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Registration of Cancer Bill [HL]


 

Registration of Cancer Bill [HL]

 

 
 

Contents

1   

Cancer Registries: continuation

2   

National Cancer Registry

3   

Information held by the Registry

4   

Reporting of cancer

5   

Protection of patients’ data

6   

Protection against court proceedings

7   

Power to make regulations

8   

Interpretation

9   

Short title, commencement and extent

Schedule   —   

Cancer Registries in England, Wales and Northern Ireland

 

HL Bill 46                                                                                              

53/4

 
 

Registration of Cancer Bill [HL]

1

 

A

Bill

To

Make provision about the registration of cancer; and for connected purposes.                            

Be it enacted by the Queen’s most Excellent Majesty, by and with the advice and

consent of the Lords Spiritual and Temporal, and Commons, in this present

Parliament assembled, and by the authority of the same, as follows:—

1       

Cancer Registries: continuation

(1)   

The Cancer Registries in England, Wales and Northern Ireland listed in the

Schedule shall not be disbanded.

(2)   

For the purposes of subsection (1), a merger of two or more Cancer Registries

shall not count as disbandment.

5

2       

National Cancer Registry

(1)   

The Secretary of State shall maintain the National Cancer Registry (“the

Registry”), which is comprised of the Network of Regional Cancer Registries.

(2)   

The Registry shall collate information from the Cancer Registries listed in the

Schedule on all cancers diagnosed in residents of England and Wales.

10

(3)   

The Cancer Registries shall obtain the information mentioned in subsection (2)

from the health care organisations responsible for cancer patients.

(4)   

For the purposes of subsection (3), “health care organisations” is not limited to

organisations which are part of the National Health Service.

3       

Information held by the Registry

15

(1)   

The Secretary of State may, on a request to the Registry, obtain information

held by the Registry for the purpose of monitoring—

(a)   

the incidence of cancer;

(b)   

treatment patterns of cancer;

(c)   

the survival rates of persons with cancer;

20

(d)   

cancer mortality rates.

 
HL Bill 46 53/4
 
 

Registration of Cancer Bill [HL]

2

 

(2)   

Information held by the Registry may be used for the purpose of—

(a)   

supporting health services provided for cancer patients;

(b)   

supporting public health;

(c)   

supporting research into­—

(i)   

the causes of cancer,

5

(ii)   

the processes of cancer care, and

(iii)   

the effects of cancer.

(3)   

The Registry shall regularly assess the accuracy of its information.

4       

Reporting of cancer

(1)   

Where a medical examination or cancer test indicates the presence of cancer in

10

a person (including a deceased person), the health care organisation where that

examination or test was carried out shall report the finding to the Cancer

Registry in the prescribed form and within the prescribed time.

(2)   

For the purposes of subsection (1), the prescribed form and the prescribed time

shall be determined by order made by the Secretary of State.

15

(3)   

The Registry shall have access to death records for the purpose of registering

cases, including information on the place of death and the coded and

underlying causes of death.

(4)   

The Registry shall have access to health care records for the purposes of

registering cases.

20

(5)   

The Registry shall have access to cancer screening records for the purpose of

monitoring the effectiveness of cancer screening.

(6)   

The Registry shall have access to national patient registers for the purpose of

obtaining demographic records.

5       

Protection of patients’ data

25

(1)   

Publications or reports produced by the Registry may not disclose the identity

of an individual cancer patient.

(2)   

Patients who do not wish to be contacted for the purposes of research into the

matters listed in section 3(2)(c) may, at any time, request that this preference be

noted on their cancer registry record.

30

(3)   

Any request made under subsection (2) received by the Registry must be noted

on the patient’s cancer registry record within four weeks of its receipt by the

Registry.

6       

Protection against court proceedings

No court proceedings, whether civil or criminal, may be instigated against a

35

person by reason of that person having made available to the Registry any

information for the purposes of complying with the requirements of this Act.

7       

Power to make regulations

The Secretary of State may from time to time make regulations—

 
 

Registration of Cancer Bill [HL]

3

 

(a)   

declaring any type of cancer to be a cancer to which this Act does not

apply;

(b)   

adding conditions which are regarded as cancerous or pre-cancerous to

which this Act will apply;

(c)   

providing for such other matters as are necessary for giving full effect

5

to this Act and for its due administration.

8       

Interpretation

In this Act—

“cancer”—

(a)   

means a malignant growth of human tissue that, if unchecked—

10

(i)   

is likely to spread to adjacent tissue or beyond its place

of origin, and

(ii)   

may have the propensity to recur;

(b)   

without limiting the generality of paragraph (a), includes—

(i)   

carcinoma in situ,

15

(ii)   

carcinoma,

(iii)   

sarcoma,

(iv)   

any mixed tumour,

(v)   

any tumour of the central nervous system,

(vi)   

haematological malignancy,

20

(vii)   

melanoma, and

(viii)   

cancers of unknown origin;

“cancer test” means any examination (including radiological

investigations) or tests (including the examination of any tissue) carried

out with the purpose of determining the presence or absence of cancer

25

in any person (including a deceased person);

“Secretary of State”, in the case of Wales, mean the National Assembly for

Wales.

9       

Short title, commencement and extent

(1)   

This Act may be cited as the Registration of Cancer Act 2005.

30

(2)   

This Act shall come into force in accordance with provision made by order of

the Secretary of State.

(3)   

An order under this section may appoint different days for different provisions

and different purposes.

(4)   

This Act extends to England, Wales and Northern Ireland only.

35

 
 

4

Registration of Cancer Bill [HL]
Schedule — Cancer Registries in England, Wales and Northern Ireland

 

Schedule

Section 1

 

Cancer Registries in England, Wales and Northern Ireland

 

EACR

East Anglian Cancer Registry

 
 

MCCR

Mersey and Cheshire Cancer Registry

 
 

NICR

Northern Ireland Cancer Registry

 

5

 

NWCR

North Western Cancer Registry

 
 

NYCRIS

Northern & Yorkshire Cancer Registry and

 
   

Information Service

 
 

OCIU

Oxford Cancer Intelligence Unit

 
 

SWCIS

South West Cancer Intelligence Service

 

10

 

ThCR

Thames Cancer Registry

 
 

TrCR

Trent Cancer Registry

 
 

WCISU

Welsh Cancer Intelligence and Surveillance Unit

 
 

WMCIU

West Midlands Cancer Intelligence Unit

 
 

 

 
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