Select Committee on Health Minutes of Evidence


Examination of Witnesses (Questions 1-19)

MR GARY FITZGERALD, MS TESSA HARDING, MR JONATHAN COE AND MRS JENNY POTTER

11 DECEMBER 2003

  Q1 Chairman: Can I welcome you to this session of the Committee, the first session on elderly abuse. I would appeal to both my colleagues on the Committee and our witnesses for short, precise questions and similar answers because we are time-limited with a lot to get through. Can I also particularly place on record our thanks to all our witnesses for the very helpful written evidence you have given us and for coming before us today. Can I briefly ask you each to introduce yourselves to the Committee and say a little bit about the context of your work on elderly abuse.

  Mr Fitzgerald: Thank you Chairman. My name is Gary Fitzgerald and I am the Chief Executive of the charity, Action on Elder Abuse. It is a charity which has been in existence for the last ten years and it focuses exclusively on the issue of abuse of older people where there is an expectation of trust between the older person and the abusing person. One of the key things that we do is to commission a helpline for the last six years which provides us with, as you will see from the evidence, quite a lot of information on the nature of abuse.

  Ms Harding: I am Tessa Harding. I am the Senior Policy Adviser at Help the Aged and my particular focus is on age equality and human rights. I think there is a very important human rights dimension to the whole issue of elder abuse which I would like to draw to the Committee's attention.

  Mr Coe: I am Jonathan Coe. I am the Chief Executive of POPAN which is the Prevention of Professional Abuse Network. Like Action on Elder Abuse, we run a helpline and provide support and advocacy to anybody who has been abused by any health and social care professional, so our brief is really right across the board on health and social care professionals and all client groups.

  Mrs Potter: My name is Jenny Potter. I am the National Officer for the Community and District Nursing Association which is an independent union which takes care of the nurses who work in the community. Our members have highlighted the fact that they are seeing elder abuse in the community and they have no mandatory training to help them deal with this problem when they meet it.

  Q2 Mr Burns: As we start this inquiry on elder abuse, I think it would probably be quite helpful if each of you would be able to give us briefly an idea of how you perceive the definition of the term "elder abuse". Does it make sense to talk about elder abuse as distinct from the abuse of vulnerable adults?

  Mr Fitzgerald: Our view very clearly would be that there is a need to separate out the issue of older people from vulnerable adults and that is primarily because of the position that older people have within society as opposed to other adult groups. If I suggest that you look at legislation and guidance and whatever for, say, the last 100 years, you tend to see very much that when we are not talking of older people the legislation says, "You will do this. This is how you will do it. This is when you will do it". When you look at legislation for older people, you very much tend to see, "permission to do if you wish", and what you see is older people being hidden very much within the global group of vulnerable adults. We would strongly say that there was a very clear need for older people to be seen independently and separately.

  Ms Harding: I would just agree with that. I think that elder abuse is an extremely hidden topic. I think we are about where we were with Maria Colwell some 30 years or so ago and with domestic violence I think there are parallels. I think the public is very unaware of elder abuse as a whole and there is a need for a major public information programme as well.

  Mr Coe: I would just add to that that the categories of abuse that are outlined in the No Secrets guidance are very useful and we would like to see those being used much more widely.

  Mrs Potter: From a nursing point of view, the vulnerable adult is very similar to the elder person. They do not have a voice in the community when they are being abused. There are differences, but also a lot of similarities.

  Q3 Mr Burns: Do you feel then that the wide range of situations that is covered by the term "elder abuse" possibly limits its value? Is there a great difference between deliberate physical abuse, for example, and, say, inadvertent neglect or discrimination?

