Annex
A FRAMEWORK FOR AN ADULT ALLERGY NETWORK
IN THE NORTH WEST:
THE NORTH WEST INTEGRATED CLINICAL ALLERGY SERVICE (NWICAS)
1. WHAT IS
ALLERGY?
1.1 The specialty of Clinical Allergy involves
the management of a wide range of conditions that cross the organ-based
disciplines. Allergic disease is increasing in prevalence at the
rate of 50% per decade [1-3]. Most allergic disorders are chronic
and they may be debilitating, involving periods off work or school
(eg asthma, urticaria and angioedema). Furthermore, some of the
conditions may be life threatening (eg nut anaphylaxis).
1.2 Allergy is a clinical speciality in
which investigations are important but, as sensitisation may not
always indicate disease, the clinical history is paramount. The
most common clinical conditions managed by Clinical Allergists
include asthma, eczema, rhinitis (seasonal and perennial), bee
and wasp venom allergy, food allergy, latex allergy, urticaria
and angioedema, drug allergy, anaphylaxis and food intolerance.
1.3 The Department of Health has included
Specialist Allergy in the national list of services that require
specialised/collaborative commissioning arrangements (see section
11).
2. CHILDREN
2.1 This document does not specifically
refer to allergy services for children. However, some of the staff
working with adults also have clinical sessions in children's
facilities. This would suggest that a broadly similar model to
that proposed for adults (see paragraphs 12.5-7 and the table
following) would be appropriate for children. The foci for this
might be Alder Hey Children's Hospital and/or the Manchester Children's
Hospitals.
3. PREVALENCE
OF ALLERGIC
DISEASE
3.1 There has been a considerable increase
in the prevalence of the common allergic disorders (asthma, eczema
and rhinitis) in the last two to three decades [1-3]. Recent data
from the North-West of England suggest that one third of the population
now suffers from allergic disease and that almost half of the
population has allergic sensitisation to one or more common allergens
(eg house dust mite, cat, dog, grass pollen) [4]. Superimposed
on this there has been a rapid rise in serious, life-threatening
allergic disease.
3.2 Anaphylaxis has become increasingly
common, occurring in one in 3,500 of the population per annum
in 1994, and is rising [5, 6]. Peanut and nut allergy affects
over 1% of children [7-9] and latex allergy, which was extremely
rare before 1980, now affects up to 8% of health care workers
[10, 11].
4. PATIENTS'
PERSPECTIVE
4.1 The current situation is highly unsatisfactory,
with long waiting times exacerbating discomfort and distress.
There is no allergy service in many parts of the country (source:
British Allergy Foundation) and patients are not being appropriately
identified and treated.
4.2 There is little or no provision for
primary care allergy testing in the community and no community
care for allergy sufferers. This results in patients not knowing
where to go for advice. Furthermore, patients often want to take
control of their disease by, for example, using allergen avoidance
procedures rather than drugs but there is no provision for the
assessment of their allergic status and a lack of appropriate
guidance.
4.3 Patients with severe, multi-system conditions,
such as allergy, need to see one person who can deal with the
cause of the condition. The current system is too reliant on organ-based
specialists with, for example, a patient seeing an ENT specialist,
an immunologist, a respiratory physician and/or a dermatologist,
as well as their general practitioner and various Accident and
Emergency doctors. It should be possible, at secondary care level,
for them to see a single clinician with a recognised qualification
in allergy.
5. TRAINING IN
ALLERGY
5.1 The management of allergic conditions
requires appropriate expertise. Unfortunately, little training
is given on this subject in medical schools. Before the Calman
changes in training, allergy was part of the Clinical Immunology
and Allergy training programme, distinct from Immunology related
to Pathology. Training programme changes and the delay in Clinical
Allergy being included on the Specialist List have resulted in
uncertainty and a loss of potential SpRs. A new, objective-based,
Royal College of Physicians approved, Allergy training programme,
leading to the Certificate of Completion of Specialist Training
(CCST), was recognised for the first time in June 1999.
5.2 Clinical Allergy is currently a small
speciality, with a great need for more SpRs and consultants if
it is to meet the need.
