Annex D:
NEW OPPORTUNITIES FUNDED PROJECTS IN CHILDREN'S
PALLIATIVE CARE—NORTH EAST
| Lead organisation: | Northumberland NHS Care Trust
|
| Grant scheme name: | Children's Palliative Support (ChiPS)
|
| Strand: | Childrens Homebased
|
| Grant awarded: | £400,000
|
| Grant Scheme Description: |
|
Palliative Care for Children—Home based Strand for three
years in Northumberland and North Tyneside—will involve
training child health care workers to provide skilled care to
children with life-limiting illness with complex medical needs.
They will be based in several settings, including home, community
and residential facilities in order to increase the provision
of high quality 24 hour respite care to children and families.
The scheme will be delivered by Northumberland NHS Care Trust.
| Lead organisation: | Butterwick Limited
|
| Grant scheme name: | Butterwick Children's Hospice
|
| Strand: | Childrens Hospice
|
| Grant awarded: | £435,057
|
| Grant Scheme Description: |
|
The grant scheme is for 36 months and will cover North East England.
The aims are to sustain current levels of service provision and
enable service development to be undertaken. Activities include
family consultation, a sibling support programme, exploring options
for transition care planning and expanding educational programme.
| Lead organisation: | Gateshead Metropolitan Borough Council
|
| Grant scheme name: | Gateshead and Newcastle Children's Palliative Care Respite Service
|
| Strand: | Childrens Homebased
|
| Grant awarded: | £400,000
|
| Grant Scheme Description: |
|
Scheme in partnership with statutory health bodies in Gateshead
and Newcastle to set up a respite care service to children with
life-limiting illnesses and their families in Gateshead and Newcastle.
Children's link workers will be trained within the Children's
Community Nursing Teams to offer 24 hour, flexible care in a variety
of settings.
| Lead organisation: | City Hospital Sunderland NHS Trust
|
| Grant scheme name: | Child and Family Bereavement Service
|
| Strand: | Childrens Bereavement
|
| Grant awarded: | £74,636
|
| Grant Scheme Description: |
|
The scheme will provide a bereavement service for children and
families. Bereavement counsellor(s) will support families before,
during and after the death of a child. They will also provide
training, advice and support to the community nursing team. This
service is seen as being integral to the care co-ordination system
ensuring that families receive a holistic package of care. The
grant scheme will cover the Sunderland and South Tyneside areas.
| Lead organisation: | City Hospitals Sunderland, NHS Trust
|
| Grant scheme name: | Community Based Palliative Care for Children
|
| Strand: | Childrens Homebased
|
| Grant awarded: | £379,465
|
| Grant Scheme Description: |
|
The scheme provides a home-based service for children and their
families. The scheme will create a team of community nurses and
children's link and support workers to provide practical help
and individual care packages for families. The scheme will be
regionally co-ordinated by the Tyne & Wear complex needs group
to provide an out-of-hours service, respite care and sustained
support assisting children and families access a range of services.
| Lead organisation: | Barnardo's (Northumberland & North Tyneside)
|
| Grant scheme name: | Children and Families Bereavement Support Service, Northumberland/North Tyneside
|
| Strand: | Childrens Bereavement
|
| Grant awarded: | £75,000
|
| Grant Scheme Description: |
|
The Orchard Project will establish a bereavement service in Northumberland
and North Tyneside. A bereavement worker will work alongside a
Home-based team in the same area. The bereavement specialist on
the team will provide practical, emotional and social support
pre, peri and post death for families of children with life-limiting
illnesses.
| Lead organisation: | Barnardo's
|
| Grant scheme name: | Children and Families Bereavement Support Service Gateshead and Newcastle
|
| Strand: | Childrens Bereavement
|
| Grant awarded: | £75,000
|
| Grant Scheme Description: |
|
This scheme by the Barnardo's Orchard Project will establish a
bereavement service in Gateshead and Newcastle. A bereavement
worker will work alongside a Home-based team in the same area.
The bereavement specialist on the team will provide practical,
emotional social support pre, peri and post death, for families
of children with life-limiting illnesses.
| Lead organisation: | North Tees PCT
|
| Grant scheme name: | Making Transitional Care Work
|
| Strand: | Childrens Homebased
|
| Grant awarded: | £355,177
|
| Grant Scheme Description: |
|
The scheme will support young people in their transition from
children's to adult's services. The scheme will create a team
of four to co-ordinate individually tailored services for young
people with complex palliative care needs in Easington, Stockton-on-Tees
and Hartlepool. It will enable a smooth transition to take place
between children's and adult services, providing families with
a dedicated worker. It will also provide a database for the identification
of clients.