  Mr Fitzgerald: I think when we are talking about abuse, it really is quite a political term in the sense that we talk about a spectrum of events ranging from what we would talk about as being poor practice all the way through to the scenario of deliberate cruelty being perpetrated by somebody. I think it is an important point to use the word "abuse" because it puts all of that together, but I think the way in which you approach it can be different. For example, the person who deliberately punches an elder person is doing it consciously and is knowing what they are doing. The person, for instance, who is failing to knock when they go through someone's door in a residential home, it is a different level. It is still abusive, it is still putting that elder person in a lesser category than others, but the way that you address it is different. I would strongly argue that we need to see all of that as abuse, but also recognise that many of those situations are crimes and we should not lose sight of that either.

  Q4 Chairman: Can I take it a bit further and look at the prevalence because we have got some interesting figures in the evidence that has been brought before the Committee. I think a number of you have quoted the Ogg and Bennett research in 1992 with the probable figure for abuse as being between 5 and 9 per cent of the elderly population. I think the CDNA evidence suggests that that would now be 500,000 over-65s, which is a significant figure. Help the Aged, Ms Harding's organisation, says that the figure is likely to be higher than that due to under-reporting. You are all saying that this is a very significant problem and I am interested in looking at if, as all of you are saying, further research is needed, how you go about establishing the actual facts over and above what we have got from the research going back to 1992.

  Mr Coe: I think this is one of the major problems that all of us face, that there is not clear, comprehensive and repeated information about prevalence. POPAN is obviously concerned with abuse by any health and social care professional. We did a very short kind of in-house survey earlier in the year and one of the big problems is that, for instance, the regulators of health and social care use different terminology to describe similar events, so it is very hard even on published evidence to get a very clear picture of what is happening. What POPAN would like to see is a lead being taken on that essentially to ensure that just the known information is pulled together and published regularly and that is just simply not happening.

  Q5 Chairman: If it is true, as you are suggesting and there seems to be a consensus, that at least half a million elderly people are being abused, why is there such a lack of political concern about this issue? I do not know about my colleagues, but I do not recall really any letters, apart from organisations specifically like Mrs Potter's, involved with the issue about this as a serious concern. Is that reflective perhaps of the views of the elderly?

  Mrs Potter: I think with elderly people, they have got nobody who can be their advocate. They often do not know where to go and for a lot of them, they are often prepared to put up with the abuse to have someone visiting them and it is a sad state of affairs for elderly people. As regards the figures, I think if we could have training in the recognition of abuse, you would get an awful lot more figures and a lot more reporting, but certainly most health professionals do not know about abuse and how to recognise it.

  Q6 Mr Bradley: Just linking that to the earlier question on definition, the numbers that you are describing and the spectrum of the definition, have you any view on the distribution of the numbers from, if I can call it, the softer end of the market, as you describe, not knocking on the door through to real physical abuse which may be perceived as being the more serious end of the spectrum? How do you weight the figures you are presenting?

  Mr Fitzgerald: I think there are probably two answers I would give to that. One is to answer the question directly and to say that our feeling from our helpline would be that the vast majority of abuse would fall into the category of poor practice. It is about neglect, it is about treating people with less dignity than you would other people. It is about the attitude and the approach. Our feeling and our hope is that the actual deliberate, wilful cruelty is a smaller percentage, so that would be how we would feel about it. Putting that in context, I often pose the question that I actually do not know what is worse and I think this is the important point. There is the single act of cruelty, such as we had with the care of Fitzpatrick last year who ripped four fingernails out of someone's hand in a care home, where for that older person it was painful, but then it was over and she subsequently recovered, or there is waking up every single day of your life facing the same degradation, the same humiliation, the same dehumanising day after day after day by a carer who is responsible for you and you have no escape. So while we are looking at poor practice and the spectrum, I think it is important to look at it from the point of view of the person who is receiving that practice, and I think whether or not you are talking about the cruelty, and I could list them, headbutting an 89-year-old, leaving someone for six hours lying in their own excrement because they have annoyed you, those are extremes, but not being allowed to go to the toilet or being made to sit in your own excrement through your dinner time, through to the complete range of neglectful approaches can be just as damaging to somebody, so I would strongly urge that although we look at it as a spectrum because our approach must be different, we do not reduce it in its importance.

