Select Committee on Health Minutes of Evidence


Annex B:

NEW OPPORTUNITIES FUNDED PROJECTS IN CHILDREN'S PALLIATIVE CARE— NORTH WEST

Lead organisation:Liverpool Crossroads Caring for Carers Ltd
Grant scheme name:Liverpool & South Sefton Children's Palliative Care Partnership.
Strand:Childrens Homebased
Grant awarded:£399,944
Grant Scheme Description:


The scheme, to be delivered by Liverpool Crossroads Caring for Carers, Home Based Strand, will take place within the Liverpool area over three years. Scheme aims to build on existing general and specialist paediatric community nursing teams to develop palliative care services. To be achieved by specially trained Care Support Workers to support and provide respite to children and carers within the home and out of hour's support and on call advisory services. The beneficiaries are the parents, siblings and carers.

Lead organisation:Eden Valley Primary Care Trust
Grant scheme name:New Opportunities Fund Respite Care Project
Strand:Childrens Homebased
Grant awarded:£400,000
Grant Scheme Description:


The scheme will run for three years and aims to provide flexible respite care to children in North Cumbria. The scheme will serve an estimated 40 families a year with each family being offered a carer specifically trained to meet the child's needs. Families will be offered hours on a weekly basis, which can be accumulated, to enable care to be offered where and when families require it. It will also provide families with a co-ordinated service across different statutory and voluntary agencies.

Lead organisation:Gaddum Centre
Grant scheme name:Children & Families Bereavement Service (Manchester & Salford Area)
Strand:Childrens Bereavement
Grant awarded:£74,777
Grant Scheme Description:


The Gaddum Centre will manage the scheme over three years, to enhance Gaddum Centre's existing Children & Families Bereavement Service by providing a holistic bereavement service—including information, advice, support, practical help and counselling—to children and families within the Manchester and Salford PCTs, who are experiencing an extreme grief reaction to the death of a child due to terminal illness.

Lead organisation:Claire House Children's Hospice
Grant scheme name:Specialist Paediatric Palliative Care At Claire House Children's Hospice
Strand:Childrens Hospice
Grant awarded:£650,000
Grant Scheme Description:


To assist nurse staffing in providing hospice care to 100 children and their families from Cheshire, Merseyside, North Wales and the Isle of Man and to a further 50 bereaved families. The hospice offers individual supportive care, specialist symptom control, respite care, physiotherapy, complementary therapies and family and sibling support after bereavement.

Lead organisation:Derian House Children's Hospice
Grant scheme name:24 Hour Emergency Palliative Care for Children in the Community
Strand:Childrens Homebased
Grant awarded:£380,914
Grant Scheme Description:


The scheme will run for three years and provide a 24-hour at home nursing service for terminally ill children and their families. Care will be undertaken through the employment of three paediatric nurses and extend the current palliative care packages provided by Derian House. A play specialist will provide sensory distraction for the child and a physiotherapist will provide support, advice and assistance in alleviating the stress and pain involved in moving and handling children.

Lead organisation:Gaddum Centre
Grant scheme name:Children & Families Bereavement Service (Trafford North, Trafford South & Stockport Area)
Strand:Childrens Bereavement
Grant awarded:£74,777
Grant Scheme Description:

The Gaddum Centre will manage the scheme over three years, to enhance Gaddum Centre's existing Children & Families Bereavement Service by providing a holistic bereavement service—including information, advice, support, practical help and counselling—to children and families within the Trafford North, Trafford South and Stockport PCTs, who are experiencing an extreme grief reaction to the death of a child due to terminal illness.

Lead organisation:Claire House Children's Hospice
Grant scheme name:Wirral and West Cheshire Home Based Palliative Care for Children
Strand:Childrens Homebased
Grant awarded:£400,000
Grant Scheme Description:


Aim is to provide home based palliative care services across Wirral & West Cheshire for children with life limiting/threatening conditions by extending existing services in West Cheshire & creating new services in Wirral. Proposed service will be delivered through a networked approach consisting of community & specialist nurses, support carers & partners involvement. Beneficiaries are the children & their carers.

