Select Committee on European Union Seventeenth Report


CHAPTER 10: THE VIEWS OF FAITH GROUPS

348.  The willingness of members of faith groups to put themselves forward as potential organ donors, and the extent to which their relatives support donation, may be affected by perceptions of the views of the faith group to which they belong. The nature of such views is therefore a potentially important influence on the European Commission's aim of increasing organ donation rates across the EU.

349.  In analysing the initial evidence we received from faith groups, it became clear that, while most faith groups offered support for organ donation in principle, there were important differences between them regarding specific aspects of donation and on related issues, such as the definition of death. It was clear also that views differed about the degree to which donation was to be seen as a matter of religious doctrine or one of individual conscience.

350.  To understand better the reasons which lay behind this, we issued a supplementary Call for Evidence to faith groups (see Appendix 4). This led to the submission of valuable additional evidence which added new information to that which had previously, to our knowledge, been readily accessible.

351.  While we have sought to present below the principal points made in these submissions, this account cannot include every single point made; and the full evidence is printed with this Report (pp 207-209, pp 211-212, pp 256-273). Moreover, the views we report necessarily can include only those from the organisations that responded to our calls for evidence, and they by no means represent the totality of views held across all faith organisations.

General views

352.  The British Humanist Association (BHA), which described itself as "representing the interests of ethically concerned but non-religious people", was concerned about the incorporation of faith based views into policy on organ donation. "We wholly oppose general policy being made on the basis of religious dogma or superstition—though we recognise that provision must be made to accommodate the personal wishes of individuals based on such considerations" (pp 207-209).

353.  The BHA went on to say that most of its members would support donation and took the view that "better public education about organ donation and transplantation is essential, and that policy actions at both State and European levels are needed in order to increase the number of organ transplants and so save lives" (pp 207-209).

354.  UK Transplant reported that it had worked for some years to clarify the views of faith groups about organ donation and transplantation and had produced information leaflets setting out the views of the major groups[52]. They explained that the national leaders of the six major faiths in the UK—Christianity, Judaism, Islam, Hinduism, Buddhism and Sikhism—had all explicitly endorsed donation (pp 26-30).

355.  Professor Gurch Randhawa, University of Bedfordshire, lent support to this assessment stating, in the context of donating organs, that "within the main South Asian religions, namely Hinduism, Sikhism and Islam, the concept of gifting to assist society is a highly-valued virtue. 'Sewa' and 'Zakat' respectively" (pp 67-75).

Views about brain stem death

356.  Certain faith groups expressed reservations about the concept of brain stem death and, consequently, the donation of organs from patients whose death had been confirmed on the basis of brain stem death testing.

357.  The Christian Medical Fellowship, while acknowledging that it did not speak for any particular Christian church, denomination or other group, wrote, "Those with concerns here have reservations about the concept of brain stem death and would argue that it is the act of removal of organs which ends the donor's life". They acknowledged, however, that most of its members accepted the concept of brain stem death (pp 261-263).

358.  The Muslim Burial Council of Leicestershire also indicated mixed views about organ donation from brain stem dead donors. They stated that, on the basis of study by many scholars in Islam, the conclusions to be drawn were: (a) that medical professionals should be entrusted with defining "death" by clinical criteria and this is a question of medical fact rather than one of religious analysis; and (b) that brain stem death should be accepted as the proper definition of the end of life. However, they pointed out also that, according to other scholars in Islam, "it is unlawful to donate and transplant organs, whether of a living person or a dead body" (pp 270-271).

359.  A stronger position was taken by the Jewish organisations. Professor David Katz, on behalf of the Board of Deputies of British Jews, stated, "Whether or not brain death defines the Jewish-legal moment of the death of an individual is debatable. Those who do not accept the definition of brain death cannot become organ donors until respiration has ceased, because this constitutes the killing of a 'still-alive' donor" (pp 259-260).

360.  Dr David Frei, Registrar of the Court of the Chief Rabbi, went further in stating clear opposition to the concept of brain stem death being used to trigger organ donation. "The Court, in line with leading Jewish legal authorities, rules that that the definition of death is 'the cessation of respiration rather than brain stem death alone'. One may not terminate the life of a living person in order to save the life of another" (p 269).

361.  Dr Fernandez-Zincke, European Commission, commented on the position of the Roman Catholic Church on brain stem death. "It was very useful when the Catholic Church made a clear statement about brain death. Then doubts disappeared, and I think that that has been pretty useful. If that could happen in other religions, that would also be very useful" (Q 33). However, when we looked into this point further, we noted that the issue of brain stem death had come under fresh review by the Pontifical Academy of Sciences[53].

"Official" views

362.  UK Transplant made the important point that opinion at grassroots level does not always reflect the "official" view of the faith. They added that differences of opinion existed among faith leaders and that the situation was complicated by a "blurred distinction between faith, culture and ethnicity" (pp 26-30). In the following paragraphs, therefore, we seek to distinguish between "official" and individually expressed views made from a faith based standpoint.

