Annex C:
PALLIATIVE CARE SERVICES IN THE NORTH EAST
NORTHUMBERLAND AND
TYNE AND
WEAR
Hospice Provision
Martin House, Clifford, West Yorkshire
St Oswald's, Gosforth,
Children from Newcastle also access hospice
provision from Butterwick House (Stockton on Tees), Eden Valley
(Carlisle) (a discrete children's area within an adult hospice)
and Derian House (Chorley, Lancashire).
Community Services
A range of services provided across the area
include respite care, children's community nursing and paramedical
services, children with disability social work teams specialist
outreach for cystic fibrosis, oncology, allergy, muscular dystrophy,
renal and cardiac (Newcastle) and services for children with complex
needs and life limiting disorders.
CLIC nurses provide a service to children and
young people with cancer and leukaemia and Sargent Cancer care
provide social work support in Newcastle. Bereavement services
are provided by a community team (Northumberland and N. Tyneside),
the Barnados Orchard project and Children's Macmillan service
(Newcastle) and Sunderland Counselling Service, Sunderland/South
Tyneside.
Local Authority residential short break care
services and outreach services provided across the area include
eg Grove House, Gateshead and Seaview Road West, Sunderland which
can provide residential short-breaks for some children with complex
health care needs.
Rainbow Trust, Hexham Northumberland provides
residential and outreach services to Northumberland, Tyne and
Wear.
COUNTY DURHAM
AND TEES
VALLEY
Hospice Provision
Butterwick House, Stockton on Tees.
St Oswalds, Gosforth,
Martin House, Clifford, West Yorkshire.
Community Services
Respite provision in County Durham and Darlington
provided through Harewood House, Barnado's, Park House, and the
ARC (private nursing and respite). North Durham uses Park House,
Heathways in Seaham, Barnado's, and Lowsteads in Hexham to provide
respite. Tees uses the ARC and Piper Knowle facilities, an NHS
respite care home. North Tees and Hartlepool access the ARC, Piper
Knowle, and Hartburn Lodge a social services respite facility,
a continuing care team providing home based respite care. Children's
community nursing services, specialist services for respiratory
and diabetes. Other voluntary agencies in the area are Crossroads
and Rainbow Trust, Hexham.
Durham
Paediatric Home care ream in North Durham who
outreach from University Hospital of North Durham. They also provide
care for children who wish to die at home-based on the child and
a family need at that time.
Tees
Community care for these children and young
people, which includes ventilatory support, is delivered within
the Tees and North East Yorkshire Trust but managed by Children's
Community manager based within South Tees NHS Acute Hospitals
Trust.
Health care assistants are trained to work in
the home and packages of care are designed in partnership with
social services and education with hours allocated according to
need. Assessment and ongoing support of these packages is through
the Children's Community Manager.
Partnership with the Children's Intensive care
unit at James Cook university hospital is also ongoing for ventilator
dependent children. These children may have/been receiving care
in the South Tees area or may be cared for at the Newcastle upon
Tyne regional centre but community support is available within
South Tees.
The children's acute service at James Cook University
Hospital employs children's specialist nurses for Cystic Fibrosis
and Asthma who operate between the acute service and the community.
These nurses offer care to families should the child/young person
needs become palliative.
There is also a children's community team (in
partnership between Children's acute service and TNEY—learning
disabilities service)
A local centre (Voluntary) "Zoe's Place"
offer palliative care and support to babies and their families.
NORTH AND
EAST YORKSHIRE
AND NORTHERN
LINCOLNSHIRE
Hospice Provision
Martin House, Wetherby, West Yorkshire
Butterwick House, Stockton on Tees
St. Andrews (an adult hospice with a 4 bedded children's respite
unit attached), Grimsby.
Community Services
Scarborough and North East Yorkshire have a
children's bereavement councillor for siblings and staff training.
Northallerton have a children's community nursing service which
includes a children's Macmillan nurse. It provides an out of hours
service when children are in the terminal stage of their disease.
