Joint Committee on the Draft Disability Discrimination Bill Written Evidence


DDB 7 The British Council of Disabled People

The British Council of Disabled People - Disabled People's Rights and Freedoms Bill Page 1 of 5

Disabled People's Rights and Freedoms Bill - DRAFT

BCODP, has been working on a new piece of legislation to replace the Disability

Discrimination Act 1995. Below is a public draft and your comments are welcomed.

Please send your views and suggestions to BCODP's Director, And Rickell. You may

contact Andy by email at the address Andy(~bcodp~org.Uk.

DISABLED PEOPLES' RIGHTS AND FREEDOMS BILL

A

BILL

To

Secure the full and equal human and civil rights of disabled people in the United Kingdom

All protections against discrimination and promotion of rights in this Bill must take account of the diversity of disabled people and their diverse needs and not discriminate on any basis, eg. on grounds of race, culture, religion, gender, sexuality, age, immigration status or any other status.

All definitions and language should be based on the Social Model of Disability, which recognises disability as the discrimination faced by people with impairments of body or mind.

PART I

In this Act -

Definition of disability and disabled person - based on the Social Model of Disability.

Both direct discrimination and indirect discrimination should be covered. Indirect discrimination is where some barrier is created which, although it does not directly relate to disability or impairment, means that it is more of a barrier for disabled people generally than for non-disabled people generally.

PART II

Areas to be covered:

It shall be unlawful for any person or body to discriminate against a disabled person in respect of:

  • Provision of all goods and services: both public and private sector provision
  • Employment: all employers, without exception, including voluntary workers, councillors and all elected representatives, statutory office holders;
  • Education: pre-school, school, further and higher education, adult education, professional education, vocational and non-vocational training, work experience and work-related training. Having to attend segregated educational provision or a special school or college is discriminatory;
  • Qualifications and examinations: for qualifications of all types;
  • Physical environments: all public physical environments, built and natural, to be accessible to allow free and independent movement, including access to all service providers, employment, education and transport;
  • Transport: air travel, sea travel, and all other forms of travel to be fully accessible by a declared end-date;
  • Health Care: there should be access to all primary and secondary health care, treatments and interventions and access to health information.
  • Housing: all housing should be accessible, whether or not occupied by a disabled person, and there should be a choice including size and location. This should include the right to own property and to have access to social housing;
  • Communication: the provision of support to enable written and oral communication. Also, to ensure the provision of clear and accessible information in different appropriate formats e.g large text, Braille, audiotape, videotape with British Sign Language, floppy disk, CD-ROM etc, including accessible websites;
  • Participation in social, leisure, citizenship duties (eg jury service) and political activity;
  • Voting: Voting, by whatever mechanism, should be accessible within the same choices of place and time as everyone else. Detention in hospitals or other institutional settings, except prisons, should not deny a disabled person the right to vote.
  • Legal Services;
  • Abortion: Grounds for abortion should not discriminate in relation to disability. Potential parents should be free from pressure to abort a disabled foetus.
  • Or any other service

PART III

Over and above the right to protection from discrimination as outlined in Part 11 and provisions for obtaining rights under the Human Rights Act, Disabled people should have their rights and freedoms protected through the following:

