|
|
| |
|
|
|
|
[The page and line references are to HL Bill 13, the bill as first printed for the Lords.] |
|
|
|
1 | Page 2, line 8, at end insert— |
|
| “( ) | A lack of capacity cannot be established merely by reference to— |
|
| (a) | a person’s age or appearance, or |
|
| (b) | a condition of his, or an aspect of his behaviour, which might lead |
|
| others to make unjustified assumptions about his capacity.” |
|
|
2 | Page 2, line 27, leave out “a general” and insert “an” |
|
|
3 | Page 2, line 39, leave out from “must” to “take” in line 41 and insert “not make it |
|
| |
| (a) | the person’s age or appearance, or |
|
| (b) | a condition of his, or an aspect of his behaviour, which might lead |
|
| others to make unjustified assumptions about what might be in his |
|
| |
| (2) | The person making the determination must consider all the relevant |
|
| circumstances and, in particular,” |
|
4 | Page 3, line 8, leave out subsection (5) and insert— |
|
| “(5) | Where the determination relates to life-sustaining treatment he must not, |
|
| in considering whether the treatment is in the best interests of the person |
|
| concerned, be motivated by a desire to bring about his death.” |
|
5 | Page 3, line 11, after “feelings”, insert “(and, in particular, any relevant written |
|
| statement made by him when he had capacity)” |
|
6 | Page 3, line 35, leave out “his” |
|
|
| |
|
|
| |
| |
|
|
7 | Page 4, line 21, at end insert— |
|
| “( ) | But D does more than merely restrain P if he deprives P of his liberty within |
|
| the meaning of Article 5(1) of the Human Rights Convention (whether or |
|
| not D is a public authority).” |
|
|
8 | Page 5, line 30, leave out “section” and insert “sections 1 (the principles) and” |
|
|
9 | Page 6, line 2, at end insert “, or |
|
| (c) | jointly in respect of some matters and jointly and severally in |
|
| |
10 | Page 6, line 3, leave out “If” and insert “To the extent to which” |
|
|
11 | Page 6, line 36, at end insert— |
|
| “( ) | But the donee does more than merely restrain P if he deprives P of his |
|
| liberty within the meaning of Article 5(1) of the Human Rights |
|
| |
|
12 | Page 8, line 9, after “severally” insert “in respect of any matter” |
|
13 | Page 8, line 17, after first “power” insert “in respect of any matter” |
|
|
14 | Page 9, line 31, leave out “section” and insert “sections 1 (the principles) and” |
|
15 | Page 9, line 40, leave out from “powers” to end and insert “or impose on him such |
|
| duties, as it thinks necessary or expedient for giving effect to, or otherwise in |
|
| |
|
16 | Page 11, line 19, at end insert “, or |
|
| (c) | jointly in respect of some matters and jointly and severally in |
|
| |
|
17 | Page 12, line 20, leave out from “P” to end of line 23 |
|
18 | Page 12, line 25, leave out “section” and insert “sections 1 (the principles) and” |
|
19 | Page 12, line 41, at end insert— |
|
|
|
| |
| |
|
| “(14) | But a deputy does more than merely restrain P if he deprives P of his liberty |
|
| within the meaning of Article 5(1) of the Human Rights Convention |
|
| (whether or not the deputy is a public authority).” |
|
|
20 | Page 13, line 17, after “whether” insert “one or more of” |
|
|
21 | Page 13, line 42, at end insert “or an instrument purporting to create one” |
|
|
22 | Page 14, line 24, leave out “In this section and sections 25 and 26,” |
|
23 | Page 14, line 36, at end insert— |
|
| “(4) | A withdrawal (including a partial withdrawal) need not be in writing. |
|
| (5) | An alteration of an advance decision need not be in writing (unless section |
|
| 25(5) applies in relation to the decision resulting from the alteration).” |
|
|
24 | Page 15, line 16, leave out subsection (5) and insert— |
|
| “(5) | An advance decision is not applicable to life-sustaining treatment unless— |
|
| (a) | the decision is verified by a statement by P to the effect that it is to |
|
| apply to that treatment even if life is at risk, and |
|
| (b) | the decision and statement comply with subsection (5A). |
|
| (5A) | A decision or statement complies with this subsection only if— |
|
| |
| (b) | it is signed by P or by another person in P’s presence and by P’s |
|
| |
| (c) | the signature is made or acknowledged by P in the presence of a |
|
| |
| (d) | the witness signs it, or acknowledges his signature, in P’s |
|
| |
|
25 | Page 17, line 16, leave out “Secretary of State” and insert “appropriate authority” |
|
26 | Page 17, line 24, at end insert— |
|
| “(6) | In this section, section 32 and section (Loss of capacity during research project), |
|
| “appropriate authority” means— |
|
| (a) | in relation to the carrying out of research in England, the Secretary |
|
| |
| (b) | in relation to the carrying out of research in Wales, the National |
