3 Engaging patients and the public
in improving quality and safety
18. A key objective of the NHS reform agenda is to
improve the patient experience by strengthening the involvement
of patients and the general public in shaping the future provision
of services. Patient and public involvement and the quality of
the patient experience are two important components of clinical
governance.[65] The National
Audit Office found, however, that patient and public involvement
is relatively less well developed than other aspects of clinical
governance. It also found that the level of engagement with voluntary
organisations supporting patients is low.[66]
19. The Department believes that public and patient
representatives and speciality groups should have a say in the
criteria against which doctors' capability will be assessed. The
development of criteria by the Royal Colleges, speciality groups,
and local participation groups showed how patients were increasingly
having a say in how doctors' capability would be judged. The consultation
on the role of PECs also identified the importance of PECs engaging
with the voluntary sector in a way that they might not have been
done previously.[67]
20. Unless patients are more involved in the process
it will not be possible to develop an adequate machinery of monitoring
and control to assess GPs' performance and how well they are listening
to patients. At present only 30% of general practices have patient
participation groups within them, but the Department is working
with the National Association for Patient Participation to increase
this to 100% over the next few years.[68]
Its Expert Patients Programme also aims to train 30,000 patients
with the intention that patients will be able to engage in real
dialogue with their doctors over the future of their care.[69]
21. The quality of patients' experience depends in
part upon smooth transitions between healthcare providers and
'seamless' delivery of service from the different organisations
they come into contact with as they receive care.[70]
Patients often have an unsatisfactory experience as they move
between different parts of the NHS. Nine out of ten decisions
that affect patients' lives and incur costs are made in primary
care but 60 to 70% of the costs are in hospitals. The Department
therefore aims to get primary care more involved in discussions
which make a difference to pathways of care by providing incentives
through practice-based commissioning.[71]
Any savings made as a result of commissioning decisions made under
practice-based commissioning can be used by practices for the
benefit of patient care.[72]
22. One of the Department's key initiatives in the
area of patient and public involvement is the development of Local
Involvement Networks (LINks) to replace patient forums.[73]
The Department told us that LINks will be larger, more networked
organisations that will provide a better patient and public voice
than patient forums centred around small executive teams. In the
present system patient forums are also closely linked to individual
organisations, whereas LINks will cover geographical localities
and will therefore be able to address issues that cut across organisations.[74]
23. Part of improving PCT engagement with patients
and carers involves effective complaints procedures so that information
can be fed back and incorporated into future service design.[75]
Although the NHS complaints procedure is an important mechanism
through which patients can give feedback on the quality of care
they receive, and 35,431 written complaints were received by GP
practices in 2004-05,[76]
the channels available for patients to complain about ill-treatment
by a GP are inadequate.[77]
The National Audit Office's survey of GPs also found that where
GPs were involved in complaints, just half of GP respondents were
routinely informed of the outcome of these complaints by the PCT.
The Department agreed that this situation was unsatisfactory and
that PCTs needed to learn how better to use complaints as a fundamental
part of quality improvement. [78]
24. Patients have also experienced particular difficulties
in registering complaints that cut across services provided by
a GP, PCT and a hospital.[79]
The majority of complaints to GPs are dealt with relatively quickly
to the satisfaction of both the patient and the GP involved. Some
complaints are not dealt with effectively, however, especially
those which cross the dividing lines between primary and secondary
care, or health and social care.[80]
25. The need for a complaints system which crosses
organisational boundaries was highlighted in the White Paper Our
health, our care, our say.[81]
The Department would be consulting on proposals for a new complaints
system shortly after our hearing.[82]
A complaints procedure that links health and social care is expected
to be in place by 2009.[83]
Legislation aimed at improving the NHS complaints procedure came
into force on 1 September 2006.[84]
65 C&AG's Report, para 3.1 Back
66
C&AG's Report, paras 3.8, 3.10 Back
67
Q 88 Back
68
Q 126 Back
69
Q 88 Back
70
C&AG's Report, para 3.2 Back
71
Qq 89-90 Back
72
C&AG's Report, para 1.15 Back
73
Q 14 Back
74
Q 109 Back
75
C&AG's Report, para 3.26 Back
76
C&AG's Report, para 3.26 Back
77
Qq 13, 127 Back
78
Q 16 Back
79
Q 13 Back
80
Q 13 Back
81
Our health, our care, our say: a new direction for community
services, Department of Health, January 2006 Back
82
Q 13 Back
83
Q 15 Back
84
The NHS (Complaints) Amendment Regulations 2006 (SI 2006
No. 2084) Back
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