Proposed Legislative Competence Orders relating to Organ Donation and Cycle Paths - Welsh Affairs Committee Contents


Written evidence submitted by the Board of Deputies of British Jews

SUMMARY POINTS

Organs are donated by individual Jews not by Jewish organisations

Judaism emphasises the importance of saving lives: A living person may donate an organ to save someone else's life (eg donation of a kidney). This is not only permitted but actively encouraged, provided that in doing so the donor is not putting his own life at significant risk (Court of the Chief Rabbi, 2010)

A Jewish perspective is that presumed consent diminishes the altruistic gift essence of organ donation and is perceived to diminish the status and respect with which the body / body parts are held after death.

The preferred organ donation system is that families (including Jewish ones) should be able to consider and reflect, consult religious authorities if they so wish, and (if they feel appropriate) give consent.

1.  BOARD OF DEPUTIES OF BRITISH JEWS

The Board of Deputies of British Jews is the main representative body of the Jewish community. Founded 250 years ago, the Board is consulted frequently by outside bodies, including Government, concerning issues where there may be thought to be either a Jewish viewpoint, or a collective Jewish interest. The Board is not a religious authority, does not give rulings about interpretation of Jewish law (known as "halacha" / "halachic law") and ethics, and does not have any formal jurisdiction status. However, the Board has had a long standing and consistent role in defending a Jewish vantage point in matters of public policy, and in particular in defending societal respect for the views of Jews who wish to be guided by Rabbinic rulings made according to strict halachic interpretation.

2.  SUBMISSIONS BY THE BOARD OF DEPUTIES OF BRITISH JEWS CONCERNING ORGAN DONATION

The Board of Deputies has made submissions to Parliamentary Committees previously concerning organ donation, and in particular in relationship to a proposed change to a presumed consent (commonly known as "opt-out") system. These submissions were made to the House of Lords Select Committee on the European Union—Sub-Committee G (Social Policy and Consumer Affairs) (dated 2 October 2007; and in response to further queries 12 March 2008). These earlier submissions may be helpful to this Committee in their deliberations.

3.  THE JEWISH VIEW OF ORGAN DONATION: GENERAL PRINCIPLES

In these previous submissions the Board noted that a "Jewish view on organ donation" was difficult to define. Although the Board may be able to provide insights and information about a Jewish religious perspective, the Board emphasised that religious beliefs are the beliefs of individuals rather than of organisations.

However, the Board was able to enunciate certain underlying Jewish principles which could be helpful. These were based primarily upon the strong Jewish tradition of caring for the sick. "Pikuach nefesh"—"saving of life"—takes priority over other religious obligations. Organ donation saves lives and is therefore permissible. Organ donation (in fact, organ gift) falls clearly within this Jewish altruistic tradition.

Recently the Court of the Chief Rabbi has re-iterated how this principle applies to organ donation:

"A living person may donate an organ to save someone else's life (eg donation of a kidney). This is not only permitted but actively encouraged, provided that in doing so the donor is not putting his own life at significant risk.

With regard to donation after death, in principle (notwithstanding the various Halachic rules concerning the sanctity of a dead body and the normal requirement that all parts of the body be buried) Halacha permits such donation provided that the organ is required for an immediate transplant".

The Board has noted that this view, expressed by a respected religious authority known for adherence to strict halachic principles, is based upon a searching analysis of classical Jewish sources. These address questions not only about transplantation per se but also about any relative risk of the procedures involved, the balance of beneficial effects with risk, and the evidence that the procedure (ie transplantation) is life-saving.

With regard specifically to organ donation after death (which is the main focus of the current consultation) the Board is cognisant that this Rabbinic view implies that organ donation takes precedence over other halachic obligations such as (i) "avoiding needless mutilation" of the body after death; (ii) "not deriving benefit from a dead body"; and (iii) delay of burial.

Thus, bearing in mind the caveats about expressing a collective view noted above, there is broad consensus in favour of the principle of organ donation.

4.  CONSENT TO ORGAN DONATION AFTER DEATH

Previously the Board has made several submissions that are relevant to the particular question of presumed consent to organ donation, some of which predate our comments to the House of Lords Select Committee.