  • Pre-birth Actions: Medical intervention, manipulation and procedure which results in the elimination of a gene, embryo or foetus should not discriminate on the grounds of disability.
  • The Right to Live: The right to be recognised as a human being, including the right not to be subject, at any stage of life, to any form of euthanasia or withdrawal or failure to provide social support, personal assistance, medical treatment, pain relief, food, water or any other support necessary to seek to maintain the best possible quality of life, including not to be subject to any threat or pressure, on any basis, that such a withdrawal or failure to provide may occur, including cost or inconvenience to others;
  • The Right to Freedom of Movement: which includes the right not to be forced into an institution, either for education or as an alternative to domicilary care, on any grounds.
  • Independent living: this is the right of every disabled person, regardless of age, to have choice and control over how they live, including the right to personal assistance based on self-assessment which should include a social life and the right to adequate personal protection. No charge should be made for this right;
  • Benefits: These should be based on the real extra costs of dealing with the barriers to having a full life (disability), not on impairment. Benefits should fully reflect those costs, and be flexible in operation to enable disabled people to exercise their other rights without penalty;
  • Genetic-cOunselling this should be impartial and external to the medical profession and there should be a clear disciplinary offence to put pressure on a family who are being counselled;
  • The right to sexuality: including freedom of sexual orientation, provision of sex education to young disabled people, freedom from pressure to have sex or not to have sex, and the right to help with sex including access to assistance, therapy and drugs, the right to form close, meaningful and sexual relationships, to get married or otherwise have a publicly recognised relationship, to have children and be a parent, and to be a couple or family living together. The right to have full choice over birth control including the right not to be sterilised without consent;
  • The right to make choices and decisions: and for those choices to be respected and implemented;
  • The right to privacy and freedom from media intrusion;
  • The right to be allowed to express an opinion: and to be heard fairly and without prejudicial discriminatiOn, on any matter that affects the disabled person;
  • The right to independent advocacy: the right to have an independent appropriate advocate of the disabled person's choice, who can help the disabled person to get their rights and challenge the system including the right to a full range of properly funded, well-publicised and resourced advocacy provision including self-advocacy, peer advocacy, citizen advocacy, group advocacy, legal advocacy and community advocacy, which is publicly recognised by all public and statutory bodies, employers and service providers;
  • The right to form and join organisations run and controlled by disabled people as a basis for collective action and activity;
  • The Right to protection against torture or degrading and inhuman treatment. including freedom from personal attack from disablist language and behaviour (including disablist jokes), inhuman and degrading treatment within the home or without and that any crime which is aggravated by disablist behaviour should be treated as a hate crime.

PART IV

  • Positive actions: It should be the duty of all public bodies to make appropriate arrangements so that they:
  • eliminate unlawful discrimination against disabled people on grounds of disability; and
  • promote equality of opportunity for disabled people.
  • Disabled people should have the same access to the same minimum standards of living as non-disabled people with the additional costs of disability taken into account.
  • BSL should be recognised as a national language for all purposes and consequently appropriate resources should be provided to put it into effect.
  • There should be an Independent Living Centre (ILC) in every district, unitary or metropolitan borough authority area. (An ILC is an advocacy organisation controlled by disabled people and providing services of their choice to disabled people). These Independent Living Centres should act as technical assistance centres for employers and providers under this Bill.
  • Segregated educational provision should be ended by 2020 and funding, training and support should be provided for inclusive education and emotional literacy.
  • All services to disabled people must follow the individual and be provided at the same level of resources and empowerment, wherever the individual moves to.
  • All decisions made by public bodies at any level must be discussed with organisations which represent, and are run by, disabled people.

PART V - Enforcement

If there are costs of implementation regarding positive actions these will fall to the public bodies concerned.

If there are costs of addressing discriminatory issues and practices, then, within the concept of reasonableness they will fall on:

  • Where it is employment it is the employer;
  • Where it is regarding goods or services then it is the provider;
  • Where it is neither of these, public funding.

To the extent that the cost is not considered reasonable for the employer or service provider to pay for, then the government has a duty to make a grant to make the difference.

PART VI - Enforcement

The level of remedy should be similar to the amount of discrimination and should be available through appropriate tribunals, county courts or High Court.

The costs of enforcement should be fully covered by legal aid, irrespective of income. Disabled litigants should have all access costs covered in all legal cases.

The Disability Rights Commission or any other organisation may take a court case on behalf of a group of disabled people (a class action). In keeping with the Human Rights Act, these actions should be available with legal aid protection.

PART VII

This Bill should be more important than (take precedence over) all other legislation, and ideally should form part of a Bill of Rights within a written constitution for the United Kingdom.

Any person taking a case under this Bill is not stopped from taking a case under the Human Rights Act.

http .//www .bcodp .org.uk/campaigns/rightsfreedomsbill shtml 12/02/2004




 
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