6. CURRENT
PROVISION OF
SERVICES
6.1 Most patients with asthma, eczema and
rhinitis should be able to be managed adequately by primary care
and district hospital organ-based specialists. However, allergy
testing, which is necessary for the planning of allergen avoidance,
is often unavailable in district general hospitals. As a consequence,
advice on allergen avoidance is frequently inadequate. In addition,
immunotherapy and specialised bronchial challenge in suspected
occupational asthma are not generally available in district general
hospitals.
6.2 Acute and chronic urticaria and angioedema
are difficult conditions to manage and, whilst the majority do
not have an allergic basis, the more severe cases need to be carefully
investigated to exclude an allergic cause.
6.3 Anaphylaxis is becoming increasingly
common and is potentially life threatening. Although acute attacks
are managed in accident and emergency departments, the full evaluation
of patients to identify the cause and then the availability of
appropriate advice on allergen avoidance are essential. In addition,
training in the use of the Epipen (self-administered adrenalin
injection) can be life saving.
6.4 Despite the obvious need, the current
provision of allergy services across the UK is extremely poor
[12]. The British Society for Allergy and Clinical Immunology
(BSACI) held discussions with the Department of Health (Allergy
Task Force) to highlight the need and to press for improved services.
This initiative is being taken forward by the National Allergy
Strategy Group (NASG) launched at the Royal College of Physicians
in May 2001. Current services and proposals for allergy care have
been outlined [13]. There is a shortage of consultant allergists.
Full-time services led by consultant allergists are virtually
restricted to London and the South of England.
7. FULL-TIME
SERVICES LED
BY CONSULTANT
ALLERGISTS ACROSS
THE UK
7.1 The six centres in the UK currently
providing a full-time allergist-led NHS service are located mainly
in the South of England. These comprise:
Addenbrooke's Hospital, CambridgeDr
Pamela Ewan
Glenfield Hospital, LeicesterDr
Martin Stern
Guy's Hospital, LondonProfessor
Tak Lee, Dr Christopher Corrigan
Royal Brompton Hospital, LondonProfessor
Stephen Durham
St Mary's Hospital, LondonDr
Douglas Robinson
Southampton General Hospital, SouthamptonProfessor
Anthony Frew.
8. SERVICES IN
THE NORTH
WEST OF
ENGLAND
8.1 There is no full-time allergist-led
NHS service provided in the North West. The provision of services
in the North West is inadequate as evidenced by the long waiting
times of patients referred to the patchy service that does exist.
Most patients with allergic disease in the North West never see
an allergist.
8.2 The only consultant allergist-led (part-time)
services for adults in the North West are based at the Royal Liverpool
and Broadgreen University Hospitals and at Wythenshawe Hospital
in Manchester.
8.3 A detailed list of clinical services
provided by organ-based specialists and immunologists with an
interest in allergy can be found in the British Society of Allergy
and Clinical Immunology booklet [16].
8.4 Patients and GPs have difficulty in
accessing the currently available services and, as a result, desperate
patients seek help from non-validated sources (eg Vega test, homeopathic
immunotherapy, hair testing) [14].
9. ACADEMIC ALLERGY
IN THE
NORTH WEST
9.1 In the North West Lung Centre at Wythenshawe
Hospital in Manchester there is a large Allergy and Asthma Research
Group led by Ashley Woodcock, Professor of Respiratory Medicine,
and Adnan Custovic, Professor of Allergy. This group produces
original research to a high international standard and is a world-leading
centre in the area of indoor allergen research (70 peer-reviewed
allergy publications; more than 100 invited presentations at national/international
meetings; more than £2.5 million research funding, in the
last five years). Dr Richard Pumphrey, Consultant Clinical Immunologist
(Manchester Royal Infirmary), actively researches and publishes
in anaphylaxis.
10. MODEL OF
ALLERGY CARE
10.1 An ideal model of allergy care has
already been developed [12] and is presented in a modified form
below:
Tier 1 Primary care will
deal with mild allergic diseases.