|
| |
|
|
| |
| |
|
|
27 | Page 17, line 30, leave out subsection (2) and insert— |
|
| “(2) | The research must be connected with— |
|
| (a) | an impairing condition affecting P, or |
|
| |
| (2A) | “Impairing condition” means a condition which is (or may be) attributable |
|
| to, or which causes or contributes to (or may cause or contribute to), the |
|
| impairment of, or disturbance in the functioning of, the mind or brain.” |
|
28 | Page 17, line 34, leave out from “that” to end of line 36 and insert “research of |
|
| comparable effectiveness cannot be carried out if the project has to be confined to, |
|
| or relate only to, persons who have capacity to consent to taking part in it” |
|
|
29 | Page 18, line 19, leave out “Secretary of State” and insert “appropriate authority” |
|
30 | Page 19, line 5, leave out “concerned in P’s treatment or care” and insert “involved |
|
| in the organisation or conduct of the research project” |
|
|
31 | Page 19, line 17, leave out from “he” to “, or” in line 18 and insert “appears to object |
|
| (whether by showing signs of resistance or otherwise) except where what is being |
|
| done is intended to protect him from harm or to reduce or prevent pain or |
|
| |
32 | Page 19, line 23, at end insert— |
|
| “( ) | The interests of the person must be assumed to outweigh those of science |
|
| |
33 | Page 19, line 29, at end insert— |
|
| “(5) | But neither subsection (3) nor subsection (4) requires treatment that P has |
|
| been receiving as part of the project to be discontinued if R has reasonable |
|
| grounds for believing that there would be a significant risk to P’s health if |
|
| |
|
34 | Insert the following new Clause— |
|
| “Loss of capacity during research project |
|
| (1) | This section applies where a person (“P”)— |
|
| (a) | has consented to take part in a research project begun before the |
|
| commencement of section 30, but |
|
| (b) | before the conclusion of the project, loses capacity to consent to |
|
| continue to take part in it. |
|
| (2) | The appropriate authority may by regulations provide that, despite P’s loss |
|
| of capacity, research of a prescribed kind may be carried out on, or in |
|
| |
| (a) | the project satisfies prescribed requirements, |
|
|
|
| |
| |
|
| (b) | any information or material relating to P which is used in the |
|
| research is of a prescribed description and was obtained before P’s |
|
| |
| (c) | the person conducting the project takes in relation to P such steps |
|
| as may be prescribed for the purpose of protecting him. |
|
| (3) | The regulations may, in particular,— |
|
| (a) | make provision about when, for the purposes of the regulations, a |
|
| project is to be treated as having begun; |
|
| (b) | include provision similar to any made by section 31, 32 or 33.” |
|
|
35 | Page 19, line 33, leave out from ““independent” to end of line 34 and insert “mental |
|
| capacity advocates”) to be available to represent and support persons to whom acts |
|
| or decisions proposed under sections 35, 36 and 37 relate” |
|
36 | Page 19, line 36, leave out paragraphs (a) and (b) and insert “as to the appointment |
|
| of independent mental capacity advocates” |
|
37 | Page 19, line 40, leave out “consultee” and insert “mental capacity advocate” |
|
38 | Page 19, line 42, leave out “consultee” and insert “mental capacity advocate” |
|
39 | Page 20, line 2, leave out from “that” to “by” in line 3 and insert “a person to whom |
|
| a proposed act or decision relates should, so far as practicable, be represented and |
|
| |
40 | Page 20, line 9, leave out “consultee” and insert “mental capacity advocate” |
|
41 | Page 20, line 10, leave out from “person” to “, and” in line 11 and insert “whom he |
|
| has been instructed to represent” |
|
42 | Page 20, line 19, leave out “consultee’s” and insert “mental capacity advocate’s” |
|
43 | Page 20, line 20, after first “section” insert “, section (Functions of independent mental |
|
| |
44 | Page 20, line 21, leave out “consultees” and insert “mental capacity advocates” |
|
45 | Page 20, line 23, leave out “consultees” and insert “mental capacity advocates” |
|
46 | Page 20, line 25, leave out subsection (8) |
|
|
47 | Insert the following new Clause— |
|
| “Functions of independent mental capacity advocates |
|
| (1) | The appropriate authority may make regulations as to the functions of |
|
| independent mental capacity advocates. |
|
| (2) | The regulations may, in particular, make provision requiring an advocate |
|
| to take such steps as may be prescribed for the purpose of— |
|
| (a) | providing support to the person whom he has been instructed to |
|
| represent (“P”) so that P may participate as fully as possible in any |