  Q7 Chairman: Tessa Harding mentioned Maria Colwell and some of us, the elderly people around the table, were actually in social services at that particular time. I am very conscious that child abuse is a relatively recent concept in terms of our discovering it, and I was in social services when we discovered organised child sex abuse and we were not really aware of what we were finding. I just wonder what your views are in that context as to why we have a growing awareness of elder abuse, in particular whether there are connections, for example, with the extent to which we have to some extent deregulated care of the elderly over a period of 20 years with the increased role of the private sector. I am not saying it is just the private sector because I am certainly aware of abuse in the public sector, domiciliary situations, but are there factors historically which led to this growing awareness or not growing awareness, but growing problem perhaps as well?

  Ms Harding: I think we are becoming more aware of the full citizenship of older people. There is without doubt age discrimination in our public services and also in our culture. There is ageism in our culture. We are just seeing a greater awareness developing of the rights of older people, the human rights of older people and their ability to voice their own concerns, influence the services that affect them locally and so on, so I think there is that general awareness. As far as abuse is concerned, I think we have hardly started on the path. I think it is helpful, by the way, to distinguish between abuse by family members and abuse within the health and care systems I think partly because the solutions to those are probably very different. We have become much more aware of abuse in the health and care system through, for example, the Commission for Health Improvement Report on Emerging Themes: Services for Older People, which looked across 17 different clinical government reviews and was sufficiently concerned to pull out key areas where it felt that people were receiving not just poor care, but care that was worse than that, where their lives, health and wellbeing were being put at risk. It is couched in very measured terms, their report, but I think the message is absolutely unmistakeable. Increasingly we are seeing investigation reports on particular hospital wards, particular care homes and it is coming more into the public domain, but we are still not seeing, for example, inquests with any frequency relating to older people who die in care homes or who die while receiving care at home. There are really very few and cases are not coming to court.

  Q8 Chairman: On that particular point, I was interested in a case that occurred in Yorkshire a little while ago, which might be referred to in a subsequent session in this inquiry, where there were questions raised about the whole certification of death procedures in care homes. Is that an area that concerns you?

  Ms Harding: Yes, very much.

  Q9 Chairman: Mr Fitzgerald, do you want to be specific about this?

  Mr Fitzgerald: Your first question about the difference in perception between child abuse and adult abuse I think is an important one because if you look at the changes which have taken place in society, say, in the last ten years that our charity has been in existence and if you look at the change in perceptions of society towards child abuse and domestic violence, you very clearly see the message that it is intolerable to society that a child would be hurt and we rightly now talk about domestic violence as a hate crime. However, if you look at the perceptions towards the abuse of older people, we do not see that same response. We see an acceptability and we see explanations for abuse coming forward that if we were to translate to cases of child protection, you would not accept. The classic example I would give you is that as a country we know about Victoria Climbie, we know what happened to her, we know of the abuses, but many, many of us do not know about Margaret Panting and the difference between them is 70 years. Margaret had the same number of injuries to her, she suffered the same sorts of abuse but we do not know about this. The local community knows, but as a nation we do not and that does pose the question: why is it that we do not know about these things with elder people? I think we have fundamentally to get to that. I think it is about the human rights, as Tessa said, of elder people and it is about perception. We have an acceptance within society that really should be unacceptable to us in terms of abuse.

  Q10 Chairman: You were also going to come on to the certification of death arrangements in care homes.

  Mr Fitzgerald: Certainly there is an anxiety for us and I cannot give you statistical data or whatever. We receive many complaints to us about the death of a mother or a father where there has been an abusive situation and where the death certificate will refer often to pneumonia or often to heart failure and there is not a link between the death of that person and the abuse that may have taken place three, four or five weeks ago. We do have a real concern that those links are not being made and the trauma facing an elderly person who is abused can be very profound even where that is financial abuse where somebody has had money stolen from them and it can actually lead, because of the impact, to the death of that person, so I think there is an issue there.

