Autism Bill


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Mrs. Gillan: May I just tell the Minister that that relates to my earlier question on local data collection?
Phil Hope: Yes. These paragraphs include provision of diagnostic services and information gathering, including needs assessment.
Angela Browning (Tiverton and Honiton) (Con): On the question of diagnostic services, some of the most complex cases involve undiagnosed adults who are in the community. They may be middle aged or even older. In order to get the right person to make the diagnosis, an out of area referral is often appropriate because diagnosis of autism in some of the more complex cases needs to be done by someone who has lived and worked autism as a professional for many years. Would the Minister take a look at the processes for GPs and other health workers to make out of area referrals to specialists in the more difficult types of case?
Phil Hope: The hon. Lady makes a very helpful contribution. We understand that improvements are needed in how a diagnosis is made and who makes it. The guidance will talk about the provision of diagnostic services, but I cannot say to what extent it will cover her specific points about out of area referrals. That must be a matter for the strategy and then the guidance and the consultation to follow. However, I assure her that the points she has made today can be part of that process.
In terms of the specialisms that the hon. Lady describes, one of the paragraphs includes a reference to guidance on work force training. That is an extraordinarily important point. Overall, the subsection covers diagnostic services and information gathering, including needs assessment, which I hope addresses the point made by the hon. Member for Chesham and Amersham. It also includes strategic planning of services, transition planning—on Second Reading many hon. Members spoke about the transition between childhood and adulthood—work force training and local leadership, because we all know that is what is required when we want to make things happen.
Mr. Boswell: This is turning into a constructive dialogue, so I hope the Minister will take my intervention in that spirit. He referred to the training of staff who provide relevant services to adults with such conditions. That is clearly important where their services are directly appropriate to people within the autism spectrum, but there is a wider issue, which I hope he will relay across the NHS: all staff in the caring services need to be aware of the possibility of autism as a potential condition. They need to have at least a reasonably sensitive and, if possible, a perceptive reaction to people who present with certain difficulties so as to ensure that they then get the diagnosis and support they need.
Phil Hope: I do not know whether the hon. Gentleman has seen my speaking notes, but I was just about to say that the themes we have identified reflect what happened in the consultation and in particular the importance of public services coming together to assess the needs of people with autism, and to consider what support they need to live independently and to be included in their communities. In that process, driving a change in attitudes and culture, particularly among all front-line staff who come into contact with people with autism, is particularly important. The hon. Gentleman is absolutely right and that is our intention with these measures.
Angela Browning: I am encouraged by what the Minister has said. Would that approach get rid of the professional who occasionally says, “We do not like to label.”? One comes across that occasionally from social workers and health professionals—not as much now as one used to. The failure to diagnose properly means that we remove from that individual access to services. It is the passport to the way forward and I hope that is what the Minister means in what he has just announced.
3.15 pm
Phil Hope: I cannot guarantee the outcome the hon. Lady describes, but the intention is to seek to ensure that the needs of people with autism are not overlooked, that they are properly assessed and services are developed to meet those needs. I hope that we might reach that position. We are talking about cultural change, which does not happen overnight, but the intention behind the strategy and the guidance is to deliver that change in attitude and approach for all staff who come into contact with people with autism.
The list is not exhaustive or exclusive. Provisions do not preclude other issues being included in the guidance; it is only required that those particular issues must be.
Subsection (6) places a duty on the Secretary of State to consult local authorities and the NHS before issuing the guidance, as I mentioned earlier, and before substantially revising it. Subsection (7) is included to allow for the possibility that the parliamentary process may mean that the consultation on the guidance begins before the legislation comes into force and provides that the consultation in those circumstances be valid for the purposes of discharging the duty to consult.
I believe that the new clause creates an airtight obligation on Government to issue guidance to local authorities and, significantly, the NHS to support the implementation of the autism strategy and to consult those organisations before doing so. It gives a concrete deadline for that to be done and it sets out some key topics that are of such importance that they must be included in the guidance. I commend the new clause to the Committee.
I tabled new clause 3 to fulfil the Government’s commitment to putting the guidance on implementation of the autism strategy on a statutory footing as regards local authorities and NHS bodies. The mechanism we are using to achieve that is a little complex, so I hope members of the Committee will bear with me while I explain the approach we have taken.
Section 7 of the Local Authority Social Services Act 1970 gives the Secretary of State powers to issue general guidance. Local authorities are then required to exercise their social service functions in accordance with that guidance. Over the years, a body of case law has established that this requirement is more than simply taking account of any guidance under section 7. Local authorities are expected to act in accordance with such guidance unless they can show compelling reasons not to do so. A local authority that ignored guidance issued under section 7, or arbitrarily chose to disregard it, would be acting unlawfully and could find itself subject to judicial review or default action by the Secretary of State. Thus, although not law in the same way that regulations are law, the obligation to act in accordance with section 7 guidance is very strong and such guidance is commonly referred to as statutory.
Angela Browning: This is an appropriate moment to raise with the Minister a matter I raised about section 7 on Second Reading. Health service circulars specifically relating to autism—Asperger’s syndrome in particular—have been ignored. I have drawn his attention before to the one issued in August 2001. Although there will be repercussions if people do not adhere to the guidance, how will the Minister ensure that happens? To my certain knowledge, health authorities just file the circular I have mentioned. I have to hand out new copies to every social worker I come across to prove it exists.