363.  Professor Katz stated, "Religious beliefs are those of people, not organisations". He therefore suggested that it was "difficult, and probably inappropriate" for a representative Jewish organisation to put forward an "official" view on organ donation, especially since not all Jews shared the same view (pp 259-260).

364.  The Bishop of Southwark, writing on behalf of the Church of England, observed, "The Christian tradition both affirms the God-given value of human bodily life, and the principle of putting the needs of others before one's own needs. Organ donation is a striking example of this" (pp 266-267). Mrs Claire Foster, Church of England Policy Adviser, added, "we would expect all Christians to consider ensuring they are registered organ donors" (pp 266-267).

365.  The Muslim Burial Council of Leicestershire stated that many Muslim scholars have interpreted the declaration in the Qur'an "Whosoever saves the life of one person it would be as if he saved the life of all mankind" as supporting donation. However, they acknowledged that some in the Muslim community had interpreted Islamic teaching to imply opposition to donation. Their view was that this opinion "has in some cases been more rooted in cultural attitudes than strict application of Islamic (Sharia) Law" (pp 270-271).

Individual conscience and religious teaching

366.  The Muslim Burial Council of Leicestershire went on to explain that the tendency for opposition to organ donation among Muslims is often based on individuals' own interpretation of what some Muslim scholars say about the human body. According to these scholars, the teaching that "the human body is a trust (amanah) that has been given to us by God as such" means that "there is no permissibility whatsoever for the transplantation or donation of organs" (pp 270-271).

367.  The Ipswich Hindu Samaj reported, "We have consulted our members, who had no objection for the use of organs … for transplantation, both from ethical and Hindu Faith points of view" (pp 268-269).

368.  The view of the British Sikh Consultative Forum was that "Many Sikhs may freely give consent for organ donation regarding it as an act of mercy and compassion" (pp 260-261).

369.  Professor Katz was critical of the idea that an individual, acting on the basis of a personal interpretation of their faith and at odds with the official orthodoxy, should necessarily be seen as mistaken. He did not want anyone to "diminish the role that personal faith may play in the core decision making process and to propound the view that total subjugation to religious authority should be the norm" (pp 259-260).

370.  Mr Tony Lobl, on behalf of the Christian Scientist Church, similarly stressed the importance of individual faith and explained that the Christian Science Church leaves each member "prayerfully to seek his or her own answer regarding personal issues, including organ donation". He went on to clarify that "the teachings of Christian Science include no sense of there being biblical condemnation of any specific medical operation, such as blood transfusions and transplants" (pp 265-266).

371.  The General Assembly of Unitarian and Free Christian Churches declared that they had no ethical problems with donation and stressed that it was "entirely a matter for individual conscience" (p 268).

372.  The Christadelphians (a religious group that bases its beliefs wholly on the Bible) said it had not set down rules on the issue of organ donation since there were "no instructions in the Scriptures" on the subject. However, they anticipated that over half their membership would be opposed to the practice based on the Christadelphian understanding that "our bodies are not our own but are for the glory of God" (pp 272-273).

373.  Sue Mottram, writing as an "individual Quaker", took the view that "most Friends would not regard organ donation as a matter of faith". She went on to say that "there should be no coercion of vulnerable relatives and that the need to harvest healthy organs should not override the patient's need for a comfortable death" (p 269).

374.  The Greater World, a Christian Spiritualist organisation, was generally in favour of donation, but stressed that it was an individual decision (p 273).

375.  The Pagan Federation could see no ethical problems with organ donation and did not identify significant opposition within its membership (p 273).

376.  Mr Stephen Choo, writing on behalf of the Sukyo Mahikari movement (a religious movement established in Japan in 1978) anticipated that members were very unlikely to want to donate their organs on the basis of their teaching that "the spiritual and astral bodies may not have completely left the physical body at the time when organs are removed from the human body". He added, "Nevertheless, according to our teachings, we would not simply decide that all transplants are not acceptable" (pp 271-272).

Views about presumed consent

377.  In chapter 8 we discussed alternative forms for donor consent, including the idea of switching in the UK from the existing "opt-in" procedure for indicating consent to an "opt-out" or "presumed consent" system. Faith groups expressed a range of views to us about this idea.

378.  The General Assembly of Unitarian and Free Christian Churches (p 268), the Greater World (p 273) and the Pagan Federation (p 273) stated that they had no objections to the proposed change, and saw a presumed consent system as compatible with their emphasis upon individual conscience.

379.  Despite the Christadelphian view that most of their members would not wish to donate organs on the basis of their religious beliefs, they did not consider this a reason to object to an opt out system "provided that there was a provision for individuals to choose to exercise their conscience and choose to opt out" (pp 272-273).

380.  Sukyo Mahikari said they would like to offer their support to improving the "opt in" system in the first instance, but would not object to "opt out" if the country moved that way (pp 271-272).