| Lead organisation: | Middlesbrough Primary Care Trust
|
| Grant scheme name: | Children's Community Palliative In—Reach Team For South Tees
|
| Strand: | Childrens Homebased
|
| Grant awarded: | £399,975
|
| Grant Scheme Description: |
|
This scheme will establish a 24/7 specialised palliative care
service, improving the range of care options and co-ordinating
different agencies' provision. Services offered to children with
life-limiting illness in South Tees and their families will include
respite, sitting service, support to carers and families, crisis
intervention, equipment provision, assessment, information and
liaison. Three nurses employed by the NHS Trust will deliver the
scheme.
| Lead organisation: | Zoe's Place Trust
|
| Grant scheme name: | Zoe's Place (Middlesbrough)
|
| Strand: | Childrens Hospice
|
| Grant awarded: | £600,115
|
| Grant Scheme Description: |
|
This scheme provides core funding towards the revenue costs of
a new five cot hospice for 0-5's in Middlesborough which will
provide residential, respite and terminal care specifically for
0-5's and bereavement counselling. It is modelled on Zoe's Place
in Liverpool. The scheme is expected to benefit up to 250 children,
siblings and carers per annum.
2. HEALTH SELECT COMMITTEE INQUIRY INTO PALLIATIVE
CARE: PALLIATIVE MEDICINE WORKFORCE
At the hearing I also undertook to provide the Committee
with consultant workforce figures and projections based on figures
from the Association of Palliative Medicine and additional information
regarding contractual arrangements for Out Of Hours services.
Questions 69-71 and 84-85 of the transcript of uncorrected evidence
refer.
As I mentioned when giving evidence to the Committee, workforce
figures obtained from the Association for Palliative Medicine
(APM) are likely to give a more accurate picture of the overall
workforce than those collated by the Department of Health. This
is largely due to the fact that some hospice-based consultants
do not have NHS contracts and are not counted in the Department's
workforce survey.
The attached table sets out the projected workforce to 2015
and take account of the likely number of consultants entering
the workforce who have completed their specialist registrar training
and the numbers of anticipated retirements. The projections are
based on 2002 figures as these are considered to be the most robust
available. These figures have been agreed with the Department
of Health's workforce review team and officers of the Association
of Palliative Medicine. They have also been shared with Dr Ann
Naysmith who considers the projections to be acceptable.
The 2002 APM figure gives a total of 237 palliative care
consultants in England (a whole time equivalent of 169). The total
headcount figure for 2008 is projected to be 358 (an increase
of 51.1%). This will equate to a workforce of 255 whole time equivalents
(an overall increase of 50.9%).
Projecting the 2002 baseline to 2015 we expect that the number
of whole time equivalent staff is likely to be well over double
the 2002 figure.
It should be remembered, as I mentioned to the Committee,
that there are some caveats associated with these projections.
In particular many of the trainees in palliative medicine are
women who have already indicated that they will wish to work part-time
when they become consultants. This may affect the projections
of whole time equivalents.
I am however pleased to be able to report that these figures
project an expansion of the overall consultant workforce. This
is particularly important as:
— There are currently around 200 Non-consultant
Carer Grade (NCCG) staff in palliative medicine. Over time at
least half of these will almost certainly need to be replaced
by consultants;
— Consultants in palliative medicine are currently
spread across approximately 170 hospices, as well as working in
acute Trusts and in the community, and;
— There is likely to be an increase in "non-cancer"
work.
I also undertook to provide additional information regarding
future contractual arrangements for Out Of Hours (OOH) care. Although
it is likely that most GPs will opt-out of their responsibility
to provide OOH care by December, many will continue to provide
out of hours services, either working directly for Primary Care
Trusts, or for provider organisations, such as GP co-operatives,
or private organisations, which provided out of hours care for
most patients before the introduction of the new contract.
It is entirely possible for PCTs to negotiate contracts that
offer an appropriate degree of security for providers while at
the same time ensuring that services can be developed over time,
and integrated with other elements of unscheduled care, such as
accident and emergency services.
PCTs are therefore already building into contracts commitments
to develop service provision, including the integration of services,
and development of skill mix solutions. Providers will therefore
be commissioned to provide OOH services that meet national quality
standards, and it is unlikely that an inflexible model of care,
without the potential for development, could sustain this.
I hope you find this information helpful.
12 May 2004
Table 1
PROJECTION OF TRAINED PALLIATIVE SPECIALISTS
|
| Year | Headcount
| Whole Time Equivalent |
|
| 2002 | 237
| 169 |
| 2003 | 243
| 173 |
| 2004 | 265
| 189 |
| 2005 | 289
| 205 |
| 2006 | 309
| 220 |
| 2007 | 336
| 239 |
| 2008 | 358
| 255 |
| 2009 | 393
| 279 |
| 2010 | 418
| 297 |
| 2011 | 441
| 313 |
| 2012 | 463
| 328 |
| 2013 | 487
| 346 |
| 2014 | 513
| 364 |
| 2015 | 539
| 383 |
|
Source: Association of Palliative Medicine
| 
