Further memorandum by the Parkinson's
Disease Society (SC 19A)
In our Memorandum of Evidence the PDS stated
that we did not have a preference for the future funding of long-term
residential and domiciliary care, but that we were in the process
of surveying members for their preferences on this issue and would
be happy to submit the results as additional evidence to the Inquiry.
We are pleased to attach the results of this
survey, which was completed by 605 people with Parkinson's between
July and October 2009.
In addition to the three models for funding
care favoured by the government in the Green Paper, we also asked
people's views on funding care through an increase in tax or National
Insurance and included an additional question on this issue. Respondents
indicated strong support for a tax funded model, with 57% favouring
this option. Of the three models proposed by government the Comprehensive
model was most popular, favoured by 22%.
The survey also asked people's views on the
proposal to abolish Attendance Allowance (AA) to help fund care
and support. Just 5% of respondents supported the proposal for
AA to be subsumed into the funding for a National Care Service,
62% did not wish Attendance Allowance to be abolished under any
circumstances, 7% would be happy for a reduction in AA in light
of improved support and 26% would be happy for AA to be abolished
if all their disability-related costs were met.
We also asked whether accommodation costs in
residential care should be covered by the National Care Service.
A clear majority (78%) of respondents were opposed to accommodation
costs being excluded from a National Care Service.
(PDS) SUPPORTERS ON
Members and branches were sent two questionnaires,
one on how care and support should be funded in the future, which
received 605 responses, and one on what a National Care Service
should look like, which received 271 responses.
Of the 605 respondents to the funding questionnaire,
306 respondents indicated that they were people with Parkinson's,
163 were carers, with fifty other respondents, the majority of
whom were former carers. There was virtually no difference between
the responses received from people with Parkinson's, carers and
other respondents and the figures quoted below are based on all
responses received. The findings from the survey are:
57% favoured funding out of tax or National
22% favoured the Comprehensive model.
13% preferred an insurance model.
9% favoured the Partnership model.
Should the National Care Service cover accommodation
costs in residential care?
78% believed that accommodation costs
in residential care should be included in the National Care Service.
Proposals to abolish Attendance Allowance (AA)
62% stated that Attendance Allowance
should not be abolished under any circumstances.
5% would be happy for AA to be abolished
and incorporated into the funding of a National Care Service.
7% would be happy reduction in Attendance
Allowance if the majority of their care needs were met by a National
26% would support the abolition of AA
if all their care costs were met by a National Care Service.
Director, Policy, Campaigns and Information
Parkinson's Disease Society