  Q11 Chairman: I am not so sure we have got a great deal of written evidence on that particular point, but if any of you wanted to come back to us with more information about it, it would be very helpful. I was talking about how you would go about further research and one of the points that concerns me is whether we can get any reliable research evidence without proper regulation which enables us fully to understand accurately what is going on. Secondly, are there some priority issues that should be pulled out for specific research and, if so, what are they?

  Mr Coe: We talked about prevalence earlier and the lack of central co-ordination of that. We are dealing with such a wide set of circumstances and in such a wide field that it is quite hard to focus only on one area and we need to produce information right across the board, right across health and social care services and in all the settings that we have been discussing. Now, there was a survey ten years ago and we can do another survey, but that is not going to be the whole answer. What we need is a really rigorous and systematic approach to recording and reporting the whole spectrum of abuse and what we would like to see is that made a requirement of both providers and regulators and the categories would be those used in No Secrets. They are perfectly serviceable and usable categories that are understandable across the board and we would really like to see those being used by all the key players to ensure that that information is pulled together so that then you could look at annual reporting of these figures to help all of us inform the development of services, the development of policy and practice. If it is possible for the NHS annually to produce a report on the number of staff who are abused by patients, surely it must be possible to produce reports the other way round.

  Q12 Chairman: And we know the numbers of children who died at the hands of parents and carers and we know similar figures, accurate figures in terms of the number of elderly people who may have died from an abusive situation.

  Mrs Potter: Can I say that I agree with Mr Coe. Unless we have got staff who actually know how to recognise abuse, you are not going to get the reports. We have all got to be singing from the same hymn sheet and we have all got to know what we are singing.

  Mr Fitzgerald: I think that is a valid point because if you look at the definitions of abuse that are used with adult protection committees, potentially we have a lot of information out in the community now that we have got adult protection processes in place, but each local authority tends to operate slightly differently as to what a referral is about, what it is that they responded to and what the outcomes are, so I do think you need to get some national basis for defining abuse, defining categories and defining what the responses are. The information is certainly out there, but then I think it is also about how we use that information when we have got it. Prevalence definitely is an important issue, but I think the point that Tessa made is important. We do need to look at abuse differently when we are talking of institutional, formal carers abusing and family carers abusing because the whole nature is different and what we need to draw out is different.

  Q13 John Austin: Could I follow on from that and refer to abuse within the family and within the home following on from Ms Harding's point earlier. I think there is a common assumption amongst many people that a lot of the abuse that occurs within the family is a result of stress from the care, the lack of support, the lack of respite care, et cetera. Now, Age Concern seems to challenge that view and calls in evidence the fact that often the abusive member of the family is not the one who is the principal carer.

  Mr Fitzgerald: Yes.

  Q14 John Austin: It could be argued that the stress does not just fall on the principal carer, but there is stress within the family. If you are saying that stress is not a principal cause of abuse within the family, what do you put it down to?

  Mr Fitzgerald: I think there are a number of points to make on this and the first one is to acknowledge and accept totally that caring for somebody who is very dependent is stressful and I would not want to take that away. We have all operated, I think, under an assumption for a long time that that automatically leads to that carer then abusing and what our experience is from the helpline is that that is not the case. Less than 1 per cent of the reports to us are about that hands-on carer. Now, that is not to deny the point you are making that there is stress on the household in total, but when we look at the type of abuse, we can put it down to, for example, greed, the attitude and approach of sons and daughters at times to an older person's money, that, "They are spending my inheritance. I must stop this", or, "This is my house. I have lived in it as a child and I am entitled to inherit it". I think it is elements like that and I think there are elements also about inter-generational abuse where it is a practice which is passed on. I think it is actually quite a complex issue and, in our experience, no one single explanation fits as a model that you can apply. I go back to the point I was making, that there is an underlying perception about older people in society that tolerates abuse and then there are individual reasons that trigger that abuse whether that is a person's enjoyment of inflicting cruelty or greed or tensions or whatever. I think we need to keep a mind on the fact that it is not something that is tolerated with children, so why is it tolerated with elderly people.

