to exert excessive control over black people.
Black people, as patients, are likely to receive more controlling
treatments and as "mentally disordered offenders" are
more likely than white to be detained in higher degrees of security
for longer. A recent study in South London found that black populations
had a rate of admission to medium-secure care 7-fold higher than
their white counterparts: 28 per 100,000 population compared to
4 per 100,000 for white people.[28]
In 1998 the breakdown of patients classified by ethnic group in
the three high security hospitals was as follows:
|
Rampton | |
|
White | 352
| (83%) |
Black Caribbean | 65
| (15%) |
Black African | 3
| (1%) |
Pakistani | 6
| (1%) |
|
Ashworth | |
|
White | 389
| (82%) |
Black Caribbean | 30
| (6.5%) |
Black African | 7
| (1.5%) |
Black Other | 31
| (7%) |
Indian | 7
| (1.5%) |
Pakistani | 3
| (0.5%) |
Chinese | 1
| (0.5%) |
Other | 1 |
(0.5%) |
|
Broadmoor | |
|
White | 347
| (79%) |
Black Caribbean | 57
| (13%) |
Black African | 10
| (2%) |
Indian | 4
| (1%) |
Bangladeshi | 1
| (0.5%) |
Chinese | 2
| (0.5%) |
Other | 8 |
(2%) |
Not known | 8
| (2%) |
|
This compares with census data showing white people making
up 94.5 per cent of the population and Black Caribbeans 0.9 per
cent.
40. There is also, as with women, an issue about the
inappropriateness of services. The MHAC in their seventh biennial
report covering the years 1995-97 stated: "Race and culture
remains a matter of particular concern at the High Security Hospitals.
Adverse comments have been made about the standard of ethnic food,
apparent unconcern on the part of staff at racist remarks by patients
and the inadequate representation of ethnic minorities among staff."
Mind believes that more culturally appropriate services need to
be developed as a matter of urgency and that better training needs
to be provided to all staff on race and culture issues. Steps
also need to be taken to challenge the cultural assumptions that
may be leading to over-representation of these groups at high
levels of security.
Mind
February 2000
1
Re C (Adult: Refusal of Medical Treatment) [1994] 1 All ER 819. Back
2
Appelbaum PS, Griiso T, (1995) The MacArthur Treatment Competence
Study: 1 Mental illness and competence to consent to treatment,
Law and Human Behaviour 19 pages 105-126. Back
3
The Law Commission (1995) Mental Incapacity Law Commission
no 231 (HMSO) pages 36-40. Back
4
Taylor P J and Gunn J (1999) "Homicides by people with mental
illness: myth and reality" in British Journal of PsychiatryVol
174 pages 9-14. Back
5
Crosby, C et al. (1992) Changing Care: Changing Lives. Resettlement
from North Wales Hospital. University College of North Wales. Back
6
MIND/RSGB (1994) The Public's View of Mental Health Services.
Mind. Back
7
Hamilton JR (1990) Dangerousness. Psychiatric Bulletin. Supplement
3. Abstracts. Back
8
Social Trends 1993 HMSO Back
9
Department of Health (1999) Safer Services: National Confidential
Inquiry into Suicide and Homicide by People with a Mental Illness. Back
10
Gillies, H (1976) Homicide in the West of Scotland British
Journal of Psychiatry 128. Back
11
Taylor P J and Gunn J (1999) "Homicides by People with Mental
Illness: Myth and Reality" British Journal of Psychiatry
174 pages 9-14. Back
12
Philo G et al. (1993) Mass Media Representations of Mental
Health/Illness. Report for Health Education Board for Scotland.
Glasgow University Media Group. Back
13
Baker, S and MacPherson J (2000) Counting the Cost: Mental
Health in the Media. Mind. Back
14
Muijen, M et al. (1992) Home Based Care and Standard Hospital
Care for Patients with Severe Mental Illness. British Medical
Journal 304. Back
15
The Sainsbury Centre for Mental Health (1998) Acute Problems:
A survey of the quality of care in acute psychiatric wards. Back
16
. Back
17
Department of Health (1999) National Service Framework for Mental
Health: Modern Standards and Service Models. Back
18
Perkins R and Ramkhelawon D (1998) Partial-hospitalisation and
Outreach Support at Home (POSH) Team. First Annual Report. (Pathfinder
MH Services NHS Trust). Back
19
National Service Framework page 51. Back
20
Margaret Pedler (1999) Mind the Law: Mind's evidence to the Government's
Mental Health Act Review Team. Mind. Back
21
National Schizophrenia Fellowship (1999) Better Act Now! NSF's
views on the Mental Health Act Review. NSF. Back
22
Margaret Pedler op.cit. Back
23
National Schizophrenia Fellowship op. cit. Back
24
Reed J (1994) "Race, Gender and Equal Opportunities"
Vol 6, Review of Health and Social Services for Mentally Disordered
Offenders and Others requiring similar services. HMSO. Back
25
The Mental Health Act Commission Eighth Biennial Report 1997-99
HMSO. Back
26
Stafford, P (1999) Defining gender issues...redefining women's
services WISH. Back
27
Stanley Johnson v United Kingdom [1998] HRCD Vol IX, No1, 41. Back
28
Christie, Y. Smith H, Mental Health and its Impact on Britain's
Black Communities Mental Health Review 1994, 2:1 5-14. Back
|