Lead organisation:Derian House Children's Hospice
Grant scheme name:Children's Hospice Provision
Strand:Childrens Hospice
Grant awarded:£649,971
Grant Scheme Description:


The grant scheme will be for 36 months and will be delivered at the hospice in Lancashire. The aims of the service are to provide holistic, multi-disciplinary care for children with life-limiting illnesses and their families. It aims to provide a homely environment where both child and family can achieve the best quality of life remaining. The hospice supports the family and child through the experience of pre and post bereavement.

Lead organisation:St Helens NHS Primary Care Trust
Grant scheme name:St Helen's, Knowsley, Halton, Warrington Children's Palliative Care Partnership
Strand:Childrens Homebased
Grant awarded:£399,973
Grant Scheme Description:


The grant scheme, to be delivered by St Helens NHS PCT, home based strand, will take place in the St Helens and Knowsley, Halton and Warrington area, over three years. Scheme aims to develop a co-ordinated home based, family centred, palliative care service for children with life limiting/threatening conditions. Multi-disciplinary nursing team will consist of paediatric nurses, social worker and a nurse consultant. Beneficiaries are the children and their families/carers.

Lead organisation:Ashton, Leigh and Wigan Primary Care Trust
Grant scheme name:Paediatric Palliative Care at Home Team
Strand:Childrens Homebased
Grant awarded:£399,176
Grant Scheme Description:


A three year grant scheme aimed at improving home based palliative care services for children with life limiting conditions. It will involve the creation of a multi-disciplinary Palliative Care Team to provide support services to children, their families and carers. The scheme will specifically target excluded communities, such as, ethnic minorities. It will benefit children and families in Wigan Borough, Ashton, Leigh and Wigan PCT will deliver the grant.

Lead organisation:Stockport Primary Care Trust
Grant scheme name:Home Based Palliative Care Services for Children in Stockport
Strand:Childrens Homebased
Grant awarded:£399,878
Grant Scheme Description:


Children's Palliative care—home-based strand. This 33-month bid is to establish a new multi-disciplinary team to provide a round-the-clock co-ordinated care programme for children with life-limiting conditions and their families in Stockport. Services will include nursing, care co-ordination, training for carers, home help, play therapy, nutritional advice, day and night respite care, psychological support and family support. Stockport PCT will lead partnership bid of two statutory health bodies and two charities.

Lead organisation:Liverpool Personal Service Society (incorporated)
Grant scheme name:Liverpool and South Sefton Children's Palliative Care Bereavement Team
Strand:Childrens Bereavement
Grant awarded:£74,856
Grant Scheme Description:


The grant scheme will take place within the Liverpool area over three years. Scheme aims to provide a bereavement team and counselling support service to assist families who have experienced, or are likely to experience the death of a child. Activities involve distinctive palliative care bereavement service for adults and siblings and high quality counselling and therapeutic services. The beneficiaries are the parents and siblings.

Lead organisation:Zoe's Place Trust
Grant scheme name:Zoe's Place (Liverpool)
Strand:Childrens Hospice
Grant awarded:£273,000
Grant Scheme Description:


36 months core funding for Zoe's Place (Liverpool) baby hospice for 0-5 year olds in the UK. Funding is to sustain and improve its care, especially by securing the best possible staff. It will benefit up to 250 0-5 year olds, siblings and carers per annum. It will be delivered by the registered charity Zoe's Place Trust.

Lead organisation:Central Manchester PCT
Grant scheme name:Manchester Children's Community and Home Support Team
Strand:Childrens Homebased
Grant awarded:£393,162
Grant Scheme Description:


Central Manchester PCT (CMPCT) in partnership with Francis House Children's Hospice to provide a 24 hour, home based nursing support service within a multi-disciplinary framework. Estimated beneficiaries are 382.



 
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Prepared 26 July 2004