Select Committee on Science and Technology Minutes of Evidence


Examination of Witnesses (Questions 260 - 272)

WEDNESDAY 30 JUNE 2004

MR WALTER MERRICKS, MS MICHELLE SNEADE, MR DAVID GOLLANCZ AND MS BECKY GARDINER

  Q260  Dr Harris: If ending donor anonymity makes it more likely that the secret will be kept, which many people feel it will, then actually the damage might be greater to the children because there will be more secrecy.

  Mr Gollancz: That is fantasy. Certainly judging from what my own parents and some other parents I have met or whose words have been reported to me, parents actually feel it more difficult to disclose to their children that they were donor conceived if they are then forced to say they are afraid they cannot tell them the identity of the donor. I think that makes it harder not easier.

  Q261  Bob Spink: I should like to address the issue of the source of the gametes. You seem keen for the child to know of the donor. Do you think it would be a good idea if donors were, for instance, family members?

  Ms Gardiner: No, I think that would be a very bad thing indeed. It would be a very bad thing indeed because the relationships between the family members, the relationships between the infertile man who was bringing up the child and the fertile family member who had donated the sperm, for example, would become very complicated and difficult and that would impact on the child.

  Q262  Bob Spink: Does anybody disagree with that position?

  Ms Sneade: No. I had, not really a committed offer but a kind of offer from a family member and I do not think it would have worked.

  Mr Merricks: We have a number of members who have had family members who have donated, mainly, eggs to assist in treatment. What they have needed to do is to be clear about who the mother is and who the aunty is and what they are going to tell their child. It is possible to go ahead with that.

  Ms Sneade: That was a personal decision for me.

  Mr Merricks: It is something for which people need a lot of preparation, a lot of care.

  Q263  Bob Spink: Do you think that society should move down the track, which you have already started to do with that answer, of designer donors, so that we get the right donor, that is we can check out to the ultimate, can we not, and look for tall, athletic, clever, blonde, etcetera? Should we be doing that or not?

  Mr Merricks: The most important thing with donors is that they are people who are prepared to be identifiable and to understand the limited but responsible role that they need to play if they are contacted in later life. We should not go down the road of trying to design who these people need to be.

  Q264  Bob Spink: Do you think that society should discourage some types of donors, such as people who have a particular level of IQ or particular physical attributes?

  Mr Gollancz: Should society discourage them? I am afraid I have rather a practical mind. I am thinking: how would society do that? No, not particularly, not really. There may come a day when we know so much about how genetic inheritance and the rest of it works that that makes sense, but although the changes in the last decade or so have been absolutely astonishing, at the moment we would not be sure of doing anything in particular.

  Mr Merricks: Donors are screened under guidelines from the HFEA at the moment for a variety of genetic disorders so that some screening does take place in relation to donors; compatibility with the potential recipients as well.

  Q265  Bob Spink: Are they screened for criminal proclivity?

  Mr Merricks: This is not something I should be answering, but I understand that clinics are encouraged by the HFEA to make family enquiries about the donor. Yes, some background information is sought from the donor.

  Q266  Mr McWalter: One of the provisions in the Act is that there needs to be explicit concern about the welfare of the child that arises from donation. If you are fertile no-one says a child is going to do badly in this setup, whereas if you are infertile people do come snooping around and making those kind of enquiries. Michelle, you are nodding. Do you think that is discriminatory against infertile couples?

  Ms Sneade: Yes, I do; definitely.

  Q267  Mr McWalter: Should that provision, that there needs to be this explicit taking into account of the welfare of the child, be removed from the Act?

  Ms Sneade: No. Obviously the welfare of the child is important, so I do not think that should be removed.

  Q268  Mr McWalter: Do you want it kept there as a legal requirement?

  Ms Sneade: I suppose the thing is that when a couple who are not infertile are just going off to have a child, nobody else is involved. At the point where you are infertile lots of people become involved. That is why the protection comes up.

  Q269  Mr McWalter: You have enough to put up with and then you have some other people coming along and saying they are not quite convinced you are the kind of family they want to have a child. You are a bit dim, you are not very well off, you do not live in a place where there are many opportunities for children to play.

  Ms Sneade: It depends what "welfare of the child" means.

  Q270  Mr McWalter: People can make those judgments under the current Act.

  Ms Sneade: It depends how far that is taken. Your house is not big enough. Is that the welfare of the child? You have a criminal record. I suppose it depends what "welfare of the child" means.

  Ms Gardiner: I am slightly muddled about the question. I feel that if we are talking about donor conceived children, for me the big problem in my own life, and having met a lot of other people in their lives too, has been the secrecy surrounding it. The question of anonymity is very closely related to the question of secrecy; I do not think they are separate.

  Q271  Mr McWalter: They are additional stresses.

  Ms Gardiner: Yes. What David said is that if the donor is not anonymous it is much easier for the parents to tell the child because they have something to tell them. It is quite a difficult thing to tell a child when you are telling them there is nothing. If you are talking about the welfare of the child in that very limited sense that the child is much better off knowing, yes, that should remain central to the Act.

  Q272  Mr McWalter: It was not specifically about knowing, it was that the Act allows you to take into account the whole situation around the welfare of the child. We want to know whether to get rid of that or not.

  Mr Merricks: I appreciate that the Committee is concerned with the law, but I would encourage you to look at the whole climate and culture in which all this is taking place. We have moved on a lot from the time when the Act was originally passed in terms of assuming that everybody needed to treat things incredibly confidentially. There is still movement needed to move the culture and climate on to one where people are relaxed and take all the secrecy stuff well away. The Committee can play a role in that. That is more important than trying to decide whether or not that particular provision in the Act should stay or go, because provisions in Acts do not actually tend to drive real change. The culture and climate can play a really important part and I hope the Committee are going to be able to play its part in that.

  Chairman: I am sorry, I am sure we could go on for hours and I should like to, but we have to respect the people who are coming after you. We will write with some other questions and you can put in written answers to them if you like. If there are things you wish you had said, please write in and say "I wish I had said this". I know that always happens. You are very, very welcome to do that. We want to get this report right. Some of the questions you have answered very openly and honestly too will be really helpful in developing what I hope will be a really starring report. Thank you very much.





 
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