Tier 2a Organ-based and
other specialists with an interest (dermatologists, respiratory
physicians, ENT specialists and immunologists) will provide a
district-based referral framework, with referral to a local specialist
allergy service.
Tier 2b The local specialist
allergy service will be provided either by a district-based allergist
or, on a sessional basis, from the Regional Centre.
Tier 3 Regional allergy
centres: these would deal with the more complex and severe disorders
for the population of the North West. They would also provide
some elements of a "tier 2a" service for their local
catchment area and a "tier 2b" service for a large area
because of the lack of such services across the area.
10.2 Currently in the North West there are
considerable deficiencies in all the proposed tiers:
The majority of general practitioners
have little or no training in the diagnosis and treatment of allergy.
The network of organ-based specialists
with an interest in allergy is small and insufficient to deal
with the demand.
No local allergy services are provided
by a district-based allergist.
There is no Regional Allergy Centre.
10.3 The immediate aim is to develop a Managed
Clinical Network in Clinical Allergy for the North West to provide
expertise, improve geographical equity of access to care and act
as an educational resource and training centre.
11. SPECIALISED
COMMISSIONING DEFINITION
11.1 Clinical Allergy is designated under
specialised commissioning arrangements where services to support
patients with rarer health conditions are planned and developed
to meet the needs of an appropriate population. A national review,
on behalf of the Department of Health, has been undertaken to
identify and define services that are deemed to be specialised.
The aim is to develop a consistent approach to the commissioning
(both planning and procurement) of specialist services at national,
regional and local levels. In total 36 specialist services are
identified, including "Allergy Services, Definition No 17".
12. CHARACTERISTICS
OF A
MANAGED CLINICAL
NETWORK IN
ALLERGY FOR
THE NORTH
WEST
12.1 The development of managed clinical
networks in clinical specialties has been progressing over a number
of years. There are a number of key issues which need to be addressed
including the role of the "hub" or "centre"
in leading the network and setting the culture, the clinical governance
issues of providing services or linking with services at other
locations and the management of staff and physical assets.
In Scotland, a significant amount of work has
been undertaken to progress managed clinical networks. Details
of this are published in the Scottish health circular MHS MEL(1999)10.
The circular suggests the following requirements:
Clarity about network management
arrangements is essential with one individual as overall lead.
Networks would produce a written annual report.
A defined network structure indicating
service delivery points should be developed.
It should have clear clinical and
service outcomes to be able to evaluate its effectiveness.
It should use a documented evidence
base and be committed to research and development.
It should be multidisciplinary and
include patient representation in its management arrangements.
It should have a clear policy of
dissemination of information to patients including those in primary
care settings.
All representatives in the network
should sign up to explicit principles of working.
It should have a quality assurance
programme to ensure consistency of standards.
It should develop links with universities
and colleges and promote education and training.
Audit data should be produced for
open review.
It should enable staff rotation to
occur as part of the programmes of continuous professional development.
It should be examined for the potential
to achieve better value for money.
The regional centre(s) will have a crucial role
in ensuring that effective links across the different sectors
of care are established and maintained.
The establishment of managed clinical networks
enables small and highly specialised services to be provided across
a range of organisations, by a multi-professional team guided
by clear reporting and accountability structures and working to
agreed protocols and policies.
12.2 A North West managed clinical network
would be comprised of a group of health professionals and organisations
from primary, secondary and tertiary care, working in a co-ordinated
manner to ensure the equitable provision of high-quality clinically-effective
services in allergy in the North West of England. The name proposed
for the network is the North West Clinical Allergy Service (NWICAS).
12.3 To meet the expected workload, a NWICAS
would require a minimum of:
three whole-time equivalent (WTE)
consultant allergists;
three WTE specialist allergy nurses;
two WTE dieticians; and
appropriate technical support.
12.4 Initially, given the geography of the
North West (for this clinical network probably also including
North Wales) and its population distribution, it is suggested
that the NWICAS should have three foci. The need for any additional
centres should be considered after the first few years of its
establishment.
12.5 Therefore, a model of service is proposed
for the North West based on three Specialist Allergy Centres.
