Select Committee on Health Minutes of Evidence


Annex 9

CARE HOMES FOR OLDER PEOPLE: NATIONAL MINIMUM STANDARDS

DYING AND DEATH

  The process of dying and death itself must never be regarded as routine by managers and staff. The quality of the care which residents receive in their last days is as important as the quality of life which they experience prior to this. This means that their physical and emotional needs must be met, their comfort and well-being attended to and their wishes respected. Pain and distress should be controlled and privacy and dignity at all times preserved. The professional skills of palliative care staff can help homes ensure the comfort of residents who are dying. There are a number of specialist agencies providing practical assistance and advice, such as Marie Curie and Macmillan nurses, which can be called upon.

  The impact of the death of a resident on the community of residents may be significant and it is important that the home ensures that opportunities are available for residents to come to terms with it in ways which the individual residents find comforting and acceptable. Thus opportunities for meditation and reflection and for contact with local and religious and spiritual leaders should be provided.

  Residents should be encouraged to express their wishes about what they want to happen when death approaches and to provide instructions about the formalities to be observed after they have died. Cultural and religious preferences must be observed.

  There should also be an openness and willingness on the part of staff to talk about dying and death and about those residents who have recently died. Staff themselves, especially young and inexperienced staff, may also need support at such times. The needs of family and friends should also be attended to. Because each individual will have their own preferences and expectations, it is impossible to lay down standards for observances and practices which can apply in every circumstance. However it is essential for homes to have clear policies and procedures about how they ensure that residents' last days are spent in comfort and dignity and that their wishes are observed throughout.

DYING AND DEATH (STANDARD)

Outcome

  Service users are assured that at the time of their death, staff will treat them and their family with care, sensitivity and respect.

STANDARD 11

  11.1    Care and comfort are given to service users who are dying, their death is handled with dignity and propriety, and their spiritual needs, rites and functions observed.

  11.2    Care staff make every effort to ensure that the service user receives appropriate attention and pain relief.

  11.3    The service user's wishes concerning terminal care and arrangements after death are discussed and carried out.

  11.4    The service user's family and friends are involved (if that is what the service user wants) in planning for and dealing with increasing infirmity, terminal illness and death.

  11.5    The privacy and dignity of the service user who is dying are maintained at all times.

  11.6    Service users are able to spend their final days in their own rooms, surrounded by their personal belongings, unless there are strong medical reasons to prevent this.

  11.7    The registered person ensures that staff and service users who wish to offer comfort to a service user who is dying are enabled and supported to do so.

  11.8    Palliative care, practical assistance and advice, and bereavement counselling are provided by trained professionals /specialist agencies if the service user wishes.

  11.9    The changing needs of service users with deteriorating conditions or dementia—for personal support or technical aids—are reviewed and met swiftly to ensure the individual retains maximum control.

  11.10    Relatives and friends of a service user who is dying are able to stay with him/her, unless the service user makes it clear that he or she does not want them to, for as long as they wish.

  11.11    The body of a service user who has died is handled with dignity, and time is allowed for family and friends to pay their respects.

  11.12    Policies and procedures for handling dying and death are in place and observed by staff.





 
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Prepared 26 July 2004