APPENDIX 17
Memorandum submitted by the Royal College
of Pathologists
The College represents Clinical Scientists involved
in diagnostic genetic testing, both cytogenetics and molecular
genetics. It is particularly concerned with issues of quality
assurance and training. Expertise in genetics is provided by a
Specialist Advisory Committee.
What effect could the use of test results by insurance
companies have on research in the UK?
We feel that publicity surrounding use of test
results by insurers is likely to make some patients reluctant
to participate in research, thus slowing down progress. However,
protocols have been established to separate research findings
from diagnostic tests and to preserve the anonymity of patients.
These should be used in all laboratories. Adherence to such a
protocol is not at present a standard for accreditation by CPA
but could be usefully incorporated.
22 January 2001
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