They should be developed in parallel, with the commissioners for
the population of North Wales deciding to which of the three that
population should look. This service should ideally be based on
hospitals which can provide excellent out-patient, pulmonary function
and radiology services, with easy access to full immunology testing.
Furthermore, a strong academic basis would be a significant advantage.
12.6 The intention is to create a multi-disciplinary/multi-professional
network and ensure representation from patients' organisations
(eg those included in the "Allergy Umbrella"the
Anaphylaxis Society, British Allergy Foundation, National Asthma
Campaign, National Eczema Society). A chain of interconnected
people and processes, working in partnership to maximise the benefits
for all patients, would deliver care. Elements of the service
would be delivered on an outreach basis from the centres (eg the
immunotherapy service, with a specialist allergy nurse attending
satellite clinics, with appropriate local medical support and
facilities, to administer maintenance doses and thereby minimise
the patients' need to travel).
12.7 To ensure clarity about the network
management arrangements, the NWICAS would:
Identify a person with overall responsibility
for the operation of the Network.
Have a defined structure setting
out the points at which the service will be delivered to the patients
(initial development needs are outlined in the following table).
|
Level | Service Offered
| Development Needs |
|
Living at home, not using GP services | Advice
| Community pharmacists trained to give advice, in particular in the use of over-the-counter allergy medication
|
Local GP surgery | GP consultation, screening for allergic conditions (eg allergic rhinitis, asthma) and onward referral
| Joint protocols for managing allergic disease (eg anaphylaxis) with defined referral criteria agreed with network consultants
|
Specialist GP surgery | GP specialist undertaking allergy testing (eg skin-prick testing, spirometry) and nurse-led clinics held by visiting specialist allergy nurse
| Training in procedures; defined referral criteria; specialist allergy nurse exports expertise from the Regional Allergy Centre
|
Community hospital/ district general hospital/diagnostic and treatment centre
| Organ-based specialists with an interest (dermatologists, respiratory physicians, ENT and immunologists) to provide a district-based framework. In the long term, development of a local allergy service including outreach allergy clinics, skin-prick testing, anaphylaxis clinics and immunotherapy clinics.
| Agreed operating procedures and consultants with a major interest in allergy. In the long term, the appointment of a consultant allergist, core nursing staff with specialist allergy interests and skills and links to dietetic services. There are minimal equipment needs.
|
Specialist Allergy Centre (3 for the North West)
| More complex and severe disorders (asthma/rhinitis, anaphylaxis/acute allergy, food allergy, urticaria, angioedema, drug allergy*) and provide "tier 2b" for the local catchment area
| Specialist allergist, specialist allergy nurses and dietician with good communication networks enabling the transfer of patients to local services for the continuation of care (eg immunotherapy service)
|
|
*Although it was envisaged, in Good Allergy Practice [17],
that patients with non-specific/ polysymptomatic illness, which
would include patients with chronic fatigue syndrome and multiple
chemical sensitivity syndromes, would be assessed at allergy clinics,
this would have considerable implications in terms of time, personnel
and physical facilities.
13. THE PATIENT
PATHWAY
13.1 Primary care would continue to deal with the simpler
allergic diseases (such as mild hay fever). For more difficult-to-manage
diseases, the general practitioner would refer the patient to
either an organ-based specialist with a special interest or a
local consultant allergist for secondary care. The most complex
cases should be referred to the Specialist Centre from secondary
care. The Specialist Centre should also provide secondary care
for its local population.
13.2 Primary care
Primary care has a record of successfully managing chronic
conditions through the use of agreed protocols of care. In terms
of the provision of allergy care, the successful model of asthma
care could be extended to the extremely common diseases like allergic
rhinitis and angioedema/urticaria. Most patients with allergic
diseases should be able to be treated in primary care.
A more coherent approach to modifiable risk factors (eg allergen
exposure, environmental tobacco smoke exposure) will be encouraged
and protocol-driven direct access to hospital-based investigations
(eg specific challenge procedures) will be provided. Health professionals
(eg specialist allergy nurses), working at the interface between
primary and secondary care, will have an increasing role in implementing
treatment protocols (eg for rhinitis, asthma, urticaria) and patient
education and training (eg in the use of self-administered adrenaline
for the treatment of anaphylaxis).