Harrogate—outreach from the children's unit with adult district
nurses, agency nurses and support workers. Social services run
residential respite services and voluntary agencies facilitate
home respite services. Scarborough and North East Yorkshire have
a children's community nursing team with 24 hour on call for terminal
care. Respite care and voluntary agencies. North East Lincs have
acute and specialist outreach from Sheffield Children's Hospital.
Children's community nursing. Specialist outreach services include
epilepsy, oncology, and surgery.
The co-ordination of palliative care services
for children is a complex issue and it is important to stress
the role of cancer networks and the strategic plans that they
have for palliative care including children's palliative care
in each network area. These take a tiered approach to services
ensuring that specialist and generalist tiers ar in place. However,
for individual children the GP or other members of the primary
care team often co-ordinate packages of care and some of the NOF
services which have developed have enabled a more developed case
management approach to be constructed, often using staff with
more specialist skills to fulfil this function.
WEST YORKSHIRE
STRATEGIC HEALTH
AUTHORITY
Hospice Provision
Martin House, Wetherby, West Yorkshire
Community Services
Children's community nursing and other services
are provided across the area including;
— Airedale has social services respite
provision, outreach from Leeds Health care service for oncology
services, and acute outreach.
— Bradford has social services respite
provision, children's community nursing with other therapy services
eg physiotherapy and other professions allied to medicine (PAMS)
and psychology support, outreach and links to regional services
in Leeds.
— Leeds has a comprehensive children's
community team and provides home respite provision, and residential
respite. Specialist services for epilepsy, neonatal, muscular
dystrophy and endocrine disorders. CLIC nurses provide a service
to children and young people with cancer and leukaemia, and Sargent
Cancer care provide social work support in Leeds.
— Wakefield has respite care both residential
and home, and a children's community nursing team.
— Dewsbury has outreach and children's
community nursing, with care provided between hospital and children's
community nurses and health visitors.
There are currently nine secondary in-patient
children's services in West Yorkshire all offer admission for
acute general paediatric medicine and surgery there is wide variation
in the services offered for planned surgical procedures and for
specialised paediatric care.
Of the five health economies across the patch
all have community paediatric nursing services, with two offering
a comprehensive service on a twenty-four hour/seven days a week
basis.
There is one hospice in a neighbouring Strategic
Health Authority that the economies of West Yorkshire have service
level agreements with. Currently sixty-eight children and young
people from West Yorkshire access the hospice.
There are two charitable trusts raising monies
for additional hospice provision in Bradford and Huddersfield.
These are independent of statutory organisations and no agreement
has been made with the NHS to fund any additional hospice provision.
The proposal for Children and Women's Hospital
in Leeds will have significant impact on future developments of
services for this client group. The local economies have agreed
to service evaluation and strategic development to ensure that
children and women are offered services that reflect current and
future anticipated need, that are patient centred and offered
as close to home as possible.
SOUTH YORKSHIRE
STRATEGIC HEALTH
AUTHORITY
Hospice Provision
Martin House, Wetherby, West Yorkshire
Another children's hospice in planning (Bluebell Wood) Doncaster
Community Services
Children's community nursing services and other
services including;
— Sheffield has a palliative care team
that outreaches from the Children's Hospital and supports other
local services. There is also a children's community nursing team.
— Barnsley and Rotherham both have
children's community nursing teams, one of which includes a children's
Macmillan nurse, providing 24 hour terminal care.
— Doncaster has a children's community
nursing team that works in partnership with the Macmillan team.
Specialist services include cystic fibrosis,
diabetes, gastroenterology and haemophilia. CLIC nurses provide
a service to children and young people with cancer and leukaemia
and Sargent Cancer care provide social work support from Sheffield
Children's Hospital.
There is also respite care provision in Rotherham
(joint provision with the local authority) which will be reviewed
as the local NOF project is evaluated. On an individual basis,
children with specific needs are considered via high cost funding
packages (e.g. ventilator dependant children at home).
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