Funding for research into brain tumours Contents

Contents

Terms of Reference

Summary

1 Introduction

The Committee’s inquiry

The petition

The Government’s response

The petitioners’ story: the Realf family

Brain Tumour Research

The public stories

Meeting the people behind the stories

2 Awareness and diagnosis

Late diagnosis

Scans

Awareness

The Be Clear on Cancer campaign

Early diagnosis: impact

Survival rates

Quality of life

Research

Funding priorities

Conclusion

Recommendation

3 Funding levels

How much is currently spent?

Non-site specific research

What type of research is being funded?

Is current funding enough?

Impact of increasing funding levels

Conclusion

Recommendation

4 Barriers to research

Tissue collection and bio-banking

Clinical trials

Drug testing

Research data

The review process for research applications

Research workforce

Conclusion

Recommendations

5 Setting research priorities

Role of the voluntary sector

Identifying gaps

Government funding

NIHR themed calls

Conclusion

Recommendations

6 Burden of disease

The most fatal cancer in terms of life years lost

The biggest cancer-killer of children

The most dangerous location

“Benign” brain tumours

Number of people affected

Conclusion

Recommendations

7 Availability of non-therapeutic drugs

Conclusion

Recommendation

8 Conclusion

Conclusions and recommendations

Annex: Summary of informal meeting 17 November 2015

Formal Minutes

Witnesses

Published written evidence



© Parliamentary copyright 2015

Prepared 11 March 2016