381.  The Christian Scientists thought that presumed consent would be workable for its members. They emphasised, however, that this should not be taken to imply that they took the view that "Western medicine is the assumed norm, especially in this time when so many more people are gravitating towards alternative medicines, as well as prayer-based spiritual healing, such as that practised by Christian Scientists" (pp 265-266).

382.  The Bishop of Southwark reported there was no unified Christian view on the matter of presumed consent. He was concerned, however, that, "the undoubted need for more organs to be donated for the healing of others has to be weighed against the changed relationship between persons and the State which moving to an opt-out system might entail" (pp 266-267).

383.  The British Sikh Consultative Forum was also cautious. "We have some reservations about a system of presumed consent. We are uncomfortable with the underlying logic of presumed consent which suggests that the individual and his/her body belong to the state. We also strongly believe that a system of presumed consent would only be acceptable to the extent it does not undermine the principle of informed and freely given consent" (pp 260-261).

384.  The Muslim Burial Council of Leicestershire clearly opposed a system of presumed consent stating, "we can envisage families raising legal, moral and ethical challenges against the medical profession when they are opposed to one of their loved ones' bodies being used in this way" (pp 270-271).

385.  Professor Katz, Board of Jewish Deputies, also expressed opposition to presumed consent, stating, "the proposed change would not provide reassurance to the Board that the religious rights of a very significant number of Jews in the UK are protected" (pp 259-260). This was also the view of the Court of the Chief Rabbi (p 269).

386.  Professor Katz went on to emphasise that "the concept of presumed consent that has been introduced in some European jurisdictions is only accepted by orthodox Jews because it is the law of the land, not because they regard it as the best way to regulate transplantation" (pp 259-260).

The role of local religious leaders

387.  Mr Chris Rudge, UK Transplant, advised, "there is a clear and urgent need for local leaders to use their considerable influence to promote support for organ donation in their communities, particularly given that opinion at grassroots does not always reflect the official view of the faith" (pp 26-30).

388.  Professor Gurch Randhawa, University of Bedfordshire, shared this view, reporting studies which suggested, "where people know what their religion's position is on organ donation, they are far more likely to use that information to make a positive decision. If people do not know the position of their religion, they are more likely to say no. It is not that the religion is blocking them, it is the fact that they do not know what their religion's position is" (Q 190).

389.  The British Sikh Consultative Forum agreed that the low level of organ donation is largely due to the lack of public understanding of the issues involved, "especially on the part of ethnic minorities". They suggested that a public information campaign targeted at ethnic minorities would help to dispel fears and increase the level of organ donation from those communities. Such a campaign, "highlighting the contribution of organ donation to society and encouraging the take-up of donor cards or other methods by which individuals can make their wishes known, would not be incompatible with the principles of Sikhi" (pp 260-261).

Conclusions

390.  We conclude that there is widespread support for the principle of organ donation from faith groups within the UK. While specific issues raised concerns for particular groups, notably concerns about donation after brain stem death, most groups saw decisions regarding donation as a matter for individual conscience. (paras 352-355)

391.  We recognise the reservations that some members of faith groups (as well as some individuals with no faith group affiliation) have about the concept of brain stem death, and their consequent opposition to organ donation from donors whose death has been defined solely on that basis. However, we see this as a relatively uncommon view and, from the evidence set out in chapter 3, we are aware that donation from brain stem dead donors is of key importance as a source of organs for transplantation. (paras 356-361)

392.  We recognise that there is the potential for confusion if the understanding of community faith leaders and individual adherents appears to differ from the stated view of a faith group. However, we accept that there is the scope for a variety of individual views to exist within the scope of a single overall faith. (paras 362-376)

393.  We conclude that, while several of the faith groups we heard from would be content with a system of presumed consent, some groups have significant doubts and concerns about the concept and others express outright opposition. (paras 377-386)

394.  We conclude that local faith leaders have an important part to play in the bid to increase public engagement with organ donation, particularly given the importance of combating fears associated with death more generally. (paras 387-389)

Recommendations

395.  We recommend that the European Commission should encourage Member States to collaborate on the conduct of further research, and on the sharing of results from this with a view to developing appropriate actions, into the extent to which views based on affiliation to a faith group may affect the decisions of potential donors and donor families, and the attitudes and behaviour of relevant health care staff across the EU.

396.  We recommend that the Government should play a full part in sponsoring the conduct of such research in the UK and in sharing the results obtained with other Member States.

397.  We recommend that the Government encourage the development of programmes which work at a local level with faith and community groups to clarify and communicate issues relating to organ donation.

398.  We further recommend that faith groups, and other ethically concerned groups, should be invited to advise on the development of national and local policies relating to organ donation and transplant in order to help ensure that these are sensitive to the needs and concerns of members of such groups.


52   See the following link to information on the UK Transplant website http://www.uktransplant.org.uk/ukt/how_to_become_a_donor/religious_perspectives/religious_perspectives.jsp Back

53   Vatican Letter Sep-15-2006, Vatican resuscitates issue of whether brain death means total death. http://www.catholicnews.com/data/stories/cns/0605285.htm Back


 
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