Phil Hope: Interestingly, a power similar to the one I have just described for local authorities does not exist for NHS bodies. Because of the points the hon. Lady has raised, I wanted to go further than the guidance for local authorities. Having listened to others and to the points people have made in debate, I wanted to issue guidance to NHS bodies because of their key role in caring for adults with autism. The Secretary of State can, of course, issue guidance to the NHS and does so regularly, as the hon. Lady has just been describing. However, as she said, nothing in health legislation places the same obligation on NHS bodies to act in accordance with it. They must take it into account, but can choose not to act in accordance with it after having given it due consideration.
To be fair, in practice most NHS bodies follow most guidance most of the time, but the fact remains that it does not have the same statutory status as the guidance issued under section 7 of the Local Authority Social Services Act. For that reason, subsection (2) specifies that guidance issued under new clause 2 is to be treated as if it were general guidance issued under section 7 of the Act. That covers local authorities and ensures that they would treat such guidance as statutory.
To create the same effect for NHS bodies, subsection (3) provides that, for the purposes of guidance issued under the Bill, NHS bodies are to be treated as if they were a local authority to which the provisions of the 1970 Act apply. Their functions are to be treated as if they were social services functions within the meaning of the 1970 Act. NHS bodies will be bound by the guidance to exactly the same extent as local authorities.
Mrs. Gillan: Such measures are certainly a breakthrough after years of campaigning, particularly by my hon. Friend the Member for Tiverton and Honiton and other members of the Committee. To put the matter beyond doubt in our proceedings, the new clause would bind local authorities and NHS bodies so that, in future, they cannot ignore, either accidentally or intentionally, the needs of people with autism and their families.
Phil Hope: I thank the hon. Lady for her remarks. She is absolutely right. The body of case law that established the status of section 7 guidance as more than just advice to be taken into account will apply equally to national health service bodies.
Phil Hope: I appreciate my hon. Friend’s point. The Bill does not cover that sort of support. Part of me wants to say that I hope we do not have to resort to judicial reviews to enable people with autism to get the services that they require. However, I understand that he is saying that that fallback position will now apply to NHS bodies as it now applies to local authorities. I hope that we see a cultural shift in the way in which NHS bodies act in accordance with the guidance issued to them after the Bill is enacted.
Mr. Boswell: I have to nip down the Corridor for another meeting for a few moments, so I shall now make a point that I had intended to raise later as it is equally germane now. First, will the Minister assure us that when local authorities and NHS bodies act jointly, they will be jointly and severally bound to meet that duty and that they cannot get out of it—for example, by passing it on to their neighbour? Secondly, the Minister will know from the whole business of community care that such issues are very fraught, so in cases when a statutory body—to use shorthand—involves a private sector agent, or more likely a voluntary body, to deliver the service, can we be assured that its delivery will be equally bound by the duties as if it were carried out in-house?
Phil Hope: I am hoping that inspiration will arrive on whether joint commissioning between local authorities and NHS will be covered jointly so that there is no game playing. I am pretty sure that is the case, but I may need to write to the hon. Gentleman—[Interruption.] I can now tell him that when the guidance requires something of both a local authority and a national health service body, the answer to his question is yes.
Mr. Boswell: That is a helpful answer, but the other point that I need to clear up—we shall take it as being covered, unless the Minister needs to write to the Committee to the contrary—is a case in which, for example, two bodies in the NHS or, separately, in the local authority have merged their functions. They might have a joint board if they want to carry something out. Are they just as much bound as if they were individual local authorities?
Phil Hope: We are delving into detail that I cannot answer at the moment. I may have to write to the hon. Gentleman to clarify the position.
Mr. Boswell: I do not expect a pat answer now, but to ensure that the letter is sufficiently comprehensive for the Committee, will the Minister also look again at the issue of what I shall call, in shorthand, private sector non-statutory bodies delivering? It is terribly important that there is no perceived loophole in that area.
Phil Hope: I shall need to confirm that to the hon. Gentleman. I am not sure that the legislation will directly cover a third party commissioned by an NHS body or local authority, because the responsibility will be on the local authority or the NHS body to ensure that in commissioning its services in that way, the contract with the third party is robust enough to deliver the outcomes. The normal processes of contract compliance would apply, in order that the local authority or the NHS body fulfils its obligations under law. If I have got that wrong, however, I shall confirm otherwise.
I am satisfied that the new clause effectively discharges the Government’s commitment to place the guidance on implementation of the strategy on a statutory footing and I commend it to the Committee.
I have tabled new clause 4 in consequence of new clauses 1 to 3, to define terms used in those clauses. Much of the content of subsection (1) of new clause 4 is self-explanatory, but I shall draw the Committee’s attention to a couple of points. First, the definition of “local authorities” has been put together specifically to ensure that only English councils are included; the same is true of the definition of “NHS bodies”. It is important to ensure that the Bill does not unintentionally extend to Wales.
The Committee will notice that “NHS bodies” does not include NHS foundation trusts. That is deliberate; NHS foundation trusts have greater autonomy than other NHS trusts and, therefore, we have had to distinguish in the Bill the status of guidance in relation to NHS bodies from its status in relation to NHS foundation trusts. Although new clause 2 provides for guidance to be issued to NHS bodies, NHS foundation trusts and local authorities, the guidance will be what is normally referred to as statutory guidance only in relation to NHS bodies and local authorities. That means that NHS foundation trusts must take into account the guidance, but they are not required to act in accordance with it at all times. However, NHS bodies, as defined in the Bill, and local authorities will be required to act in accordance with the guidance, unless they have very good reason not to, and a failure to act in accordance with the guidance in any other circumstance would be unlawful. That reflects the Government’s wider policy in relation to the greater autonomy of NHS foundation trusts.
 
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