13.3 Secondary care
Integrated multi-disciplinary/multi-professional care for
the patients with allergic disease, characterised by improved
collaboration between primary and secondary care, should bring
major benefits to patients. For example, it is now clear that
the appropriate use of the adrenalin self-injector saves lives.
Appropriate training has to be given not only to patients and/or
members of their family but also needs to be available to appropriate
individuals in schools and other high-risk environments.
13.4 Local collaboration
Primary Care and Hospital Trusts will be encouraged to collaborate
in the establishment of local allergy services. This will be achieved
either by utilising a consultant allergist and allergy specialist
nurse practitioner from the regional centre, on a sessional basis,
or by identifying an existing organ-based specialist with an interest
in allergy and enabling them to receive training in general allergy
to supplement their organ-based knowledge (the allergy nurse could
support the service on a sessional basis, eg by providing a local
immunotherapy service). Further support will be provided from
the specialist centre by a combination of liaison meetings, consultant-to-consultant
referrals and education meetings and by the development and implementation
of agreed protocols. Thus the local allergy network will act as
a source of advice to GPs, as a basic specialist service for those
aspects of allergy in which the local specialist is acknowledged
as being competent and as an access point to the centre.
14. SPECIALIST ALLERGY
CENTRES IN
THE NORTH
WEST
14.1 Out-patient service:
A core multidisciplinary/multi-professional team
of clinical allergists, specialist nurses and liaison psychiatrists,
physiotherapists and dieticians will provide the out-patient service;
a suite of consulting rooms is necessary to allow the team to
work together. A special room with skin-prick testing facilities
and for the administration of immunotherapy, with full resuscitation
facilities (drugs, IV lines and fluids, oxygen, nebulised bronchodilators,
a tilting couch and a cardiac arrest box) should be available.
Radiology, pulmonary function testing and immunology
and other blood tests should be readily available.
Allergy patients are usually complex and the taking
of a detailed history is essential. Realistically, a minimum of
45 minutes per new patient is required and 20-25 minutes per follow-up.
A reasonable plan for a consultant allergist would be to see four
new and one follow-up, three new and three follow-up or two new
and six follow-up patients per clinic session. Consultants would
train doctors (specialist registrars, GPs and other consultants)
and nurses in the out-patient clinics. One consultant can supervise
one person per clinic but must allocate extra time to review the
patients and teach trainees/students.
Specialist allergy nurses will perform skin-prick
testing and allergen immunotherapy, and in appropriate circumstances
take clinical histories, examine, and assess patients in the clinic
under the supervision of the doctor. In addition, they will explain
the literature for the diagnosed condition (eg allergen avoidance)
and how to use peak flow, food and symptom diaries. They will
be equipped to train patients in the use of an Epipen, and inhaler
devices, including those delivering adrenaline. They will also
deal with telephone enquiries from patients, guided by the doctor,
and give patients information on support groups (eg the Anaphylaxis
Campaign).
Dieticians are essential to the service as much
of the work deals with food allergy/suspected food allergy. The
dietician is needed to establish if a diet is nutritionally adequate
and to provide advice on exclusion diets.
Written management advice for a range of conditions
should be available for the patients to take away.
Waiting time for a routine out-patient referral
should be no longer than 13 weeks (currently patients in this
region wait up to three years).
Urgent referrals (particularly for anaphylaxis
patients) should be seen within one month (currently one to two
years).
Follow-up appointments should be available within
three months of the initial consultation to convey results and
their implications to patients in person. Some patients, having
had a definitive diagnosis made at their initial appointment may
collect the results of their confirmatory tests from their general
practitioner or be sent them directly by post. Although many patients
with anaphylaxis attend for annual (or bi-annual) review, most
other patients will be discharged after a single follow-up visit.
Pharmacy services are necessary to supply drugs
for skin testing, prepare capsules for challenge studies and to
give drug information to patients.