|
| |
| (b) | obtaining and evaluating relevant information; |
|
|
|
| |
| |
|
| (c) | ascertaining what P’s wishes and feelings would be likely to be, and |
|
| the beliefs and values that would be likely to influence P, if he had |
|
| |
| (d) | ascertaining what alternative courses of action are available in |
|
| |
| (e) | obtaining a further medical opinion where treatment is proposed |
|
| and the advocate thinks that one should be obtained. |
|
| (3) | The regulations may also make provision as to circumstances in which the |
|
| advocate may challenge, or provide assistance for the purpose of |
|
| challenging, any relevant decision.” |
|
|
48 | Page 20, line 33, leave out “about” and insert “in determining what would be in” |
|
49 | Page 20, line 36, leave out from “must” to end of line 38 and insert “instruct an |
|
| independent mental capacity advocate to represent P” |
|
50 | Page 20, line 42, leave out subsection (5) and insert— |
|
| “(5) | The NHS body must, in providing or securing the provision of treatment |
|
| for P, take into account any information given, or submissions made, by the |
|
| independent mental capacity advocate.” |
|
|
51 | Page 21, line 15, leave out “about” and insert “in determining what would be in” |
|
52 | Page 21, line 18, leave out from “must” to “unless” in line 20 and insert “instruct an |
|
| independent mental capacity advocate to represent P” |
|
53 | Page 21, line 25, leave out “seek advice from an independent consultee” and insert |
|
| “instruct an independent mental capacity advocate to represent P” |
|
54 | Page 21, line 33, leave out “seek advice from an independent consultee” and insert |
|
| “instruct an independent mental capacity advocate to represent P.” |
|
55 | Page 21, line 34, leave out subsection (5) and insert— |
|
| “(5) | The NHS body must, in deciding what arrangements to make for P, take |
|
| into account any information given, or submissions made, by the |
|
| independent mental capacity advocate.” |
|
|
56 | Page 22, line 13, leave out “about” and insert “in determining what would be in” |
|
57 | Page 22, line 22, leave out from “must” to “unless” in line 24 and insert “instruct an |
|
| independent mental capacity advocate to represent P” |
|
58 | Page 22, line 29, leave out from “not” to “before” and insert “instruct an |
|
| independent mental capacity advocate to represent P” |
|
59 | Page 22, line 36, leave out “seek advice from an independent consultee” and insert |
|
| “instruct an independent mental capacity advocate to represent P” |
|
60 | Page 22, line 37, leave out subsection (6) and insert— |
|
|
|
| |
| |
|
| “(6) | The local authority must, in deciding what arrangements to make for P, |
|
| take into account any information given, or submissions made, by the |
|
| independent mental capacity advocate.” |
|
|
61 | Page 22, line 41, leave out “36(3) and 37(4)” and insert “36(3) and (4) and 37(4) and |
|
| |
|
62 | Page 23, line 6, leave out “consultees” and insert “mental capacity advocates” |
|
63 | Page 23, line 11, leave out from “which” to “, and” in line 13 and insert “an |
|
| independent mental capacity advocate must, or circumstances in which one may, |
|
| be instructed by a person of a prescribed description to represent a person who |
|
| |
|
64 | Page 23, line 24, at end insert— |
|
| “(da) | for the guidance of persons carrying out research in reliance on any |
|
| provision made by or under this Act (and otherwise with respect to |
|
| sections 30 to (Loss of capacity during research project)),” |
|
65 | Page 23, line 25, leave out “consultees” and insert “mental capacity advocates” |
|
66 | Page 23, line 37, at end insert— |
|
| “(ba) | as a person carrying out research in reliance on any provision made |
|
| by or under this Act (see sections 30 to (Loss of capacity during |
|
| |
67 | Page 23, line 38, leave out “consultee” and insert “mental capacity advocate” |
|
|
68 | Page 31, line 17, at end insert— |
|
| “(i) | publishing, in any manner the Public Guardian thinks appropriate, |
|
| any information he thinks appropriate about the discharge of his |
|
| |
|
69 | Insert the following new Clause— |
|
| |
| (1) | There is to be a body, to be known as the Public Guardian Board. |
|
| (2) | The Board’s duty is to scrutinise and review the way in which the Public |
|
| Guardian discharges his functions and to make such recommendations to |
|
| the Lord Chancellor about that matter as it thinks appropriate. |
|
| (3) | The Lord Chancellor must, in discharging his functions under sections 55 |
|
| and 56, give due consideration to recommendations made by the Board. |
|
| (4) | The members of the Board are to be appointed by the Lord Chancellor. |
|
|