  Mrs Potter: I think one of the other reasons for family members abusing is the fact that your family have all grown up, your children have grown up and you are now left with coping with elderly parents and you are just beginning a period in your life when you actually have got a little bit of freedom and there is resentment from other members of the family because the sibling of the older person is torn between looking after their parent and doing what their husband or wife wants to do or what their family wants to do and that is a problem. It is something where we have found it very difficult in the community to actually relieve that.

  Q15 John Austin: But if that is the case, if there was more external support, if there was more respite care, would that resentment and those feelings not be lessened and, therefore, perhaps potentially lessen the abuse that takes place? One thing that you said earlier was that really no amount of external support or whatever would necessarily impact upon the level of family abuse because it is not the stress that causes it.

  Mrs Potter: I think more respite care would be a help and more assistance in the home would be a help, but it is getting people to accept that. No older person wants to go into respite care because they actually perceive that as going into a home even if it is only for a fortnight and they are always frightened that they are not going to come back out again and that is a real barrier to try and get across when you are working with older people.

  Mr Fitzgerald: I certainly would not want to suggest to you that there are not things that could be done because there clearly are. The Government, in the Domestic Violence Bill, has recently introduced unlawful killing of vulnerable adults. Now, not only will that deal with certain issues, like the case I referred to earlier, but it sends a strong message as well out into society that this sort of behaviour is not tolerable. I think there are things that we can do to relieve stress in families, but I think you do have to look at the individual abuse. Stress does not lead to somebody wanting to steal an older person's house and that clearly is something that we need to tackle head-on. The misuse of enduring powers of attorney, powers of attorney that are not registered, that is a deliberate act of theft and the motivation for that can be clear. It is some of the more complex issues, psychological abuse, what causes that, what is the nature of it, that becomes more difficult to get to the root of, so I think we do need to look at the individual types of abuse and then work backwards to see what is the motivator.

  Q16 Dr Taylor: Could I pick up first something Mr Fitzgerald said early on. I think you implied that vulnerable adults should rather be separated off from the elderly. Is that because vulnerable adults are better protected at the moment than the elderly?

  Mr Fitzgerald: Yes, although I was actually putting it the other way round, that older people should be separated off. I think it is the nature of the perception of older people within society. We have moved a long way with other adult groups and I am not suggesting for a moment that we are where we would like to be.

  Q17 Dr Taylor: So people are more aware of the risk of an obviously vulnerable younger adult?

  Mr Fitzgerald: Yes, potentially so.

  Q18 Dr Taylor: That then takes us on to talk about risk factors. I think we have all been most impressed with the evidence you have all given us and the staggering thing is that you have all repeated each other. Well, it is not staggering really. I am really just going to pick out the CDNA evidence and ask you to somehow put in some sort of order of significance this huge list of the triggers. First of all, you give us the obvious list of medical conditions that make people more liable and then a long list of triggers, ending up with things like staff shortages, lack of training, which you have already mentioned, non-qualified staff doing it, inadequate support. Starting with the CDNA, could you put those in any sort of order of importance?

  Mrs Potter: Well, we would like to see this lack of training and staff shortages, lack of supervision. A lot of unqualified people in residential care homes and nursing homes are doing tasks that they should not be doing and in the community, social services are doing an awful lot of personal care for people which at one time was undertaken by health services. It was branched off a few years ago and social services now undertake more of the personal care in the community. As regards the others, they are triggers and it is six of one and half a dozen of the other as to which order you put them in.

  Q19 Dr Taylor: But you would put training, staffing levels, supervision right at the top?

  Mrs Potter: Yes, definitely.


 
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