Adequate secretarial support must be provided
to aid communication with GPs.
It is likely that the spectrum of clinical conditions that
would present to the Specialist Allergy Centres in the North West
would be similar to those presenting to the service provided in
Southampton. However, our numbers would be larger due to a bigger
catchment area. The NWICAS would serve Cheshire and Mersey (2.4
million people), Greater Manchester (2.6 million people), Lancashire
and South Cumbria (1.6 million people) and North Wales (c0.5 million
people). In Southampton, the large Allergy and Asthma Research
Group currently provides two NHS out-patient allergy clinics per
week, plus a severe asthma clinic and a fortnightly medical immunology
clinic. The case mix is roughly asthma/rhinitis 20%, anaphylaxis/acute
allergy 10%, food allergy 15%, urticaria/angioedema 30%, drug
allergy 5%, the remaining 20% being immunological problems, chronic
fatigue and bowel disturbance. They also run an immunotherapy
service in parallel with the clinics, managing approximately 300
patients at any one time.
14.2 In-patient and day case service
Facilities for day cases will be available (this
may be in the out-patients department) where patients undergoing
challenge tests can remain all day (with appropriately trained
nursing staff).
Access to in-patient beds should be available
for the occasional patient with adequate cover from junior
medical staff.
Allergists will also be expected to provide a
consultation service for other specialists, particularly in respiratory
medicine, ENT, dermatology, cardiology and general medicine, as
patients with allergic conditions will be admitted under these
specialties (eg a patient with an anaphylactic reaction may be
admitted overnight on the acute medical take).
14.3 Network co-ordination and leadership
The Centres, in collaboration with each other, will lead
the development of clinical guidelines and protocols for all levels
of care in the network and will co-ordinate the audit of their
use.
15. TEACHING AND
TRAINING IN
THE NETWORK
15.1 The education and training potential of the network
will be used in full through exchanges between those working in
the community and primary care and those working in hospitals/the
specialist centres. In particular, Consultant Allergists will
be expected to co-ordinate and undertake multi-professional teaching
including:
Educating undergraduate medical students.
Provision of training for Specialist Registrars
in allergy.
Training of Senior House Officers (particularly
in the A&E department) must be a regular commitment, as many
patients with allergic reactions present to A&E.
Training of other professionals, especially practice
and specialist hospital nurses, but including pharmacists, dieticians
and others.
Postgraduate teaching for General Practitioners
and organ-based specialists in DGHs.
16. ACADEMIC ALLERGY
IN THE
NETWORK
16.1 There are many areas of allergy that need further
research. Some of this research needs to be laboratory based but
much is also clinical and involves following the natural history
of environmental allergies, many of which are relatively new (eg
latex allergy). It is important, therefore, to keep a database
of diagnosed cases to facilitate this and to increase the clinical
knowledge base. In addition the regional centre will co-ordinate
clinical trials of new therapies.
It would be essential for the Specialist Allergy Centres
in the North West Integrated Regional Clinical Allergy Service
to have a strong academic presence. This would provide the opportunity
to increase the clinical knowledge base, improve treatments for
the population of the North West, with its relatively poor health
status, and to begin to address the deficit in trained clinicians
in this area and should not be lost.
17. STAFFING THE
CENTRES IN
THE NETWORK
17.1 The Specialist Allergy Network would need to have
three WTE Consultant Allergists. In addition, three WTE specialist
nurses and two WTE experienced dieticians and, possibly, a liaison
psychiatrist and physiotherapist, would need to be employed as
part of the team. A Secretary/Administrator would also be required.
The hospital pharmacies would each need to identify a member of
staff with an interest in allergy to help prepare capsules for
challenge tests and for information on the ingredients of drugs
and on drug reactions.
18. OPPORTUNITY FOR
PREVENTION
18.1 There are currently several cohort studies of the
effects of allergen avoidance on the development of allergies
in childhood being undertaken around the world and, in particular,
based on the North West Lung Centre at Wythenshawe Hospital in
Manchester[15]. The results of such clinical trials should have
a major impact on public health policy and the Specialist Allergy
Centres would have an important role in disseminating information
and guiding the implementation of such policies. Successful allergen
avoidance in childhood could significantly reduce morbidity in
later life.