The Board worked towards, and welcomed, the concept of the Human Tissue Act. This legislation is consistent broadly with Jewish views about the status of both parts of the body and the whole body after death. This Act is founded upon the need for consent to the use of organs and tissues, and has regularised previous haphazard structures which had been open to neglect and abuse (as evidenced in the Alder Hey and Bristol episodes, and the Isaacs case).

The Board has been very conscious in these submissions that "presumed consent" does not exist as an entity in this area of halachic law. Jewish law would follow a "case-by-case" process and would not recognise a "blanket ruling".

The Board has also been active, almost throughout the past 250 years, in working to ensure that Jews are able to follow their own laws and customs with regard to burial. The natural sequel to this is that, in the same way as it is the responsibility of the family to handle the body of the deceased with respect and in an expeditious fashion, so too is it their responsibility to give consent to organ donation.

The Board is broadly sympathetic to the view taken by other religious groups that organ donation is a humane act, and that taking organs without family consent goes beyond failure to respect human remains, and into the realm of an unacceptable violation of the dead.

The Board has also taken into account that, where organ donation after death is made in conformity with Jewish practice, the obligation ("mitzvah") to perform an act of "pikuach nefesh" rests with the family of the dead person. For the more observant members of the community the consent process thus represents an important obligation which would be denied to them.

5.  SUPPORT FOR ORGAN DONATION

The Board has been fully cognisant of the ongoing concern about the shortage of donated organs in the UK. It is for this reason that the Board has supported initiatives by the various transplant organisations to increase public awareness and understanding in the wider community as well as amongst Jews.

The Board is aware that the size of the Jewish community in the UK, and therefore the impact of any increase in Jewish donation rates, is likely to be small. In Wales, for example, the total Jewish population (based on the census) is approximately 2,000, so that even if presumed consent was introduced the annual total Welsh Jewish organ donation rate is likely to very low. Nonetheless the Board (as well as the Rabbinic authorities) have given much time and thought to how Jews can contribute to the public debate and policy.

In particular, the Board has co-operated as much as possible with the Organ Donation Task Force. During the course of these discussions the Board has become increasingly aware of the issues we share issue with other faith communities, amongst whom very similar views about consent have been expressed. The Catholic community in particular has given careful thought to all the issues noted above. A key impression is that in the public domain there is a combination of misgivings about "tampering with the body", and disquiet / suspicion about the definition of death under the current regimen. Presumed consent would only make this worse.

Finally, the Board is aware that already the Office of the Chief Rabbi is exploring new ways forward in order to achieve a formula whereby faith communities (including the Jewish community) can promote and support organ donation under circumstances where families can be re-assured that they are able to have their religious views respected.

6.  CONSULTATION QUESTIONS

There are some specific questions which are relevant.

(i) (4)  To what extent is there a demand for legislation on the matter in question?

The Board commends the report of the Organ Donation Task Force to the Welsh Select Committee in this regard. In addition, the contradiction between a "presumed consent" system and the public demand for better scrutiny of body parts and bodies as expressed in the Human Tissue Act suggests that any "demand" is equivocal. Even when a potential donor is "registered" family consent is the standard by which most of not all decisions are made.

(ii) (5)  Are there any cross-border issues relating to a Legislative Competence Order?

There is a long-standing Jewish tradition that it is the patient before you ("choleh lefanecha") whose life you must save. Many years ago the UK Rabbinic authorities ruled that modern knowledge transfer and communication broaden the range of this concept. Although not specifically an issue for the Jewish community per se, the complications of different systems operating in different parts of the UK would seem to the Board to run contrary to this tradition.

(iii) (12)  What are the implications of Article 8 and Article 9 of the European Convention on Human Rights on any such measure?

The Board has based its submissions on the premise that Jews (and others) have the right to expect that their remains will be treated respectfully according to their and their family's wishes. For some people these wishes may take into account religious views. Thus it is conceivable that a "presumed consent" system contravenes these articles.

Professor David R Katz

Vice-chair, Defence and Group Relations

February 2011



 
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Prepared 4 April 2011