Social Care - Health Committee Contents

Further memorandum by the Parkinson's Disease Society (SC 19A)



  In our Memorandum of Evidence the PDS stated that we did not have a preference for the future funding of long-term residential and domiciliary care, but that we were in the process of surveying members for their preferences on this issue and would be happy to submit the results as additional evidence to the Inquiry.

  We are pleased to attach the results of this survey, which was completed by 605 people with Parkinson's between July and October 2009.

  In addition to the three models for funding care favoured by the government in the Green Paper, we also asked people's views on funding care through an increase in tax or National Insurance and included an additional question on this issue. Respondents indicated strong support for a tax funded model, with 57% favouring this option. Of the three models proposed by government the Comprehensive model was most popular, favoured by 22%.

  The survey also asked people's views on the proposal to abolish Attendance Allowance (AA) to help fund care and support. Just 5% of respondents supported the proposal for AA to be subsumed into the funding for a National Care Service, 62% did not wish Attendance Allowance to be abolished under any circumstances, 7% would be happy for a reduction in AA in light of improved support and 26% would be happy for AA to be abolished if all their disability-related costs were met.

  We also asked whether accommodation costs in residential care should be covered by the National Care Service. A clear majority (78%) of respondents were opposed to accommodation costs being excluded from a National Care Service.


  Members and branches were sent two questionnaires, one on how care and support should be funded in the future, which received 605 responses, and one on what a National Care Service should look like, which received 271 responses.

  Of the 605 respondents to the funding questionnaire, 306 respondents indicated that they were people with Parkinson's, 163 were carers, with fifty other respondents, the majority of whom were former carers. There was virtually no difference between the responses received from people with Parkinson's, carers and other respondents and the figures quoted below are based on all responses received. The findings from the survey are:

    Funding models

    — 57% favoured funding out of tax or National Insurance.

    — 22% favoured the Comprehensive model.

    — 13% preferred an insurance model.

    — 9% favoured the Partnership model.

    Should the National Care Service cover accommodation costs in residential care?

    — 78% believed that accommodation costs in residential care should be included in the National Care Service.

    Proposals to abolish Attendance Allowance (AA)

    — 62% stated that Attendance Allowance should not be abolished under any circumstances.

    — 5% would be happy for AA to be abolished and incorporated into the funding of a National Care Service.

    — 7% would be happy reduction in Attendance Allowance if the majority of their care needs were met by a National Care Service.

    — 26% would support the abolition of AA if all their care costs were met by a National Care Service.

Val Buxton

Director, Policy, Campaigns and Information

Parkinson's Disease Society

November 2009

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