18.2 There are many claims being made by manufacturers
regarding the efficacy of their products in aiding allergy sufferers,
much of which is unsubstantiated. The Specialist Allergy Centres
should provide advice and clear information on what is of proven
benefit, what is of potential benefit and what has been shown
to be of no benefit, based on the best available scientific evidence.
19. NEW DEVELOPMENTS
19.1 There is a range of novel, immunotherapeutic treatments,
currently undergoing clinical trials, which will probably enter
clinical practice over the next two to three years. These treatments
are likely only to be suitable for a carefully selected group
of patients with particular conditions. The Specialist Allergy
Centres would play a key role in selecting patients and delivering
treatments in a safe and cost-effective manner.
20. COLLEGE ADVICE
20.1 The Allergy CCST was only recognised in June 1999.
Currently there are very few consultant allergists and, consequently,
very few specialist registrars in training.
20.2 A conference took place at the Royal College of
Physicians (Allergy Services Conference, 15 May 2001) to discuss
the demand for allergy services, the unmet need and to examine
ways to improve service delivery. The recommendations included
the development of Regional Specialist Allergy Centres (two allergy
consultants, two nurses, one dietician, one secretary/administrator)
and a further expansion in the number of allergy consultants to
support the wider network. In addition, it was felt that more
research was required fully to identify the burden of allergic
disease.
21. COSTS
21.1 These will be identified when there is broad agreement
that Clinical Allergy is an area of deficiency that should be
addressed and that the model proposed in this paper is to be introduced.
The "centre" components of the model currently envisaged
would require funding for staff, in total, of the order of £400,000
per annum.
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design study. BMJ 2001;322:131-4
15. Custovic A, Simpson BM, Simpson A, Kissen P, Woodcock
A. Effect of environmental manipulation in pregnancy and early
life: effect on respiratory symptoms and atopy during the first
year of life: a randomised trial. Lancet 2001; 358: 188-193
16. British Society for Allergy and Clinical Immunology.
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SUB-GROUP
MEMBERSHIP AND
PROCESS
The then North West Regional Specialised Commissioning Group,
at its meeting on 6 June 2001, decided to obtain advice on the
current and future provision of allergy services in the Region.
I was asked to convene a sub-group.
As relatively little was widely known about the current state
of this service and the desirable future model of provision, it
was decided to adopt a rather different approach from that used
for other services. The following people were asked to meet to
prepare a draft paper to be circulated to providers and commissioners
across the Region:
Adnan Custovic, then Reader in Allergy and now Professor
in Allergy, Wythenshawe Hospital.
Roy Dudley-Southern, then Deputy Director of Clinical Strategy,
Manchester Health Authority, and now Strategic Planning Manager
and Acting Director, Greater Manchester PCTs Collaborative Commissioning
Programme.
Rosalind Jones, then Business Manager, North West Region
Specialised Commissioning Team, now Assistant Service Development
Manager, Cheshire and Mersey Specialised Commissioning Team.
Bridget Simpson, Clinical Nurse Specialist in Allergy, Wythenshawe
Hospital.
Ashley Woodcock, Professor in Respiratory Medicine and South
Manchester Clinical Academic Group Leader, Wythenshawe Hospital.
Miriam Woodman, then Consultant in Public Health Medicine,
Manchester Health Authority (until October 2001), now Consultant
in Public Health Medicine, Walsall Primary Care Trust.
Not unexpectedly the draft produced a range of responses.
These were mainly supportive but there was also some criticism
from those who felt their contribution had not been sufficiently
recognised. A range of meetings and discussions took place across
the Region, although diary difficulties made this a longer process
than had been expected. It proved possible to incorporate or otherwise
address most of the comments and this paper is the result.
I would like to express my appreciation for the time and
effort that has been committed by the members of the sub-group
to this endeavour and my thanks to those who took the trouble
to respond to the consultation and to meet us.
January 2003
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